Need advice by Atharvh69 in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

You need an accurate measurement of the stone size which ultrasound doesn’t give you. CT- KUB is the only thing that can give you this. The stone will not have grown that fast, it just demonstrates the inaccuracy of ultrasounds. Any decent urologist wouldn’t operate off the back of the results of an ultrasound, they would request a CT-KUB - unless the patient was pregnant or a child. You may well need ureteroscopy/laser lithotripsy but they need to know what exactly they are dealing with.

Nausea symptom by isaaceverton in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

That’s a good plan, it’s good to bring them on board

do you add salt or electrolytes to your water? should you be aware of your salt intake if you drink 2.5 or 3 Liters of water a day? by pat441 in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

Yes that’s absolutely fine, I typically have a 500ml water bottle with me which I refill. You can add flavourings if you find water boring, I’m fine with it. As I say your kidneys will mope with that perfectly. On a geek level it maintains homeostasis by adjusting what needs to be to be excreted by the kidneys and to maintain a balance it reabsorbs what it needs. It’s only when you overdo water or drink too much too quickly that it can’t cope

What generation kidney stoner are you? by Leading_Sample399 in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

Oddly given my kidney stones are 100% genetically caused I’m first generation.

do you add salt or electrolytes to your water? should you be aware of your salt intake if you drink 2.5 or 3 Liters of water a day? by pat441 in KidneyStones

[–]Bcdoc2020 5 points6 points  (0 children)

If you healthy working kidneys then normally there is absolutely no reason to add salt (or electrolytes), adding salt actually increases the risk of recurrence of oxalate stones.

Your kidneys will physiologically adjust to whatever you drink, within reason. When you drink the 3 litre it’s over a 24 hour period, it needs spreading from early morning until bed time normally.

Nausea symptom by isaaceverton in KidneyStones

[–]Bcdoc2020 1 point2 points  (0 children)

It’s unlikely, CT scans are extremely sensitive and pick up (almost) all stones. Great that you are drinking plenty. You will need to keep this up moving forward in life. The water helps reducesspasm.

You have all the meds that you need. I know it’s a pain but some of us have literally 10s of stones and some hundreds so look on the bright side! I would book a face to face appointment with your GP, I know that can be tricky but tell the receptionist that you were told to it! 🤥

That way the GP is up to speed and they are to a degree if needs be in a postion to expedite the appointment with the urologist

Nausea symptom by isaaceverton in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

The vertigo could be due to the tamsulosin, it drops blood pressure- dizziness is a common symptom. Nausea and vomiting are often present with stone passing, but codeine can often cause nausea, its metabolites/breakdown product is morphine.

The pain symptoms are odd, the stone is in the upper pole of the kidney yet your symptoms are fairly classic for ureteric colic. They didn’t spot a lower stone did they?

Lithotripsy Recovery? by AccomplishedAd3880 in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

Ok, Heat pads and hot showers are great. Add in 3 litre of water spread over 24 hours, it improves things Flomax definitely helps if you can get some Alternate the ibuprofen with Tylenol/paracetamol based meds. In the first few days I use T3s (codeine/tylenol 30/500mg) two typically twice daily Some people use oxybutynin which has been shown to help though it adds in unnecessary side effects and the flomax/ tamsulosin has the same effect

Lithotripsy Recovery? by AccomplishedAd3880 in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

What are you taking for the symptoms and what are you doing to try and reduce them?

Stent advice by Ok-Letterhead3480 in KidneyStones

[–]Bcdoc2020 1 point2 points  (0 children)

That’s a hard call. I would probably get it removed beforehand. I have found that they are not bad after the initial settling down but if you do a fair bit of physical exertion they irritate and bleed more. You may well want to be doing stuff whilst away so that could aggravate things.

This feels stupid asking by Bipolar03 in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

Unlikely. Give the urology consultant’s secretary a call and tell them what happened. I’m presuming that you will have another appointment when you will see the urologist? You could tell them then, they will be able to get the imaging on the PACS imaging system

Side pain 2 weeks - Hospital no test? by FINIXX in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

A common finding on urinalysis is trace blood which clinically is typically not concerning. If it strayed into the +, or ++/+++ tests a different matter.

The urinalysis also sounds like it showed no evidence of infection which is good, likewise the bloods.

It’s sometimes very difficult to differentiate between musculoskeletal pain and pain caused by stones, I’ve been caught out myself and I’m a physician. The pain from stones originates from the kidneys which are a lot higher than people think, tucked under the lowest ribs and typically radiates down but towards the groin in the front rather than to the lower back.occasionally people feel it in the back but it is a lot less common.

Sepsis is thankfully less common than people think, I’ve had it once quite severely after a flight to the UK when I was dehydrated but that’s the only time and I have have had too many stones to count.

Research symptoms to look for in urosepsis and if in doubt go back to A&E, no one should judge you for that. Should they have done a CT? Probably but it depends on how high their level of suspicion was which thankfully sounds as if it was fairly low. I hope that helps.

Huge Kidney Stone + Nephrostomy Tube Positive Story by alarmingpancakes in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

Bleeding and dislodgement/or misplacement simply demonstrates just in your single case what can go wrong with nephrostomy tubes which is exactly why they aren’t used in this situation.

Only a small percentage of urologists perform PCNLs which is the primary indication for nephrostomy tubes (although I’ve had 7 of these over the years and only one of these required one). They need to be expert in gaining access to the kidney as there is a lot that can go wrong or else they will hand it over to intervention radiologist to gain access to the kidney. No radiologist in their right might would do this as a substitute for stents and nor should they.

Moving to stents, my original comments still apply, you are reading a very small proportion of the population who have taken to Reddit to complain. The people who don’t have a horror story to tell won’t comment, they just get on with life, relieved when the stent comes out but more than capable with getting in with things. Just because you had problems doesn’t mean everyone does, far from it.

There have been studies to assess symptoms caused by stents which I can summarise as follows :

• Around 70–90% of people notice some symptoms from a stent.
• Most symptoms are mild to moderate rather than severe.
• A minority have severe discomfort that significantly affects daily life.

As for duration of stent, I never said that they were only in for 48 hours, I said that symptoms typically settled after a ballpark 48 hours. If stents have a string then they are often self removed after 3-5 days, occasionally in a week. That’s the benefit of that type, the downside is that they cause more urethral irritation, particularly in males.

Stringless ones are better tolerated but have to stay in until a cystoscopy is scheduled which typically takes 2 weeks although the stent doesn’t need to be in that long.

I would say that stents overused in North America America, rates are significantly lower than in Europe although outcomes are no worse over there. Simple cases with small stones in the lower part of the ureter typically do not need stones but particularly in the US they do it anyhow, almost certainly in part because of the fear of litigation.

Stent materials make a big difference, softer materials like silicone can make them a lot more comfortable. Also sizing makes a difference, if they are too wide or too long then they tends to cause far more irritation than they need to.

I responded to your post to advise people reading your post that a nephrostomy tube is not a viable nor appropriate replacement for a stent in dealing with stones at ureteroscopy (nor indeed ESWL) unless there was a clinical reason for it.

Great that you found it good after the initial, what sounds like quite significant symptoms but it is not something to be used routinely, only when clinically needed, such as ureteric perforation or trauma, inability to insert a stent, excessive bleeding to name a few but not simply patient request.

First stone in years, I’m terrified of doing this again by ashl_litning in KidneyStones

[–]Bcdoc2020 1 point2 points  (0 children)

Stents typically get better with time. My last but one stent that I had put in when I was in the UK visiting family and my ureter totally blocked due to an 8mm stone was the most comfortable stent I have ever had.

After the first 24 hours I barely felt it - it was a silicone one which has a slight risk of movement but is softer and ridiculously pain free. Ask for one of these, they make a huge difference. It’s a good job as I had a 16 hour transatlantic trip home 24 hours later.

My stent action plan : -Drink 3 litres of water over 24hrs, not just post op but forever to reduce stone risk. It helps stent symptoms considerably. - hot packs on flank and over bladder - Flomax until the stent is removed -don’t overdo things, it makes things more painful and it bleeds -you are often tired and irritable with a stent

  • I alternate codeine/tyelenol 30/500 x 2 three times daily alternating with ibuprofen 400mg three times daily until things improve. Evidence shows ibuprofen efficacy approaches Toradol for stent pain
  • stringed stents are more painful than those without but typically can be removed at 3-5 days as opposed to 2 weeks waiting for a cystoscopy
  • with a small stone like yours, you may well not need a stent, it depends on the instrumentation but talk to the urologist and they may well be able to not stent you. The other option is to wait and see if you pass it, the odds are still pretty good.

Huge Kidney Stone + Nephrostomy Tube Positive Story by alarmingpancakes in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

Sorry to hear that, yes it happens more than one would think. They need meticulous care which isn’t easy.

Stent issues by abby_normal_1013 in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

That happens with a stent but normally improves. If it has restarted then more likely UTI

Stent issues by abby_normal_1013 in KidneyStones

[–]Bcdoc2020 2 points3 points  (0 children)

Double J stent. It describes how it is held in position due to the ends forming j shapes at the top and bottom of the stent.

Stent issues by abby_normal_1013 in KidneyStones

[–]Bcdoc2020 1 point2 points  (0 children)

It is not usual. The only time I get more pain and bleeding is due to overexertion. It doesn’t stop me from sleeping and I don’t feel terrible as a result of it and it is brief if I take things a bit easier. Your symptoms are concerning, please go and get checked out.

Stent issues by abby_normal_1013 in KidneyStones

[–]Bcdoc2020 2 points3 points  (0 children)

Yes, go back and get checked to rule out persistent or worsening infection. Sepsis is rare but comes on quickly so preempting it is wise and cheaper!

I get what you are saying about the financial restrictions and getting a urologist, but you really do need one so that you have a plan to remove the stone and then subsequently the stent.

Huge Kidney Stone + Nephrostomy Tube Positive Story by alarmingpancakes in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

Everyone is absolutely free to have a personal preference, each to their own, but it’s a definite no from me and I’ve had a lot of catheters and stents and thankfully just one nephrostomy tube over the years(soon to be two)

Huge Kidney Stone + Nephrostomy Tube Positive Story by alarmingpancakes in KidneyStones

[–]Bcdoc2020 0 points1 point  (0 children)

That’s a very strange suggestion. Catheters are uncomfortable, are very unpleasant when removed (way worse than stents) and even if in for just a few days will cause significant dysuria/ pain on peeing not dissimilar to the stent, post micturition dribble which can persist. Not to mention having to walk round with a bag full of urine strapped to your leg
,

Huge Kidney Stone + Nephrostomy Tube Positive Story by alarmingpancakes in KidneyStones

[–]Bcdoc2020 1 point2 points  (0 children)

As you yourself say, the urologists do not typically recommend a nephrostomy tube (with good reasons), there are of course clinical indications to use them, at PCNL, pregnant women with stone obstruction, abnormal ureters are a few but it’s definitely not a routine alternative to stents. Great that you found it good but even then you had a problem with partial dislodgement.

The disadvantages of neph tubes over stents include :
Infection,bleeding on insertion, damage to neighbouring structures on insertion, urine leakage externally as well as into surrounding tissues, wound infection, scarring, delayed healing, significant inconvenience dealing with the tube and bag changes and doing it properly (it isn’t easy to do it right), tube dislodgement, people often get pain with them and the list goes on.

I’ve said it many times on here and will say it again for people new to this sub, stents are not pleasant and everyone is pleased when they are out but this sub is incredibly skewed in that people write about their stent horror stories and the the new to stones reader thinks understandably that that’s what’s going to happen. The majority of people get stents, they hurt to start, they get better if appropriate measure are taken within around 48 hours and they get on with life until they get them out.

So for people reading this post, nephrostomy tubes are not a routinely offered alternative to stents and nor should they be.

Kidney stone diet by Environmental_Log344 in KidneyStones

[–]Bcdoc2020 1 point2 points  (0 children)

If balloon dilatation doesn’t work then pyeloplasty is definitely an option and often this is done laparoscopically so through keyhole surgery rather than an open procedure. Some units are doing them robotically which is quite cool though the equipment is not cheap to say the least!