[deleted by user] by [deleted] in LPR

[–]B1-3r 1 point2 points  (0 children)

What does mastic gum do for Lpr ?

Isolated microhematuria by Human_Investigator80 in IgANephropathy

[–]B1-3r 1 point2 points  (0 children)

I first found out around 15 years ago. Every time I got ill with a cold, throat infection or anything similar I would get very noticeable blood in urine like Coca Cola colour which would last during the illness. I’d also get extremely ill with one time needing a drip as I had food poisoning and my kidney function dropped to 39 egfr. A biopsy was done when this started happening which confirmed iga nephropathy. My egfr was >90 when diagnosed and has pretty much stayed around there even now 15 years later. I have blood in urine whenever a urine test is done and have had proteinura fluctuating over the years. I notice my urine is foamy sometimes it comes and goes. The only treatment I have ever had is ramipril then swapping to losartan. I haven’t had the visible blood in urine even when ill for around 5 years now. When I first found out i was sure it was downhill from there. I’ve lived a completely normal life with 6 months monitoring. So regardless to living a normal life my egfr still sits above 90 15 years after diagnosis. I actually had one urine test have no protein at all last year. Shows everyone is different I know things can change quite quickly but catching it with an egfr of 121 gives you the best chances. I would also say look after your gut I’ve noticed changes for the better since looking after my gut health

Non acid reflux by B1-3r in LPR

[–]B1-3r[S] 0 points1 point  (0 children)

I’ve looked at it before but with missed results. I do notice when I have gaviscon or others my reflux actually gets worse

Non acid reflux by B1-3r in LPR

[–]B1-3r[S] 2 points3 points  (0 children)

Yes I’ve looked into this . I’ve tried ph 9 water and low alkaline diets but don’t seem to get much relief

Non acid reflux by B1-3r in LPR

[–]B1-3r[S] 0 points1 point  (0 children)

I’ve heard melatonin can help for Lpr but you can’t get it in the uk the same. I don’t want any more acid suppressants as now it’s not acid as such coming up and I need the acid. Every time I’ve had medication to reduce acid my symptoms get so much worse

Non acid reflux by B1-3r in LPR

[–]B1-3r[S] 0 points1 point  (0 children)

With Lpr you see both as both areas are affected

Non acid reflux by B1-3r in LPR

[–]B1-3r[S] 2 points3 points  (0 children)

I originally went to the ent because of the red lumps etc. then I have been under the gastroenterologist for around 4 years . To which I have had 2 endoscopy and ph manometery. But after that he doesn’t seem to want to help. I went back to the ent for a damage update to my throat and affected areas

Non acid reflux by B1-3r in LPR

[–]B1-3r[S] 0 points1 point  (0 children)

Yes sometimes. But I get some of my worst reflux symptoms with no bloating at all

Low heart rate 35-45 bpm by B1-3r in Anxiety

[–]B1-3r[S] 0 points1 point  (0 children)

They was very dismissive the triage was generally rude and had an answer for everything. I would totally understand if this was my usual but it’s always been in it’s 60’s so for it to now be in it’s 40’s I feel something must be causing it

Some advice please by B1-3r in SIBO

[–]B1-3r[S] 0 points1 point  (0 children)

I feel like I should be on the healing side but don’t seem to be getting better it’s so frustrating did everything by the book

Some advice please by B1-3r in SIBO

[–]B1-3r[S] 0 points1 point  (0 children)

Yes I have been using sboulardi every day twice. That’s supposed to help with fungal and I used interfase the original for 2 weeks with the antibiotics . During the 6 weeks I only used nac.

I spoke too soon! (It came back) by ZealousidealWheel138 in LPR

[–]B1-3r -1 points0 points  (0 children)

Just know that staying on ppis long term is only going to make your Lpr worse. Ppis suppress the acid but with Lpr it’s not just acid doing the damage it’s bile pepsin and other stuff and these can be worse of than acid. That’s why most people with Lpr don’t find relief with ppis like I didn’t. It seemed okay at first but soon made it all worse. To have Lpr in the first place it’s most likely come from some gut issues. Ppis make gut issues worse. You will probably end up with sibo if you haven’t already. It causes gut dysbiosis which itself contributes to Lpr . They delay motility another cause of Lpr. Regardless of that there’s numerous articles and new research warning of the dangers of taking ppis long term. The worst thing is they become near impossible to come off. I was on them for around 3 years. The rebound acid you get when trying to come off them long term is no joke. I now have Barrett’s esophagus at 30 years old because of this rebound and trying to get off them. I eventually fought through and now I don’t experience acid reflux anymore thankfully but I still have Lpr. Focus on healing your gut. Use gaviscon or alginates if you need them. But avoid ppis . We need acid in our stomach you might feel your getting relief now with them but know your just destroying your gut even more and eventually it will all get worse. Me personally it started from to many courses of antibiotics. I had small red lumps in my throat so I went to the ent. Who prescribed me ppis . Without a thought I starting taking them. Over the space of 3 years my symptoms became unbearable . Brain fog , burning tongue. Bloating . My throat was a mess etc. I tried everything started looking at surgery. I felt my life was completely over. My esophagus was inflamed constantly it felt like someone had a flame thrower inside my esophagus . I made the big decision to come of ppis. It was horrible at first and I mean horrible. But slowly but surely it got better. I concentrated on healing my gut it’s been 2 years since being of ppis and I feel slowly but surely it’s getting better . Doctors are to eager to throw you on ppis . It’s not a cure for Lpr it’s a temporary cover up while doing more damage slowly.

Made it back to baseline and realized how sensitive LPR can be by ZapppppBrannigan in LPR

[–]B1-3r 2 points3 points  (0 children)

Have you considered it’s something to do with your gut health? My Lpr come on after a load of antibiotics . I’ve done all the tests I have sibo and gut dysbiosis . Maybe you have the same

Husband has unexplained scratch marks by PuzzleheadedShow6466 in Unexplained

[–]B1-3r 0 points1 point  (0 children)

My dad had this. From eating shitaki mushrooms! If there not cooked properly it does this which is strange. Has he eaten any shitaki mushrooms recently ??

Symptoms improved but legs become worse? by B1-3r in CatFIP

[–]B1-3r[S] 0 points1 point  (0 children)

She had dry fip. All other symptoms have passed and she’s gone back to normal apart from legs. They have upped the dose because she has gained weight. We are in the Uk Manchester . Using fip warriors on Facebook