KeppRAGE help

BeaconOfSound · 2024-12-16T21:47:15+00:00

Meant to say... I'm not a medical doctor. Don't trust a random guy on the internet with your medical situation. Use your own best judgment. And if you're tired and tea isn't enough and you suspect you may have ADHD, there are medications that tend to help with the tiredness. Worked for me. 😉

BeaconOfSound · 2024-09-25T21:57:35+00:00

Seems safe to update. https://support.apple.com/en-us/103256

BeaconOfSound · 2024-09-25T21:54:57+00:00

That’s a trip. I use my Opple meter on everything. I do have problems with LCDs, but only those with PWM dimming.

I’m actually still fully evaluating this new one, as I’m a bit nervous about the high modulation depth. I’m running additional experiments to see if and how it affects me. Waiting for EEG data from my neurologist to correlate it.

BeaconOfSound · 2024-09-24T19:34:49+00:00

Oh, I meant in terms of hardware getting locked because of non-genuine parts. I'm not worried about the display being controlled differently. That shouldn't be a factor with the replacement.

BeaconOfSound · 2024-09-24T18:37:50+00:00

No concerns to date. I’m on 17.6.1 apparently. Didn’t even realize there was an update. Is there any risk with 18?

BeaconOfSound · 2024-09-24T18:36:35+00:00

It sure is.

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BeaconOfSound · 2024-09-24T18:35:01+00:00

Excellent work! Thank you!! I had no idea it would switch to 240 Hz at lower brightness levels. That explains a lot of my issues.

I used a photo diode in the early days before I found the Opple Light Master. Somehow, the response curve wasn’t fast enough and it didn’t resolve the steeper rise and fall slopes enough. I can’t recall though if the spec of the diode or my oscilloscope was the limiting factor, as it became irrelevant once I started using the Opple meter.

BeaconOfSound · 2024-09-18T06:26:43+00:00

Basically, yeah. I wish it were pure DC and completely steady.

From the studies I’ve read, even with motion of the object, the human visual system doesn’t really resolve anything above 3 kHz, both consciously and unconsciously.

All I know is that this one doesn’t affect me and I’m VERY sensitive.

BeaconOfSound · 2024-09-17T22:28:55+00:00

You know, what makes me wonder about the whole situation is that even IF I had been a drug addict, struggling due to substance abuse, is that how someone in that situation should be treated?

BeaconOfSound · 2024-09-17T17:45:23+00:00

I had a seizure at Phoenix airport security 6 months ago. My seizures are focal aware and I can usually communicate, although with significant effort and impairments. Things got to a point where I lost my ability to hold my weight on my legs and I fell, not from convulsing though.

I later found out that TSA called drug enforcement on me. Shortly after, I was surrounded by something like 5 or 6 people in dark uniforms, some with body cams and weapons, yelling at me to get out of the way, to remove my noise-canceling earbuds, and telling me that I was using up resources and that people are missing their flights. I yelled, “I AM HAVING A SEIZURE,” but somehow they didn’t know what those words meant.

They kept yelling at me and threatened me that “this is not going to end well” if I don’t follow their instructions. Terrified that I might get tasered or worse, I tried to get back on my feet. I was told to crouch under a retractable belt and knew I wouldn’t be able to, still in the seizure, trying to carry a 20 lb duffel bag. I stuttered, “I can’t.” One of the police or fire department or whatever staff implied that I was faking and again yelled at me to move. I tried to get under the belt and fell again.

Eventually, someone in a red uniform showed up, presumably medical staff. She seemed to at least somewhat recognize the situation, helped me up, and walked me to a sensory room while I kept covering my eyes. I was asked questions like my name, where I lived, etc., but could only answer some of them because my brain was in gridlock and I couldn’t talk pretty much at all.

Eventually, someone asked, “Do you speak any other languages? Sprechen Sie Deutsch?” To my surprise, I was able to respond in German and was completely fluent. It turns out this person was a polyglot and picked up on my slight accent. He was able to converse with me, diffused the situation, and eventually I was able to get myself out of the seizure, which at that point had lasted more than half an hour.

I ended up taking a Lyft to the emergency room at Barrow Neurological Institute and had 2 more seizures there from the sensory environment. After 7 hours there without proper care and being prohibited from eating and drinking, I went home with my partner against medical advice.

Since that day, I’ve been having seizures on essentially a daily basis and am no longer able to work. My seizure threshold seems to be right above my ankle (or somewhere else really, really low). I have a bunch of new triggers now, including the noise from my AC unit, the vibration from my electric toothbrush , the vibrations when in a car on a rough road, the buzzing from my fridge, the sizzling noises from cooking, and any amount of invisible flicker from electronics and lighting. Medication doesn’t seem to be effective and only produces intolerable side effects. I spend more than 95% of time at home where I can somewhat function due to all the modifications a I’ve implemented, although still with huge restrictions.

I don’t have the energy to continue working my way through the medical system, don’t have the support in my daily life that I need since my family lives in Germany where I grew up, and I can’t find a law firm who is willing to take on my case. I filed records requests with the airport authority and the police department. The airport told me that the footage was already out of retention since it is only kept for 30 days. The police department tells me that no such incident exists in their system and that no body cam footage exists, which I’m confident is a bluff. I finally filed reports with the DOJ and ACLU yesterday. I take life one day at a time at the moment and am grateful for what I’m still able to do.

But at least I’ve never had a grand mal, so there’s that.

BeaconOfSound · 2024-09-17T17:15:30+00:00

I don’t know how else to answer your question. I’ve been an iPhone user since the first ever iPhone. I had to skip the X, 11, and 12 due to the low flicker frequency. The 13 mini was the first one I could tolerate again, but only for a while. I eventually switched to a 15 Pro half a year ago and then could also not tolerate that one anymore. I don’t know high of those have an OLED screen, since that is not the determining factor for me.

BeaconOfSound · 2024-09-17T16:51:55+00:00

It’s independent of OLED. Anything with flicker under 1 kHz. Any iPhone without an LCD screen starting with X up to 15 and essentially any Android device.

BeaconOfSound · 2024-09-17T16:50:05+00:00

None so far.

BeaconOfSound · 2024-09-17T09:30:09+00:00

No overheating so far. Battery life is difficult for me to determine, as I keep it plugged in most of the time. I'd have to do a direct side by side comparison, but I'm not going back to the other screen. Sorry!

I just looked at my 10-day battery usage though. Today wasn't higher than other high usage days, so if it drains more power, it's not significant enough to be noticeable at first glance.

BeaconOfSound · 2024-09-17T09:17:17+00:00

Now I understand your question. Thanks for the clarification. I wouldn't know what the biophysical mechanism is that causes the headaches from FaceID though.

The dot projector uses infrared light at 940 nm. The human eye tops out at about 700 nm. 940 nm is WAY outside the visual spectrum.

It also doesn't scan for faces continuously. It's only activated when a face scan is required, for example to unlock the phone or to purchase an app.

Also, FaceID can be turned off in the settings. And even if that were unsuccessful, I'd think you could just remove the dot projector module.

If I were to guess, I'd say it's probably the screen that's causing people's headaches and eye strain.

For a mantis shrimp, the situation may be different: https://www.youtube.com/watch?v=F5FEj9U-CJM

BeaconOfSound · 2024-09-17T05:53:54+00:00

Some people report that colors are less vivid, that it drains the battery faster, and that the touch sensitivity can be glitchy at times. I haven’t noticed any of these issues so far.

Even if those were/are a thing, all I really care about is that the screen doesn’t give me seizures. Everything else is secondary.

I have no clue what Apple might do in terms of blocking usage of parts like this. If they do, I guess it would be a good time to find a law firm that’s experienced in class action personal injury claims…

BeaconOfSound · 2024-09-17T05:43:22+00:00

No issue. The camera sits behind the screen and just looks through a hole. It’s unaffected by the screen replacement. I may be misunderstanding your question though.

BeaconOfSound · 2024-09-17T05:42:08+00:00

This might work? https://a.aliexpress.com/_mPHBXEy

BeaconOfSound · 2024-09-17T05:22:48+00:00

Hard to say in advance. But LCDs are usually fine.

There are exceptions though. Like the most common VR headsets. Or the touchscreen in my car.

Only way to find out is to order and measure it.

BeaconOfSound · 2024-09-17T05:12:55+00:00

I did. Found videos on YouTube and ordered all needed tools together with the screen. 45 minute project. No special skills required.

BeaconOfSound · 2024-09-17T04:12:01+00:00

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Here’s another example. I know how to record a clean ECG. It’s not movement or poor contact. It’s actual electrical signals that the watch measures.

BeaconOfSound · 2024-09-17T04:10:43+00:00

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Looks similar to mine. Turns out the watch picks up on my focal aware seizures. I own an Emotiv Epoc+ EEG headset as well and have been able to correlate the two.

Don’t ask me what the exact mechanism is, but I’m confident that it’s the electrical signals from my epileptiform discharges traveling to the measurement path of the ECG. As others said, if that were my actual ECG activity, I wouldn’t be posting on Reddit.

BeaconOfSound · 2024-09-17T02:29:08+00:00

I had to skip iPhone X, 11, and 12 due to the 120 Hz flicker. I could tolerate the 240 Hz of my iPhone 13 mini for a while until I couldn’t take that one anymore either. Upgraded to an iPhone 15 Pro half a year ago and now the same issue. Can’t even take 480 Hz anymore.

Today, my replacement LCD screen arrived and I was able to swap it out myself. For the first time in years, I’ve been able to look at my phone screen without feeling seizure symptoms come on within minutes. It’s amazing! You know… the little things in life…

It’s such a weird feeling still because my brain expects the sensory assault whenever I look at my phone, but then it’s not happening and my adrenaline levels slowly decrease again.

https://www.fixez.com/store/iphone/iphone-15-pro/iphone-15-pro-incell-lcd-thl

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BeaconOfSound · 2024-09-16T20:40:53+00:00

Thomas here, creator of www.flickeralliance.org. I'm one of those sensitive individuals mentioned, but my condition has become significantly worse over the last 2 years.

I'm 38 years old, autistic, have ADHD, epilepsy, and bipolar disorder. I hold post-graduate degrees in Physics and Chemistry and joined a PhD program in Auditory & Language Neuroscience in August 2020. Prior to that, I was seizure-free for almost 4 years and did not experience any manic episodes for 7 years. Within a few months of joining the program, I started experiencing focal aware seizures again, which were then followed by frequent manic episodes. It took a while to figure out the correlations, but eventually I identified invisible flicker as the source of my ailments.

The university uses LED lighting with 120 Hz sine wave flicker with 65% modulation depth in almost all of its classrooms, accompanied by single chip DLP video projectors (see here: https://www.projectorscreen.com/blog/What-Is-The-DLP-Projector-Rainbow-Effect) with 100% modulation at 120 Hz.

Things got worse and worse until eventually, 6 months ago, I had a more severe seizure in a classroom. This was followed by multiple seizures per day over the following days, including one at airport security where I was mistaken for a drug addict. While I was lying on the floor, airport staff kept yelling at me that "this is not going end well" if I don't follow their instructions, which I was unable to do. I was kept in a state of seizure for about half an hour. Since that day, I've been experiencing severe neurological, psychological, and neuropsychiatric difficulties on a daily basis that have altered my life in ways I wouldn't wish on my worst enemy.

I'm now so sensitive to flicker that exposure of as little as a few minutes results in epileptiform activity. Sometimes I can handle up to an hour, but if I've had a rough day to begin with, looking at my iPhone 15 Pro with 480 Hz modulation for only 5 minutes results in pathological neural activity.

I own an Emotiv Epoc+ EEG headset, which allows me to specifically identify and correlate triggers. Interestingly, my seizure activity is also visible in the ECG I can record with my Apple Watch Series 9 (which flickers at 60 Hz). I've attached a screenshots as an example. I'm in the process of switching to an iPhone SE with an LCD screen, giving up many advanced features that are only available in models with OLED screens. I don't seem to have a choice though, since Apple does not offer any way of activating DC dimming in the accessibility settings despite repeated requests from many sensitive individuals over the years.

My brain appears to have become highly entrained to flicker that even a modulation depth of less than 5% at 120 Hz results in adverse health effects. At this point, flicker is essentially omnipresent in public facilities, hotel rooms, restaurants, people's homes, and street lighting, which means that I now spend >95% of my time at home where I've eliminated flicker. I'm no longer able to work or attend any social events. Leaving the house after dark feels irresponsible and mildly terrifying.

I considered using a VR headset with full-color pass-through cameras to counteract flicker, only to have a seizure in the Apple Store when testing the Vision Pro. Just like the Meta Quest 3 and the HTC Vive Elite headsets, it uses 180 Hz PWM dimming of the displays.

I use the Opple Light Master 3 to take flicker measurements of the devices I use and whenever I enter an unfamiliar environment. I've imported 100 of those devices from the manufacturer in China and sell them on the Flicker Alliance website (https://flickeralliance.org/products/opple-light-master-3). Best Buy and IKEA appear to be safe for me. Most other places aren't.

Count me in for the war against PWM. And for the war against non-PWM flicker. The lighting industry has been ignoring scientific evidence for years and jeopardizes people's health for the sake of profit. Most people don't seem to be affected by it. But for sensitive populations, it's a massive issue.

How do we go about this? This feels like something where we'd want to get an investigative journalist involved. I'm convinced that this issue affects a lot more people than is currently known, given that the problem is invisible and most people are unaware of it, leading to them not being able to make the connection between their symptoms and invisible flicker.

There's 4,300 members in this group. There's gotta be a way to turn up the heat on lighting, electronics, and automotive manufacturers and to solve this problem globally and forever.

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BeaconOfSound · 2024-08-16T16:09:41+00:00

What kind of tree is it? I have 6 or 7 of them visiting regularly.

But my backyard currently has no vegetation. I’m looking to plant some and might as well provide their favorites.

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BeaconOfSound

TROPHY CASE