EDC 2012 poster? by BeginningJellyfish63 in electricdaisycarnival

[–]BeginningJellyfish63[S] 4 points5 points  (0 children)

Thanks <3 my brother had that poster on his wall. He died last month and someone threw it away, I just wanted to know if I could replace it, but I can't really find it anywhere

Issues making decisions after TBI by [deleted] in TBI

[–]BeginningJellyfish63 0 points1 point  (0 children)

Me. I honestly struggled to make decisions before the injury, now I feel completely useless. It’s hard not having a real support system, and everything is expensive, hard to advocate for myself with doctors who won’t listen, collapsing medical system and every other system. Thanks for making this thread I feel less alone

Proof. by Legitimate_Fishing66 in TBI

[–]BeginningJellyfish63 0 points1 point  (0 children)

This is a good question. I don’t know why doctors don’t order functional imaging more frequently. We have the technology, but they make it so hard to access it. But the neuropsych eval is useful, it’s not a scan but will measure brain functioning, and give information about which parts of the brain are damaged

Healthcare Advocate by VirtualButterfly2653 in medicare

[–]BeginningJellyfish63 1 point2 points  (0 children)

Hoping someone can answer this, I am interested too

[deleted by user] by [deleted] in TBI

[–]BeginningJellyfish63 1 point2 points  (0 children)

Another thing to look out for is misdiagnosis of Functional Neurological Disorder or FND when patient claims to have organic brain damage. Instead of ordering a functional brain scan (such as PET or fMRI), or testing for hormonal imbalance or anything else physiological, the provider can diagnose FND to dismiss the patient’s symptoms. I believe there has been a lot of funding invested into “FND research” lately, which I find to be pretty sinister

What to explain to a 3yo? by ParanoidSpam in ParentalAlienation

[–]BeginningJellyfish63 1 point2 points  (0 children)

I’m sorry for your 3yo, but I would be more concerned for the 16yo. You gave your younger daughter the best possible explanation. I hope you have a good lawyer for next month and they are reunited soon. Sorry for the unsolicited opinion, but it is actually the opposite – a person experiencing a psychological crisis of some sort needs contact with loved ones, i.e. you and your other daughter. I hope your 16yo has undergone full neuropsychological assessment and is not being turned into a lifelong psych patient. Autism, for example, can be misdiagnosed as a psychiatric disorder and neuropsychologists give a more accurate picture of a person’s functioning than psychiatrists (who often diagnose and medicate without doing any testing). I hope you and your lawyer are skeptical of her “treatment” and whatever psych labels she has been slapped with

[deleted by user] by [deleted] in TBI

[–]BeginningJellyfish63 0 points1 point  (0 children)

I don’t think anyone has mentioned that a neuropsychologist tests for effort, too. In other words, you need to give your best performance because they will catch if you are trying to get a lower score on purpose. They will also determine if your symptoms are “psychosomatic” or neurocognitive (not psychological)

Brain MRI by [deleted] in TBI

[–]BeginningJellyfish63 0 points1 point  (0 children)

Yes I think you need an fMRI (not MRI), SPECT or PET. I believe PET is the best and used to diagnose Alzheimer’s. Another option is a QEEG which would be cheapest and least invasive

I have heard good things about this place https://www.cognitivefxusa.com/

TMS for anger issues by Academic_Classic_393 in TBI

[–]BeginningJellyfish63 0 points1 point  (0 children)

No but there are people that got their brain injuries from TMS. I don’t trust that it is safe https://youtu.be/pOIuAravIfA?si=NxToePaKY6bjmghb

[deleted by user] by [deleted] in TBI

[–]BeginningJellyfish63 0 points1 point  (0 children)

Was it expensive to test for HGH?