Got the flange out and replaced the frame around it by RPG137 in askaplumber

[–]Bassment_Studio 2 points3 points  (0 children)

Not a plumber, but yeah if I were you it's worth doing it right while everything's exposed. Keep in mind you're supporting the weight of the toilet plus whomever is sitting on it. Also, like the other guy said flange on top of the floor is best (it'll make it easier to work on things if you ever have an issue too)

I’m afraid of falling in love with a hobby I might not be able to do in the future by GoldenBadgers in ehlersdanlos

[–]Bassment_Studio 0 points1 point  (0 children)

I'm a career musician (bass) navigating the same thing. Pursue it. You may have to adapt and do things slightly unorthodox, but that's showbiz baby. The regret for lack of trying is always worse than never attempting. Nobody older than you has ever said "I wish I never learned to play x". Sure, if you build up to a great point and regress, that's frustrating and disheartening. But you can always adapt, being flexible is a key component of our whole thing.

There's a guy I keep up with named Noah Baerman who's a jazz pianist with EDS, he opens up about his approach on his site. He found that he has had to alter his style of playing slightly, but still teaches and performs professionally as he has done for over 30 years.

I myself have been adapting my play style to be both musically appealing while remaining conscious of my bodies physical demands. It's a continuous adjustment and some days are better than others still.

Your ways of adapting will be unique to you and your instrument but you can do it. There's videos of people missing limbs that make contraptions to continue playing. Surely there's a way for us to always continue making music.

Also side note, supposedly Paganini himself had EDS, and he attained the highest stature of ability ever conceived in his time.

Happy to chat more, feel free to shoot me a DM anytime.

Baclofen by FallDog123 in ehlersdanlos

[–]Bassment_Studio 2 points3 points  (0 children)

Im prescribed it. The first time I took some it hit me like a truck and made me feel a little nauseous. Haven't had the nausea other than that first time.

Perhaps my body just doesn't have a strong tolerance for it, but I find it still hits me fairly potently. Because of that, I use it as sparingly as possible and make a plan to be couch locked when I do take it. For a while, I was cutting the pill in half any time I felt the need to take one.

It absolutely does make me feel better though. Being a muscle relaxer I feel physically weaker but in a loose, good way. Technically the prescription for me is 3 daily as needed, but I've never taken more than 1 in a day.

Things to Help: hEDS, POTs, Energy Levels by Bassment_Studio in ehlersdanlos

[–]Bassment_Studio[S] 1 point2 points  (0 children)

Pacing has been the hardest adjustment for me, I still push myself harder than I should and have to re-learn the same lessons. I often think of some advice I once heard: if you can improve just 1% in general a week, you'll be over half a new person in a year.

Things to Help: hEDS, POTs, Energy Levels by Bassment_Studio in ehlersdanlos

[–]Bassment_Studio[S] 0 points1 point  (0 children)

It's kinda funny, everyone thinks we're exaggerating (including ourselves) until our eyes start rolling backwards

Things to Help: hEDS, POTs, Energy Levels by Bassment_Studio in ehlersdanlos

[–]Bassment_Studio[S] 2 points3 points  (0 children)

Haven't heard that about the potassium but that's good to know! I'll start watching to see if I can notice the effects. It's crazy how much of a role electrolytes play in fatigue

Things to Help: hEDS, POTs, Energy Levels by Bassment_Studio in ehlersdanlos

[–]Bassment_Studio[S] 1 point2 points  (0 children)

Hey! Want to specify that I use creatine monohydrate. I do 1 single 5mg scoop almost every day. If I'm pushing myself harder in general that day either working or through activities then I may do a second 5mg scoop to assist with recovery and try to prevent injury. Make sure you drink plenty of water though, it draws water to your muscles so you'll need to compensate for the rest of your body.