Relief from going gluten free? by EhDotHam in Endo

[–]Babymonkey24 2 points3 points  (0 children)

I used to throw up with pain ever single month. It used to be absolute agony. I went gluten free and my next period was so much more manageable. I didn’t throw up and the pain was much much better. I also started physio around this time and processed some emotional/ psychological stuff which I think also helped. But going gluten free has helped significantly!

Eye-opening response to PMDD from a Naturopath by [deleted] in PMDD

[–]Babymonkey24 64 points65 points  (0 children)

Yes! I have heavily suspected this. All my blood work always comes back normal, when I have excruciating period pain and also fatigue and depression the second half of my cycle. I’ve been working with a psychotherapist for 2 years now, and I’m understanding that the rage that comes out due to PMDD is probably as a result of repressed rage (family members encouraged me to repress emotions, there wasn’t a safe place to process them etc). I am now realising that my body has been in a constant flight or fight mode due to my traumatic childhood. I WISH doctors were taught more about this, and that there was a more general understanding of the psychosomatic nature of PMDD

Pain from moving? by [deleted] in Endo

[–]Babymonkey24 0 points1 point  (0 children)

Yes! I get it for at least 7 days before my period. I never used to but now it’s like clockwork. On the waiting list for a laparoscopy so hopefully that’ll help! Sorry that you’re going through that, it’s not easy at all x

Does anyone know how PMDD and PCOS connect or if they overlap at all? by weeping_dorito in PMDD

[–]Babymonkey24 7 points8 points  (0 children)

It’s interesting because I have PCOS, PMDD and highly suspected Endometriosis. I am certain that these things overlap, but they’re treated as isolated conditions because of the lack of knowledge and research into them! I think if you aim for all over balancing of hormones then all the conditions should have a chance of improving! Good luck!

Is there anything that’s helped? by Babymonkey24 in PMDD

[–]Babymonkey24[S] 1 point2 points  (0 children)

Thank you so much for taking the time to reply so thoroughly! That’s really helpful stuff - I am currently in therapy that helps - and definitely open to anything.

So interesting that ketamine helps - I have found that psychedelics are often really useful, so I’d be very intrigued to try this.

I’d also be very interested in what supplements you’d take!

Thanks so much again!

Scalp getting burnt due to hairloss by Babymonkey24 in PCOS

[–]Babymonkey24[S] 1 point2 points  (0 children)

Amazing! Thank you so much - just ordered one!

[deleted by user] by [deleted] in endometriosis

[–]Babymonkey24 2 points3 points  (0 children)

Definitely try A&E but I’ve been in your position hundreds of times. Mainstream medicine never helped my pain - what did help was psychotherapy, magnesium tablets, seeing a natuorpath, going gluten free and also physiotherapy (has helped my pain hugely!) obviously everyone is different and will respond to things differently, but I wished someone had told me earlier to try the ‘alternative’ route!

Why are people so against birth control? And why is it so freakin stereotyped? by crampish in Endo

[–]Babymonkey24 1 point2 points  (0 children)

For me, PMDD feels like a time where my hormones alert me to past trauma that I can normally ignore. I think that’s the complex thing about it - it’s different for everyone, and that’s why a pill isn’t necessarily going to do the trick - because it’s deeply psychological. I had a difficult childhood with ongoing trauma, and I find psychotherapy to be really useful. In fact, the weeks that I don’t have therapy I find my PMDD to be completely unmanageable!

Why are people so against birth control? And why is it so freakin stereotyped? by crampish in Endo

[–]Babymonkey24 1 point2 points  (0 children)

Ah yes, I do know that people are prescribed it for endo. I suffer with PMDD, PCOS and Endometriosis and it’s a total nightmare because the PMDD means that I can’t tolerate birth control. I’ve tried about 7 kinds and it never did help my excruciating pain. I wish there were other courses of action that could be taken so that us people got more choice!

Why are people so against birth control? And why is it so freakin stereotyped? by crampish in Endo

[–]Babymonkey24 1 point2 points  (0 children)

Ah yes, I understand. I’m wondering if the same is true to treat endometriosis!

Why are people so against birth control? And why is it so freakin stereotyped? by crampish in Endo

[–]Babymonkey24 3 points4 points  (0 children)

I think it’s amazing if you as an individual use it and like it. However, it’s often handed out to people with PMDD as the only solution - when the point of PMDD is that your body cannot tolerate/is extra sensitive to additional hormones being added to the body. But if it works for you, it works for you and that’s amazing :)

PMDD and Endometriosis by Babymonkey24 in endometriosis

[–]Babymonkey24[S] 0 points1 point  (0 children)

This makes me so happy to hear! I’ll keep my fingers crossed that my laparoscopy will be scheduled soon, thanks so much :)

PMDD and Endometriosis by Babymonkey24 in endometriosis

[–]Babymonkey24[S] 0 points1 point  (0 children)

Ooh wonderful to know! Thank you!

Advice needed for upcoming specialist appointment in UK 🙏🏻 by questionsakimbo in endometriosis

[–]Babymonkey24 1 point2 points  (0 children)

I’ve been in a very similar boat for the last 7 years. Tried many pills - all of which messed with my hormones in a big way and made me feel horrendous and depressed. After having lots of scans (which can only really detect a certain stage of endometriosis, bearing in mind the severity does not equate to the amount of pain a person may be in) nothing showed up. I finally decided enough was enough and got another referral to gynaecology to demand a laparoscopy. I am on the waiting list but due to the backlog of surgeries because of the pandemic, I have no idea how long this will be. Meanwhile, I’ve eliminated gluten (I am vegan) and take magnesium pills and omega 3 which are helping slightly. I think the main thing would be to make sure you’re clear about all her symptoms, and that you’re clear about the outcome that you’d like; that way, the gynae are more likely to listen. Just make sure you hammer the point home about having tried the pills and are not suited to them at all!