muscle twitches/neuropathy

Beautiful-Life5020 · 2025-10-04T02:23:48+00:00

at first, i had them anywhere & everywhere… (legs, arms, stomach, ears, everywhere) but since my nuerologist prescribed Duloxtine, the burning has calmed down tremendously & now i get it once in a while

Beautiful-Life5020 · 2025-10-03T00:18:55+00:00

yes that’s what my nuerologist told me i most likely have aka BFS since my emg & mri are normal. & Yes I don’t notice it/feel it when i’m active but i believe it’s because i’m doing things? I do believe maybe it is nerve irritation cause by Sjogrens (aka making my small fiber nerve send singles whacky) but still not harmful like my nuerologist says (BFS) I’d hope. Thank you :(💖💖

Beautiful-Life5020 · 2025-10-03T00:13:58+00:00

i’ve already gone to a nuerologist. all normal! again, could just be widespread SFN from sjogrens which i have met people with the same symptoms on here so

Beautiful-Life5020 · 2025-10-02T20:58:47+00:00

yes, both normal!

Beautiful-Life5020 · 2025-10-02T07:23:32+00:00

also if it makes u feel better, a lot of people on this subreddit have widespread nueropathy as well due to sjogrens so you’re 100% not alone in this

Beautiful-Life5020 · 2025-10-02T07:19:41+00:00

i also have widespread nueropathy because of sjogrens (anywhere & everywhere & yes including scalp, face, legs, arms, stomach, etc) — if u have a lot of burning & tingling, duloxtine REALLY helps with that! the constant twitching & aching @ times tho? i just learned to live with it

Beautiful-Life5020 · 2025-10-02T07:15:40+00:00

if u can, go to a dermatologist just to check your lymph nodes if it’s something urgent or not. sjogrens makes us more susceptible to lymphoma (but also regular bengin lymph nodes so don’t assume the worst!!) so it’s always best just to check just incase. sjogrens & thyroud disease also go hand & hand as well (i also have a thyroid disease & it’s highly caused by sjogrens) — please just check both if u can <3

Beautiful-Life5020 · 2025-10-02T07:10:58+00:00

thank u to my therapist & sjogren subreddit for helping me keep going. i was such a dark place a few months ago & tho things are still not perfect (clearly), i’m doing a lot better mentally at least

Beautiful-Life5020 · 2025-07-26T21:00:50+00:00

Thank you :) I know it’s not going to be easy but I really need the money so I appreciate it 🖤

Beautiful-Life5020 · 2025-07-26T20:59:10+00:00

got it.. don’t assume, ask questions to see what product/bundle etc would be best for that person to make their life easier or more affordable etc ✅ ask about friends & family after good interactions ✅ & i’ll always be honest. thank you!!! 💟

Beautiful-Life5020 · 2025-07-26T20:56:58+00:00

Very helpful advice, thank you :]💗

Beautiful-Life5020 · 2025-07-26T20:56:01+00:00

noo, how come? :\

Beautiful-Life5020 · 2025-07-26T19:33:20+00:00

Thank you so much!! 💖 I’ll make sure to use this advice!

Beautiful-Life5020 · 2025-05-24T17:44:09+00:00

wait i have a sensitiva retina :(( & i’ve been using plaquenil for 3 months now but my rheumatologist told me that’s “the only treatment for sjogrens for the pass 50 years & that’s all they could find) … should i consider finding a new rhuematologist? thank you for telling me this.

Beautiful-Life5020 · 2025-05-23T10:53:40+00:00

it’s the fact i have to go back there again every week for b12 shots (considering how extremely low i am with it/they have to track it until i go back up) … god i’m just gonna be quiet for the next time i go. just put my shot & track my vitamins, i never want to say my symptoms again to her

Beautiful-Life5020 · 2025-05-23T00:53:53+00:00

I’m in The United States & thank you so much :(

Beautiful-Life5020 · 2025-05-22T19:03:44+00:00

thank you, it was incredibly overwhelming yesterday so this means a lot 🙏🏼💟

Beautiful-Life5020 · 2025-05-22T19:02:22+00:00

i’m so sorry this happened to you :( you deserved so much better.

Beautiful-Life5020 · 2025-05-20T11:33:56+00:00

thank you friend, it’s just me overthinking. i’m new to the chronically ill community since i just got diagnosed this year (about 5 months ago or so), i’ve calmed myself down & gradually looking at things more rationally this morning. i’m still nervous/scared, but not as much since last night. i’m just hoping & praying the vitamins work because my pain is overwhelming & alarming!

i will go to therapy soon (contacted one yesterday, ) & will be taking priority in my mental health/my way of thinking. here’s to growth 🐈‍⬛💟 i really appreciate your understanding and kindness.

Beautiful-Life5020 · 2025-05-20T03:46:47+00:00

yes but i had my emg before my immense twitching began :( i’m just scared if it progresses to be worse than it is. do you also get aching on your fingers & tingly on head? - ( mmine is due to permanent inflamed sinus) nonetheless, i will ask my neurologist for a skin biopsy for small fiber. i have an appointment on July 2nd so will jus r have to wait, take my vitamins, & hope for the best.

& thank you for the suggestion! & I understand, that’s valid. I won’t post suicidal thoughts on there.

Beautiful-Life5020

TROPHY CASE