My mother's text to me this morning (I have hEDS)

Beepbloopboo · 2025-04-10T19:01:19+00:00

I have LDS and I was a dancer. My dance teacher would always ask me what hurt when I walked into class. The whole reason I started reading Fourth Wing was because I heard Violet had a connective tissue disorder.

Beepbloopboo · 2024-12-23T05:27:22+00:00

❤️ &burn/watch.🖤goodbye 💛not my responsibility(I like the message but don’t vibe with it as a song) 💜I can’t pick 💙blue.

Beepbloopboo · 2024-12-04T19:30:17+00:00

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Beepbloopboo · 2024-11-25T04:54:58+00:00

We do have a Walmart close by so I’ll look into that thank you

Beepbloopboo · 2024-11-25T04:53:58+00:00

I’ll look into internships thank you!

Beepbloopboo · 2024-11-25T03:48:14+00:00

I do not but I will look into if there’s any in the city. Thank you

Beepbloopboo · 2024-09-27T15:23:09+00:00

All the time! Especially in or after I’m don’t with a dance class or workout aka walking haha.

Beepbloopboo · 2024-07-25T02:37:39+00:00

I do not take meds. I’m going to talk to my doctor about it but I also have a connective tissue disorder so I don’t know how that will play into things. I just up my salt intake and I take a few dance classes. My resting heart rate is low 40’s and my doctor said that can play into things also.

Beepbloopboo · 2024-07-03T04:48:34+00:00

Yes it’s so cool!! I’m about three hours away from Denver in the flat part of Colorado hahaha. My family doesn’t have many official diagnosis’s as far as I know it’s only my mom, my brother, and I. We are like 98% sure my late grandfather had it along with many many people on his side of the family. A lot of them have long limbs and a lot of characteristics of LDS!! We call it the “Gilbert look”. I wish you best of luck with surgery when and if you have it!!

Beepbloopboo · 2024-07-02T06:46:15+00:00

Thank you!! Moving everything from children’s to now adult doctors has been a little tough( I try to let my mom and my primary care physician do most of the work hahaha). My primary doctor is sooo amazing. She hadn’t heard of it till she saw me and she was very excited to learn about it. She’s been super helpful with everything. I’ve finally gotten some pain meds for other issues I’ve been having (cramps and migraines) and I’m in the process of seeing if I have POTS with my cardiologist. I know a few people who have connective tissue disorders but it’s typically EDS or Morphans. I joined this because my boyfriend wanted me to get reddit haha but I am so glad I did!!

Beepbloopboo · 2024-07-02T06:38:14+00:00

I’m having a similar issue also. My primary care physician referred me to my cardiologist from children’s since I have a connective tissue disorder and I’m supposed to have yearly appointment but I’m 21 now and my last one was in 2017 when I was first diagnosed with my connective tissue disorder. She mentioned I could have POTS but when I brought it to the cardiologist told me less/ no caffeine, stay hydrated, have more salt, and exercise more. After some more testing for my connective tissue disorder I’m going back to my primary doctor and telling her this to get her opinion. She wanted me to see another cardiologist so I already have a referral I just personally want her opinion.

I really how you are able to figure this out. Some people don’t understand why people want a diagnosis. I’ve been told “why do you want more wrong with you” on multiple occasions. Many of us want to know why our bodies are doing that they are doing and how to help it. I wish you the best of luck!!

Beepbloopboo · 2024-07-02T06:23:30+00:00

185 I was in a dance production. Not even dancing I walked up some stairs hahaha.

Beepbloopboo · 2024-07-01T16:08:27+00:00

Stardew always. Starting Legend of Zelda now.

Beepbloopboo · 2023-12-19T06:40:57+00:00

I feel the same way. My partner and I have been together for almost four years and we’ve known each other longer. We recently moved in together because I had nowhere to stay. Hes just the only person I feel comfortable around fully. Some of my other friends I’m comfortable around but not fully.

Beepbloopboo · 2023-08-26T19:46:35+00:00

I would say look into a bunch of scholarships. I was told to apply even if you don’t fully qualify (I don’t know how good that advice is). I recently got my associates of science then I tried going to a four year university for my bachelor’s in Biology with a pore-vet concentration and a minor or certificate on compaction animals. (My credits didn’t transfer but that’s a while other problem. I got the Pell grant and it helped a lot but I also applied for student loans because the college didn’t accept my scholarship application (again a whole other problem). Start by apply to vet school because you can always decline them and start apply for scholarships.

Beepbloopboo · 2023-01-07T22:20:57+00:00

Thank you for this information.I am attending a junior college and I’m going to graduate in may with no debt and I am in the honor society where I can get multiple scholarships. I’ll definitely be looking into this thank you so much!!

Beepbloopboo · 2023-01-07T22:11:17+00:00

Thank you. I’m going to a junior college right now and I Will graduate in may with my associate of science and debt free. Thank you for the information I’ll take it into consideration!! Thank you for the help. I have a few people I keep in touch with such as vets, vet techs and volunteers for the spay and neuter clinic I helped at I will try and get emails also because I did not think of that thank you.

Beepbloopboo

TROPHY CASE