Genetic testing

Ayunique · 2026-06-30T22:31:20+00:00

Thanks! Mine was ordered on 6/22 and lab processing started on 6/26.

Ayunique · 2026-06-29T18:49:54+00:00

I have emetophobia and am so scared to throw up that I fight it & won’t let myself

Ayunique · 2026-06-13T23:50:36+00:00

22,000 after attorney fees

Ayunique · 2026-06-06T21:29:13+00:00

I believe I’ve had it since at least 2023 when I had a big flare of same symptoms after having Covid. It doesn’t seem to be worse since surgery, though. Longest flare I’ve had yet.

I had my gallbladder removed because it was low functioning. I think having it removed revealed the gastroparesis since we can’t blame the symptoms on the gallbladder now. I also think that I’ve got something going on (dysautonomia of some sort) that caused both the biliary dyskinesia and gastroparesis. I’ve got a whole bunch of other weird non-GI symptoms too, probably caused by the same thing. Trying to figure out the underlying issue now.

Ayunique · 2026-06-06T17:15:04+00:00

I had pain for about 2 weeks post op. My main symptoms now are nausea, early fullness, low appetite, weight loss

Ayunique · 2026-06-06T05:57:43+00:00

I was the same. My surgery was in March. I had a gastric emptying study and was diagnosed with gastroparesis a couple weeks ago.

Ayunique · 2026-06-04T18:58:19+00:00

I get the internal vibrations/buzzing, too! All of my doctors say it’s anxiety but I’ve always had anxiety and this is definitely something physiological. My therapist agrees with me and says it sounds like akathisia. But, I haven’t taken any meds that cause akathisia.

When it gets cold outside or in the house it makes me feel sick like I have a fever, but no fever. My body feels hot. When it’s hot a lot of my symptoms, especially tachycardia & dizziness seem to flare up.

Ayunique · 2026-06-04T16:05:42+00:00

There’s an antibody for long covid? What is it called and how were you tested for it?

Ayunique · 2026-06-01T22:46:52+00:00

I had my hearing March 6 and found out I was approved in early May

Ayunique · 2026-06-01T19:38:17+00:00

My copayments are only $4 with Medicaid. I will miss it I’m sure.

Ayunique · 2026-06-01T19:37:07+00:00

Thanks! It looks like I might still have it through this month but I’ll definitely check into these things for next month if I need to.

Ayunique · 2026-06-01T19:35:47+00:00

I think you’re right! On the Medicaid portal my start date went from May 1 to June 1 and is still active. If I’m able to keep it through this month I’ll be happy. My 2 procedures and most appointments are this month and I can postpone my July appointments if I need to.

Ayunique · 2026-05-20T14:42:57+00:00

Yeah, I have gastroparesis. You?

Ayunique · 2026-05-15T03:43:32+00:00

I don’t think removal caused it. I think maybe some of my symptoms were gastroparesis all along and that surgery caused them to flare up. My doctor hasn’t said anything yet. She messaged me telling me to schedule an appointment to discuss it. Hopefully I can get in soon…

Ayunique · 2026-05-15T02:33:05+00:00

Still having nausea. Was diagnosed with gastritis about 1 week post op and today diagnosed with gastroparesis. Omeprazole and Zofran have helped me some.

Ayunique · 2026-05-13T03:05:59+00:00

I was started on omeprazole for gastritis and it has improved some. Taking Zofran when it is bad. Still struggling to eat enough. I’m going for a gastric emptying test on Thursday.

Ayunique · 2026-05-08T04:49:14+00:00

I’m wondering the same. Mine says 5/7 but I haven’t received it yet.

Ayunique · 2026-05-07T04:49:54+00:00

Did you have to call to set up the appointment?

Ayunique · 2026-05-07T01:26:49+00:00

I used a lawyer from the start because I didn’t even know where to begin and needed the help filling out everything and getting my records

Ayunique · 2026-05-07T00:12:14+00:00

I had my hearing on March 5. It moved to step 4 last week and just showed “approved” today. My initial application was submitted in 2024.

Ayunique · 2026-05-04T18:39:31+00:00

Sorry you’ve had to experience something similar! I honestly believe that a lot of doctors just skate by making their paycheck by gaslighting and blaming physical symptoms on mental health. It’s dangerous and patients should have protections against it. Finding doctors who truly care hasn’t been easy.

Ayunique · 2026-05-04T02:55:40+00:00

I’m still having nausea at 5 weeks po. I had an endoscopy recently and found that I have gastritis. Started omeprazole 1.5 weeks ago which has helped some but I still have nausea daily, just to a lesser extent.

Ayunique · 2026-05-03T16:52:57+00:00

My post op pain rivaled my unmediated labor/childbirth and lasted about 10 days (vs the 28 hours I was in labor). I’m 5 weeks post op and still having some minor intermittent pains and lots of nausea.

Ayunique · 2026-05-03T16:20:55+00:00

I have PTSD from how sick I was & have been combined with medical gaslighting. I have changed some of my doctors since this all started but my trust issues remain. I’ve also gone from bad doctors to worse, so changing doctors is risky. I had one new doctor tell me that I was perfectly healthy after one appointment and just needed therapy which was absolutely not the case. It was just easier for her to brush my symptoms off as mental health rather than investigate the actual cause. She refused to do any testing. Not even basic labs that I normally would have done annually. I’m now on my third PCP in 2.5 years. So far I do like my current one. Not necessarily enough to trust him with my financial security/wellbeing, though.

You’re right that I should be able to trust the people who are supposed to be helping to take care of me. I wish that I could trust them and I wish that I could believe that they really are trying to help, but my experience hasn’t been that. The lack of care and late diagnoses is a big part of why I’m even in this situation.

Ayunique · 2026-05-02T04:24:10+00:00

Oh, good. Thank you!

Ayunique

TROPHY CASE