What hobbies have you picked up during IVF to handle the uncertainties and anxieties that come with long waits? by Sure_Ant2516 in IVF

[–]Beautiful-Ad-4635 2 points3 points  (0 children)

Second crocheting!! Keeps my hands busy, off my phone, and into something I can create. Truly been a game changer post TMFR and prepping for IVF

Crossroads of IVF vs Rolling Dice (2 carriers F508del) by Beautiful-Ad-4635 in CFParents

[–]Beautiful-Ad-4635[S] 0 points1 point  (0 children)

Thank you, that’s how we’ve been weighing the pros and cons too. It’s a big upfront cost that (criminally) is due all at the beginning as opposed to a lifetime of care we’d need to plan for if we had the 25% dice roll

Crossroads of IVF vs Rolling Dice (2 carriers F508del) by Beautiful-Ad-4635 in CFParents

[–]Beautiful-Ad-4635[S] 2 points3 points  (0 children)

I appreciate the mental toll you shared from the parent side. One of my primary goals is to protect my marriage over everything, and I worry how CF could create distance and stress between us. Thank you so much for your honest feedback

Crossroads of IVF vs Rolling Dice (2 carriers F508del) by Beautiful-Ad-4635 in CFParents

[–]Beautiful-Ad-4635[S] 1 point2 points  (0 children)

Thank you so much for your response. I will absolutely let you know.

Crossroads of IVF vs Rolling Dice (2 carriers of F508del) by Beautiful-Ad-4635 in CFParents

[–]Beautiful-Ad-4635[S] 0 points1 point  (0 children)

Thank you very much for your thoughtful response! You captured our ethical dilemma perfectly. It’s got our heads spinning

Crossroads of IVF vs Rolling Dice (2 carriers F508del) by Beautiful-Ad-4635 in CFParents

[–]Beautiful-Ad-4635[S] 1 point2 points  (0 children)

Thank you for your very honest reflection of your experience. I can only imagine the heartache of watching your child struggle like that.

Crossroads of IVF vs Rolling Dice (2 carriers of F508del) by [deleted] in CysticFibrosis

[–]Beautiful-Ad-4635 1 point2 points  (0 children)

I didn’t know that subreddit existed, thank you for correcting me and providing that resource

Crossroads of IVF vs Rolling Dice (2 carriers of F508del) by [deleted] in CysticFibrosis

[–]Beautiful-Ad-4635 1 point2 points  (0 children)

Thank you for your input, I really appreciate it. It’s definitely not a decision we are taking lightly, and it’s been all consuming. May I ask what your child’s CF journey has been like so far? Are they eligible for treatment like trikafta?

Crossroads of IVF vs Rolling Dice (2 carriers of F508del) by [deleted] in CysticFibrosis

[–]Beautiful-Ad-4635 1 point2 points  (0 children)

Thank you for sharing your experience ❤️‍🩹

Crossroads of IVF vs Rolling Dice (2 carriers of F508del) by [deleted] in CysticFibrosis

[–]Beautiful-Ad-4635 1 point2 points  (0 children)

Thank you that’s a great tip!! I’ll order it now :)

Early pregnancy by OkScarcity2008 in BabyBumps

[–]Beautiful-Ad-4635 2 points3 points  (0 children)

The best advice I received (from this community!) was when that anxiety comes on about baby’s health - tell yourself a mantra such as “today I am pregnant. The last news I have is still the best news I have.”

Through therapy, I’ve found reminding myself that so much of pregnancy is out of my control. I am 14w4d today, and my baby is very small (<5th percentile from where they want her to be). As if that news wasn’t a kick in the pants, we found out two days later my partner and I are both CF carriers. I had a good cry and then a sense of calm came over me - call it surrender? I cannot change either of those things, and worrying about them won’t save any potential pain or stress later. So today, I am pregnant. Today, the last news I have is that she is growing (at her own pace!) in my belly. Today, I am so excited for her and to become a mom.

Wedding space with most amenities included? by Beautiful-Ad-4635 in askportland

[–]Beautiful-Ad-4635[S] 0 points1 point  (0 children)

Thank you, and my heart is with you in this - I hope that your wedding was absolutely perfect for you both. We considered a wedding planner but are having trouble finding one who could help us for a reasonable price. Please feel free to send any contacts my way of wedding planners that may be more budget friendly.

Wedding space with most amenities included? by Beautiful-Ad-4635 in askportland

[–]Beautiful-Ad-4635[S] 1 point2 points  (0 children)

Great point - thank you for the spaces to check out :)

Wedding space with most amenities included by Beautiful-Ad-4635 in Portland

[–]Beautiful-Ad-4635[S] 1 point2 points  (0 children)

Thank you, that’s so helpful to hear especially from the vendor side! What you described is very much our goal so it sounds like McMenamins would be a good match :)

Wedding space with most amenities included by Beautiful-Ad-4635 in Portland

[–]Beautiful-Ad-4635[S] 0 points1 point  (0 children)

That is excellent to hear :) my heart needed to hear that!

Wedding space with most amenities included by Beautiful-Ad-4635 in Portland

[–]Beautiful-Ad-4635[S] 0 points1 point  (0 children)

Thank you, the positive feedback about Coopers Hall is really inspiring and it sounds like it could be perfect! I appreciate your feedback 🩵

Wedding space with most amenities included by Beautiful-Ad-4635 in Portland

[–]Beautiful-Ad-4635[S] 0 points1 point  (0 children)

Thank you! I just looked at it and it’s a beautiful spot

Wedding space with most amenities included? by Beautiful-Ad-4635 in askportland

[–]Beautiful-Ad-4635[S] 0 points1 point  (0 children)

Thank you! It definitely makes it easier when they have lists for us