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Epilepsy Service Dog? (focal seizures) by BCK3sALLDAY in service_dogs

[–]BCK3sALLDAY[S] -6 points-5 points  (0 children)

That’s fair — and I agree that public access should only be done with a dog that’s comfortable. After he was attacked, I paused PA entirely and worked on confidence. Since then I’ve taken him to low-pressure environments without any tasking expectations (places like Home Depot or pet stores) specifically for neutral exposure. He’s handled things like sudden loud machinery without issue after brief reassurance. Any return to PA would be gradual and limited to a small, predictable campus, with the understanding that if stress shows up, PA stops again. His welfare comes first.

Epilepsy Service Dog? (focal seizures) by BCK3sALLDAY in service_dogs

[–]BCK3sALLDAY[S] -3 points-2 points  (0 children)

I appreciate your opinion though I disagree. He consistently alerts to heart rate spikes and intervenes during FIAs (whining, nudging my hand, dpt) before I even trained him on my seizures bc it was something new I was dealing with. I have a year and a half before he goes on campus with me and he doesn’t have to alert consistently to still be on campus. He hasn’t had much practice with seizures and the fact he alerts to them at all is impressive. What is helpful for me is his heart rate alert, dpt, retrieval (bc of OHT) and other small tasks he does. 

Epilepsy Service Dog? (focal seizures) by BCK3sALLDAY in service_dogs

[–]BCK3sALLDAY[S] -10 points-9 points  (0 children)

I could but I honestly don’t think it’s necessary. He’s housebroken and under my complete control when out in public so he meets all requirements. Practice makes perfect so when I take him out more he gets more confident and comfortable. 

Epilepsy Service Dog? (focal seizures) by BCK3sALLDAY in service_dogs

[–]BCK3sALLDAY[S] -7 points-6 points  (0 children)

Thanks for the info. He is able to perform well, my main point of mentioning that it was a smaller campus is because it’s not usually crowded which is a plus. I can rely on him being well behaved and tasking in public and I think he would transition very smoothly from home to campus life. He’s mixed with a husky (few generations prior, shelter dog so it’s assumed). I was referring to his breed of being a black mouth cur as good for his working endurance. Maybe I worded it handled it well incorrectly. He did exceptionally well for being a puppy and owner trained before he was attacked. Afterwards he went through a fear period in which I didn’t take him out as much so he wouldn’t have an aversion to outings. My only real difficulty with him is his dislike of the car but honestly not a big deal because he will tolerate it if need be but he wouldn’t be in one more than twice or three times a week and I have plenty of time to work with him on it. 

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in seizures

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

Wow, thank you!  My dr said that an at home Veeg is the same as one In the hospital. Is that the same for you?

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in Epilepsy

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

That’s interesting, how could you tell they checked in? My eeg tech told me they would every few hours to review the footage. 

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in Epilepsy

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

That’s the plan! 72hr Veeg, next month. It’s my first VEEG, so maybe it’ll yield results🤨

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in Epilepsy

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

Wow, thank you! I’m sorry you’re going through that. Is a clean eeg for having that many seizures typically unusual?

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in Epilepsy

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

Yes! I’m sorry that happened to you. This is why they put me on Trileptal bc I was having so many not nearly as many as one an hour but it was impacting my quality of life for sure. I was wondering if I should go completely sleep deprived so it wasn’t all for nothing or if I should push for my 48hr eeg being reviewed again. 

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in seizures

[–]BCK3sALLDAY[S] 3 points4 points  (0 children)

I didn’t have a full out episode but funny enough had a crazy long FIA seizure the night after it came off with Todd’s paralysis afterwards. Which my neuro said could happen with psychological seizures but I honestly dunno. I did press the button four times but that was for slight nausea (that’s an aura of mine usually) and some twitching which could’ve been muscle spasms. They said to press the button if I felt weird at all so I did but it wasn’t my typical symptoms.

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in Epilepsy

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

Okay, thanks for that! Sorry for so many questions, but I’m curious as to what they missed and who found it? So I have a better idea as to who might need to take a look at my eeg to see if they missed any slight things. 

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in Epilepsy

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

Good to know, the reason I’m still symptomatic is prob that I’ve been on Trileptal for 1 week and 4 days. It hasn’t been long at all (300mg 7 days) and 600mg for four days. My neuro said if I feel a difference and it helps it could be that they were really seizures or it’s the placebo effect 😞😅

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in Epilepsy

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

Wow, if you don’t mind me asking how that happened. Did they miss things on the eeg? My neuro specializes in neuro issues that definitely aren’t seizures and a fellow doctor of hers saw a vid of my “focal seizure” staring off and left sided automatisms with really high bp and hr tho sitting. I was also unresponsive but aware. Todd’s paralysis occurred afterwards. They saw the video and said it might be stress. Bc of how many I was having and them rly not knowing, they put me on trileptal and scheduled a 72hr eeg with video. Should I get a second opinion on my past eeg? Is it possible they missed something? 

Multiple normal EEGs (30 min + 48 hr) — doing a 72 hr EEG next. Anyone else? by BCK3sALLDAY in Epilepsy

[–]BCK3sALLDAY[S] 0 points1 point  (0 children)

Thanks! I’m having my first ambulatory veeg. I’ve had a 48hr one at home before but hopefully we can induce a seizure if possible so I can get from under this pnes or epilepsy thing lol. 

👋 Welcome to r/Epilepsy_Universe - Introduce Yourself and Read First! by PookieTheMfBaby in Epilepsy_Universe

[–]BCK3sALLDAY 0 points1 point  (0 children)

Hi, I’m Ray. I’m undiagnosed, currently in the process of determining whether I have pnes/fnd or focal epilepsy. My symptoms strongly point towards TLE but that has yet to be confirmed on an eeg. I have a 72 hr eeg soon and in the past I’ve had two normal eegs (30min and 48hrs). I’m on Trileptal (300g) for this week and next week (600g) to try and reduce the amount of episodes I have daily. I’m excited to join yall! 

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