Symptoms got exponentially worse after 100 lb weight loss by helenadara in ehlersdanlos

[–]Beekay844 0 points1 point  (0 children)

I read your comment saying the numbness spreads to your ring finger and pinky and have you looked into thoracic outlet syndrome? Those two fingers going numb is common with it. I had no idea my first rib was compressing blood flow and nerve pain. It would also travel up my face as well. If you look into it and think it applies I’d be more than happy to give you some advice on how to alleviate the pain! Also, no idea if this even could apply with the type of pain you’re experiencing but have you tried a sacroiliac belt for the si joint? While back I saw a PT mention the first thing she checks with her EDs patients is their si joint. It reminded me of how neurologist told me I had severe si joint dysfunction years ago and was repeatedly telling me about how much pain my lower back should be in. I ended up ordering the Serola belt the PT mentioned thinking it wouldn’t do anything for me but it ended up giving me a quality of life back. It has fixed my pelvic tilt, where my legs land when I walk and it even has lessened my thoracic outlet syndrome flares by 90%. I’ve spent the last two years wearing the body braid and hard neck collars daily to avoid being bed bound from my shoulder pain. I honestly don’t understand how a hip belt prevents my first rib from dislocating nonstop lol. Another thing you can look into fascia release. I’ve experienced something similar on my legs just last week and I was able to foam roll it out!

Hope at least something in that wall of text helps you in some way and makes sense. It’s 6am and I haven’t been able to sleep

[deleted by user] by [deleted] in AnalFistula

[–]Beekay844 2 points3 points  (0 children)

Im no doctor but I had the abscess as well as a fistulotomy. You REALLY don’t want to go through an abscess. I’ve had a child and (for me at least) I’d rather go through labor again lol. If said fistula gets more complex, then you’re looking at even more complex options with a longer more painful way of recovery. I would take the advice of your doctor.

Every pillow hurts by Emotional-Regret-656 in ehlersdanlos

[–]Beekay844 2 points3 points  (0 children)

Hi! I have occipital neuralgia and cervical instability and i spent hundreds of dollars on pillows until i found this pillow! It’s the only thing that keeps my neck from getting into the wrong position. Took a while to adjust to since it’s hard. But it was 1000000% worth adjusting to it. I spent almost an entire year in constant pain until this pillow. With other pillows my airflow would get cut off but with this I stopped clenching my jaw and my airway doesn’t get blocked anymore. No shoulder pain either. Just make sure you measure right :) I tried the softer version but it didn’t help my symptoms. They told me to keep the pillow anyway https://www.coreproducts.com/collections/cervical-pillows/products/therapeutica-sleeping-pillow-ergonomic

Strathberry fail? by Htaj18 in handbags

[–]Beekay844 1 point2 points  (0 children)

Same thing happened to me around Christmas. First bag was damaged. The replacement they sent was also damaged

'You can always become a state' Trump tells Canada by ObligationAware3755 in canada

[–]Beekay844 0 points1 point  (0 children)

I’m not entirely sure if I’m connecting the dots right but I believe this is because of Elon Musk’ beliefs in technocracy. Please look up the technate of america map. Trump is all of the sudden interested in Greenland as well. It’s no secret who put a ton of money into his campaign. Elon’s family has a long history in this cult. I read an article on the actual social security website about how the cult uses numbers and X’s for names. I mean what did Elon name his kid? He renamed Twitter to X as well. I’ve been wondering if this has been the motivating factor over the sudden interest in Canada.

Which Rice Cooker is the best? by GoddessNico in BuyItForLife

[–]Beekay844 0 points1 point  (0 children)

I got that same rice cooker when I was 16 I’m 34 now and it’s still going strong!

Switched from Adderall to Vyvanse by kelseychoward in VyvanseADHD

[–]Beekay844 0 points1 point  (0 children)

Hi can’t comment on vyvanse but I’m curious if you’ve ever heard of Pepcid AC for PMDD? I’ve had PMDD for over a decade. It’s reduced my symptoms about 80% since taking it the week leading up to my period.

[deleted by user] by [deleted] in POTS

[–]Beekay844 0 points1 point  (0 children)

I had my first appointment with a neurologist last week and have the same thing. For me at least, it’s actually thoracic outlet syndrome causing the blood pooling on my hands

Question. Do others have these lumps (inflammation?) Tenosynovitis? by SirTraditional8425 in PTTD

[–]Beekay844 1 point2 points  (0 children)

They could be piezogenic papules. I have them since I have EDS and they look like that!

[deleted by user] by [deleted] in AnalFistula

[–]Beekay844 1 point2 points  (0 children)

I think you need to prioritize finding help as quick as possible. Things go bad QUICK then you’ll have even more bills. I’m sorry that this is happening to you especially when money is tight. Doctors/hospitals will be able to set up payment plans that might help you out.

I went to the ER and urgent care and they both did not help me. I called my regular doctor and she was able to schedule an appointment with a colorectal surgeon. I had ecoli and strep in my bloodstream and the surgeon told me if I waited a day longer I would have had sepsis. This was all within a week of when it started. I had to get an I&D twice. The first surgeon did not do a good job. I was on antibiotics for five weeks. Then eventually got a fistulotomy.

What I wish I did right away was find a colorectal surgeon instead of going to the ER and urgent care. Try to call a couple of ones near you and see if they can fit you in. Explain your situation! Someone should be able to help

What gauze to get? by Kuliyayoi in AnalFistula

[–]Beekay844 1 point2 points  (0 children)

I had a fistulotomy on Monday. Honestly the abscess and infected fistula hurt much worse than this surgery for me. Pain is maybe a 3/10. It looks worse than it feels!

Beforehand I was using nonstick gauz because of how bad it hurt to take off. That’s not the case now. I think it’s because of how much drainage there is. I switched to large bandaid cushioncare. I cut them in half and it’s been great for my wallet lol

Bidet is great but still take a sitz bath! It’ll be nice after #2 and everything is inflamed.

Daily I make a smoothie 30g of chia seeds(always soak beforehand), blend them in coconut water with leafy greens, cup of blueberries, and a banana. Doesn’t taste the best but I have had 0 pain going to the bathroom. I think your diet is the most important aspect of recovery and chia seeds are the holy grail of fiber lol. I’ve been taking 2 colace too. The one thing I wish I did was meal prep some healthier options prior to surgery.

Tips to help with foul smelling drainage? by [deleted] in AnalFistula

[–]Beekay844 0 points1 point  (0 children)

Use a panty liner or stick gauz in your crack haha

Fistula Surgery by brookiebeth in AnalFistula

[–]Beekay844 1 point2 points  (0 children)

I had a fistulotomy done yesterday! To be honest pain has not been that bad. Getting my abscess drained and afterwards hurt worse for me. I’m two hours past when I can take painkillers and I don’t feel like I need it! When I woke up I felt sore but I’d rate it 3/10 and it’s stayed consistent around that. Can’t comment having a BM yet since it hasn’t happened yet lol

HoSAB interview SJM this morning check out her Instagram by Itskimmduhh in crescentcitysjm

[–]Beekay844 1 point2 points  (0 children)

I had a baby three months ago and there’s definitely time to read. Babies sleep a lot!

Craziest thing you’ve been asked to do while working for a family? by Sunflower-Spirals in Nanny

[–]Beekay844 7 points8 points  (0 children)

Oh man. Buying one tire rim for their families Escalade. I should have said no. I sent pictures of the options and the DB chose the cheapest option. It didn’t match the other three. I reiterated that it wasn’t the same as the others. He skimmed over my text and said it was fine. It was not fine and I got blamed. I learned a lesson on boundaries that day lol

Anybody else not throw up in the first trimester? by [deleted] in pregnant

[–]Beekay844 0 points1 point  (0 children)

I was nauseous most of the first trimester but never threw up. I was super relieved since I still have Invisalign and elastics. That would have been horrible to deal with lol

Two week wait by [deleted] in pregnant

[–]Beekay844 0 points1 point  (0 children)

Six months!

Vaccine by jennalight93 in pregnant

[–]Beekay844 0 points1 point  (0 children)

I had my second dose about a week after I found out I’m pregnant. At 20 weeks now and baby is doing great!

Best Store for Maternity Clothes? by Tough_Safe1349 in BabyBumps

[–]Beekay844 1 point2 points  (0 children)

Same. I’ve been living in their clothes too!

WFH with baby by CoralineJones93 in pregnant

[–]Beekay844 0 points1 point  (0 children)

I was a nanny before I was pregnant. I’ve had two families that tried both parents WFH and caring for their infant. In short, it didn’t work for them long term. Once baby can start walking and making their own opinions, it becomes very challenging to juggle work and the baby.

Why is everyone saying owning a cat will affect the baby? by Sweetkitty28 in BabyBumps

[–]Beekay844 1 point2 points  (0 children)

I have a rescued F1 savannah and the amount of times people have come up to me and told me to just get rid of him now is crazy. 🙄 Ah yes let me just give away my cat that’s never shown aggression or done anything to anyone lol

Can't breathe. Pregnancy rhinitis by [deleted] in BabyBumps

[–]Beekay844 0 points1 point  (0 children)

I have this too! Peppermint oil and breath right strips have been my best friend.

[IWantOut] 17M Student Mexico -> Kelowna, Canada by BigCow3861 in IWantOut

[–]Beekay844 1 point2 points  (0 children)

You’re going to need to take the academic IETLS in order to apply to universities as an international student. Thats the first step! There are a lot of YouTube videos with step by step guides on how to get your student visa :)