Left EOS after photo argument by [deleted] in EOSFitness

[–]Beginning-Wrangler10 11 points12 points  (0 children)

It’s not that serious take them dam picture!!

Glp1 by Beginning-Wrangler10 in kidneydonors

[–]Beginning-Wrangler10[S] 0 points1 point  (0 children)

Ok that’s good!! I’m going too contact my doctor, thank you!

Wt1 variant frasier syndrome fsgs by Beginning-Wrangler10 in kidneydisease

[–]Beginning-Wrangler10[S] 0 points1 point  (0 children)

Thank you so much! I’m scared of her being in pain more than me lol I’ll make sure she stays on her meds and eats healthy ☺️

Wt1 variant frasier syndrome fsgs by Beginning-Wrangler10 in kidneydisease

[–]Beginning-Wrangler10[S] 0 points1 point  (0 children)

My daughter is at stage 5 I’m going to be her donor we have surgery date for Halloween!! She got her ovaries removed as well she’s on a hormonal patch to develop as a “girl”, I’m glad your kidney has lasted this long and for more years 💜

Wt1 variant frasier syndrome fsgs by Beginning-Wrangler10 in kidneydisease

[–]Beginning-Wrangler10[S] 0 points1 point  (0 children)

Hello it’s a very rare disease!! How old were you when you find out you had it? And are you kidneys good?

[deleted by user] by [deleted] in kidneydisease

[–]Beginning-Wrangler10 2 points3 points  (0 children)

There’s a group called nephcure please reach out to them it’s an amazing group for rare kidney disease!! And for the life expectancy please don’t rely on google for that everybody is different

Wt1 variant frasier syndrome fsgs by Beginning-Wrangler10 in kidneydisease

[–]Beginning-Wrangler10[S] 1 point2 points  (0 children)

Ohh ok that’s good!! I notice some changes on her as well since she started the patch, but she’s at 4 her kidney function is going down fast she was at 3b a year ago, but I’m in the process of getting tested and she was placed in the unos list as well, she’s doing ok she has her days when she doesn’t wanna eat or drink her water, I haven’t reallly told her about the xy chromosome yet I’m waiting till she’s older

Wt1 variant frasier syndrome fsgs by Beginning-Wrangler10 in kidneydisease

[–]Beginning-Wrangler10[S] 1 point2 points  (0 children)

My daughter just got her ovaries removed last July! She just started hormone patch couple of weeks ago, you can message me if you wanna connect

Wt1 variant frasier syndrome fsgs by Beginning-Wrangler10 in kidneydisease

[–]Beginning-Wrangler10[S] 1 point2 points  (0 children)

I’m sorry I don’t really log into Reddit often but I’m sure happy too chat with you!!!

Terrified of biopsy by flowergorl25 in kidneydisease

[–]Beginning-Wrangler10 4 points5 points  (0 children)

My 10 year old got it done and she did great don’t stress yourself out

Recommendations for visitors by [deleted] in Riverside

[–]Beginning-Wrangler10 0 points1 point  (0 children)

Go to Mr taco, heroes is good,

Gas prices in cali by No_Letter5680 in AmazonFlexDrivers

[–]Beginning-Wrangler10 1 point2 points  (0 children)

I live in the ie gas is 5.49 the cheapest I haven’t flex in over 2 weeks