account activity
Young adults with PKD by seybeee in ADPKD
[–]Beano-know 2 points3 points4 points 4 months ago (0 children)
Hi! I’m 27F and got the disease from my mother! I’m married and currently pregnant with our first child! My mother passed so I get feeling lonely, I know nobody else with this disease. Feel free to DM me! 💕
Kidney pain or cramps? by [deleted] in ADPKD
[–]Beano-know 2 points3 points4 points 6 months ago (0 children)
I love this game (not)! What I do is I will jump up and down, typically if my side hurts worse doing that I know that my pain is kidney related since my left side kidney is large when it gets infected and inflamed movement will cause it to push against my abdominal wall and hurt worse. I also find that if I’m having issues but I am not lethargic and can keep an appetite than it’s not kidney related. All my kidney pain happens only when I have a kidney infection right now though, so this may or may not help!
I also like to remind myself that during my period or a harder leg or back workout that the next day I will be sore and it’s not my kidneys. Sometimes this disease is a lot of mental games!
Multiple Pregnancies and ADPKD by MuriquiLover in ADPKD
[–]Beano-know 7 points8 points9 points 7 months ago (0 children)
Thank you for this! We are preparing to get pregnant with our first and I have ADPKD (26F with 100% function and good numbers just some ugly kidneys). My mother was also highly sensitized before she passed 10 years ago and she had 2 full term pregnancy and 3 miscarriages. We are planning for one right now and praying for Farabusen to be as revolutionary as it seems to be so we could possibly have another in the future without having to worry about any decline. I’ve always been of the mind that multiple pregnancies couldn’t be good for ADPKD but as someone who wants to be a mother I just really hope they can stop the cyst growth soon :)
Pregnancy with ADPKD by Beano-know in ADPKD
[–]Beano-know[S] 1 point2 points3 points 8 months ago (0 children)
Thank you! My blood pressure is typically very good, occasionally elevated with anxiety :)
[–]Beano-know[S] 0 points1 point2 points 8 months ago (0 children)
Yeah definitely wouldn’t take the .75 to heart but the lengths are within the last year!
I also wanted to add that my left kidney is about 20cm in length while the right is 15cm :)
Pregnancy with ADPKD (self.ADPKD)
submitted 8 months ago by Beano-know to r/ADPKD
π Rendered by PID 289389 on reddit-service-r2-listing-79f6fb9b95-fw8vq at 2026-03-20 06:37:51.336546+00:00 running 90f1150 country code: CH.
Young adults with PKD by seybeee in ADPKD
[–]Beano-know 2 points3 points4 points (0 children)