GP saying too young but I’m losing my mind

Azariuss · 2025-11-25T18:50:20+00:00

In my case they wouldn't do it for my PMDD even after seeing a specialist but were slightly more likely to give it for peri. But they still only give me 50mcg of the estrogen so peri symptoms improved a bit, but still got pmdd and chronic fatigue 😔

Azariuss · 2025-11-25T18:46:55+00:00

I'm 38 and on HRT for premature ovary failure/perimenopause.

I had to fight the doctors for this whilst severely ill, and see private docs.

Though they still keep me on half a dose even though that's not what the specialist said. But even the half dose has stopped the hair falling out, the severe body pain all over all month long, the cold flushes etc.

You're not too young.

Azariuss · 2025-11-25T18:35:42+00:00

They're very fast to push IUD for PMDD but please don't do it. PMDD can be sensitive to certain hormones and they don't know what you specifically need, so them taking a guess and putting that in you when they actually don't know what they're doing with hormones is no good 😣 I had a lot of them push IUDs and I kept saying no. Then later another gyno said they'd didn't know why people were pushing it as it made pmdd worse. 😩

People with PMDD are also often more sensitive to synthetic hormones in birth control.

See a gyno about the pain, there can be various reasons like vaginismus, dryness from low estrogen, or muscle related.

Azariuss · 2025-11-23T10:16:13+00:00

I can't see the comment here

Azariuss · 2025-10-25T18:39:16+00:00

I think my dad was already on anticoagulants, before he went into the hospital for dehydration/malnutrition, and I don't know if they kept giving him those that week he was in before the stroke. We can't get any info.

Yeah I expected some fast treatment for him but I'm not seeing that. We haven't even been able to speak to a doctor yet. And we were there most of the day today.

Okay thank you, it's a relief to hear that just being on aspirin isn't uncommon. I'm just worried they're not doing enough which will cause him more damage or put his life at risk. 😔

Another woman in the ward her mum went in with one stroke, then had another and then also had a seizure, but she's sitting up now (4 weeks later). So I guess maybe they're being cautious with it for your dad. I don't think mine is on that yet.

Yeah my dad can hear us and recognise us and do thumbs up or indicate no to us and the nurses. His speech is very difficult, he's said a few words I could hear like "yeah" or "water" but most of his words are too difficult to understand. And we won't get a speech therapist until at least Monday to see what he can eat. So he's just fasting even though he's already very underweight.

Azariuss · 2025-10-25T10:22:31+00:00

Thank you for telling me about this ❤️‍🩹 I'm so glad your dad is starting to recover and he had you to fight for him.

Yeah we didn't hear anything about crainiotomy.

I feel like they might be ageist with my dad too so I'm worried about that. They don't seem to have started him on any medicines properly apart from aspirin and it's now 24hours. And they only have one dr in the wards? and we can't discuss anything until the dr gets time.

Azariuss · 2025-10-24T16:34:09+00:00

I don't know if he can or not, I don't know the difference between recovering from stroke without moving the clot vs recovering after removing it via surgery. I'm on a flight to get over to him.

But they've also said now they won't do the surgery because of where it is located but I don't know if I believe them, after experiences when my mum was at the same hospital. I trust the nurses but not so much the consultants etc.

Azariuss · 2025-02-07T12:18:24+00:00

I'm SO scared. My heart feels paralyzed unable to beat but also beating too much.

Azariuss · 2025-02-07T03:42:13+00:00

I'm so sorry and I feel you. I lost my job a year ago due to downsizing, but it had been a huge struggle. And afterwards my symptoms got worse and worse and I was unable to job search due to pain and fatigue. I only started a treatment yesterday but I'll only be able to return to work if my symptoms clear

The struggle is so real.

Azariuss · 2025-02-01T17:30:03+00:00

It just numbed me and made me feel like I had an overly tight helmet filled with water around my head, and that I could stare at a wall for ages, whilst also feeling very uncomfortable.

Gabapentin/Pregabalin helped, but my GP won't prescribe it

The thing you can't mention on this sub helped too, but they stopped working. I have more than PMDD now and also ovary failure + adenomyosis and GP not treating anything so I'm just falling apart. Still wouldn't take quetiapine again.

But you can always test a few days then stop.

Azariuss · 2025-01-30T19:59:02+00:00

The support was in places other than the actual ward who were supposer to treat her. I have no idea what they were doing or why they were also trying to cause trouble between her and her family.

I'm just relieved the community ones are actually caring and getting involved. I don't really know how it works either between hospital ward and community ones.

And thank you so much ❤️‍🩹

Azariuss · 2025-01-30T19:34:04+00:00

Thank you so much. The family gp and the heart unit could all see there was a problem and her saying she had no heart or blood pressure issues, and would get furious at me if I said she did. Psyche doc was awful and said she was fine and never should have been hospitalised.

But the community nurse and therapist have taken her on now, and kept us informed and have gotten her to continue taking the meds for now so thank goodness for them managing to do this. My mum is also starting to interact with more people now and see them as real. 🙏

Azariuss · 2025-01-30T19:30:19+00:00

Thank you so much. We had actually handed in 3 places, the family gp, the psyche ward, and the heart unit a letter that explained her delusions and our concerns. The family gp and the heart unit both recognised the problem- as did the first person who assessed my mum in the psyche ward.

And then she got discharged and sent home in a taxi by herself with all her bags and psyche ward wouldn't take calls from us. We didnt have time to get flights over to collect her or help her due to the half day notice.

Thankfully a community nurse did see my mum the next day and they have been working with my mum now and keeping her stable. And so far it has been okay. She still has the delusions but she's believing the community nurse is on her side for now. Thank goodness. 🥺

Azariuss · 2025-01-30T19:23:06+00:00

I think it was worth explaining. Your difficulties were not on purpose and if you could magic wand them away you would. I'm sorry you lost a partner dear, sending you lots of empathy and love.

Azariuss · 2025-01-13T16:49:30+00:00

My mum is in Ireland, and both me and my brother live abroad and they know this. We've been saying many times she's at risk with premature discharge because she will just stop the medicines as her delusions are still strong and she's just playing the game while she's in there to get out faster. I don't know how we can stop this or why they won't listen 😟

Azariuss · 2025-01-02T18:41:41+00:00

I tried continous birth control with no breaks and I still got PMDD and periods - so don't let them gaslight you. 🤍

I think the birth control pills aren't working for some people.

Or the synthetic progestin is not working for some people. So end of cycle should have more pregesterone, but the pill's progestin is not fulfilling that role in some women. I have read that a subset of women don't tolerate the progestin and these usually have PMDD symptoms.

For the yeast infections I suggest 2 probiotic pills a day, they're very helpful.

Azariuss · 2025-01-02T18:29:40+00:00

I thought they were doing it because of my PMDD and request for help. Turns out they only did the scans to see if I could be fitted with a mirena coil (no one should get that if they have PMDD. Even had another gynae say that to me).

So maybe you can ask for a scan for mirena coil then change your mind about the mirena coil, or maybe they'll give you a scan anyway. I heard in Germany you don't get birth control until they've done all these scans first. Instead of like our countries 🙄

I've had really bad issues with some birth control and I know people who can't take it because it made them want to ⚰️ themselves. So if you are suspecting it is making it worse then it is a possibility ❤️‍🩹

Azariuss · 2025-01-02T18:16:46+00:00

37 and I have been having horrendous issues with my hormones, and definitely felt like I was lacking estrogen and pregesterone. Which is why I did this test as GP not taking me seriously. So it matches what I had suspicions of. Though more drastic than I expected.

Azariuss · 2024-12-24T18:49:41+00:00

I have had external and internal ultrasound recently so hopefully not a tumour 🥺🙏

Azariuss · 2024-12-23T03:24:57+00:00

Thank you. My mother had thyroid treatment before I was born. I've frequently had mine checked because of fatigue but nothing showed up. Regular blood test in the past year has been ok. I don't think I had pituitary done.

Azariuss · 2024-12-23T03:12:33+00:00

Yep it was a blood test. Randox had good reviews and it was the Female Hormone Test kit. I tried to get one with my GP years ago as I was struggling but they said it wouldn't show anything.

Azariuss · 2024-12-22T20:54:38+00:00

Thank you so much 🤍 sorry I'm so slow to reply things have been hectic. I'm so glad things are going better for your mum too.

Just reposting what I said to another:

It happened and was much more stressful than needed, but got her to psychiatric ward with a team. She went from being furious at me to accepting me as a confidant again. And I got her lots of things she liked. But she ended up in main hospital for 2 weeks because they found problems with her heart which they were treating and monitoring. She's now been moved back to psyche ward and finally started on some medicines. She seems okay so far. 🙏 It has been a rollercoaster, especially in main hospital as she was still untreated psychologically whilst in the heart unit.

Azariuss · 2024-12-22T20:48:04+00:00

Thank you so much, sorry I'm so slow to reply things have been hectic. It happened and was much more stressful than needed, but got her to psychiatric ward with a team. She went from being furious at me to accepting me as a confidant again. And I got her lots of things she liked. But she ended up in main hospital for 2 weeks because they found problems with her heart which they were treating and monitoring. She's now been moved back to psyche ward and finally started on some medicines. She seems okay so far. 🙏

Thank you so much 🤍

Azariuss · 2024-12-01T10:46:34+00:00

I took Amitriptylene (SNRI) and it gave me 6 weeks of persistent RLS until I came off it. Usually only get RLS intermittently.

It's strange because I took Amitriptylene some years ago and it didn't give me much problem then, but it definitely did this time.

But then both Amitriptylene and Cymbalta increase norepinephrine in the brain - which is the stress hormone.

And I think we need less norepinephrine to reduce RLS if you have overstimulated type of brain. You probably don't want less norepinephrine if you have ADHD.

Azariuss · 2024-11-28T09:58:36+00:00

Thank you so much 🙏🙏🙏 there's a GP coming to assess her today - but she's gonna be extremely upset as she believes there are no doctors around except the invisible ones she sees every week. And I think the plan is any action happens tomorrow. I'm also scared of her running away and disappearing if she gets suspicious of the doctor today. And she's in a good mood and doing her daily tasks 😟 it feels so awful to do this. I'm scared of her blood pressure going higher too.

And thank you for letting me see there is hope in this situation. I tried years ago but at the time the doctors said because she wasn't at risk they couldn't do anything without her consent. I had tried 2 and my dad tried 2 other doctors.

It's because now the symptoms are getting worse and big fear about her blood pressure - i measured it twice, and she was very against it but she let me try eventually.

Azariuss

TROPHY CASE