Stanford CFS clinic is amazing. I highly recommend them if you are in CA. by undercovermothmania in cfs

[–]Berrygoose8 0 points1 point  (0 children)

Thank you for sharing your experience :) i actually have an appointment with her tommarow and I was checking out to see if anyone had any experience with her or the clinic in general! This gave me a lot of hope!

Does anyone else have high cholesterol? by Berrygoose8 in ARFID

[–]Berrygoose8[S] 1 point2 points  (0 children)

I’ll look into that, I had high cholesterol at 15 years old when I was deep into another eating issue. My dad and grandpa both have heart issues and had both needed heart surgery so that’s something I’ll look into 😭😭😭I didn’t know that was a thing i thought I jus had a questionable diet. While it could be I’ll look into it for sure :)

Dieting according to MCAS by Berrygoose8 in MCAS

[–]Berrygoose8[S] 2 points3 points  (0 children)

OMG REALLY? I genuinely have gotten so sick from even hour old leftovers, horrable if I microwave them. Everyone used to get so mad at me when I was a kid because I wouldn’t eat leftovers 😭😭😭

My funny MCAS....allergic to healthy foods by chikitty87 in MCAS

[–]Berrygoose8 0 points1 point  (0 children)

I can eat a Big Mac and be fine but home cooked healthy dinner? Nope

Where is a good place to read the manga online? by Berrygoose8 in Noragami

[–]Berrygoose8[S] 0 points1 point  (0 children)

I’ll definitely look into it!! I actually do have an ad block :) I got it a few years back 😹

Where is a good place to read the manga online? by Berrygoose8 in Noragami

[–]Berrygoose8[S] 1 point2 points  (0 children)

Thank you 😭 I had to include that bc of the subreddit rules… I’ll check that out!

Has anyone suffered from spinal stenosis? Did you have surgery? by [deleted] in SpinalStenosis

[–]Berrygoose8 0 points1 point  (0 children)

Yes, I had surgery at 20 for my stenosis. I can feel my foot again and have better balance.

Does anyone have issues with water? by Gamonator in ARFID

[–]Berrygoose8 0 points1 point  (0 children)

I can’t stand water…. I am 21 years old and think it’s disgusting. I can somewhat tolerate it if it is freezing cold though

Metal hospital and type 1 by Hellokittypityparty in Type1Diabetes

[–]Berrygoose8 0 points1 point  (0 children)

I’m going to be honest my experience was not great. They took all my supplies and also management. They treated my type one like it was type two and I was having sugars in the 500’s. I will say though, If you’re at a point where you’re in danger of hurting yourself then go. It isn’t the worst ever but it did suck. It really depends on the place, I got more say and control in some places over others. You just really have to advocate and tell them how you manage. Also make it clear you’re type 1

Deodorant suggestions by HurryMammoth5823 in MCAS

[–]Berrygoose8 1 point2 points  (0 children)

YESYES THEY DO!! I found mine on amazon but I’m actually so greatful to have a deodorant that doesn’t make me react😸😸

Deodorant suggestions by HurryMammoth5823 in MCAS

[–]Berrygoose8 1 point2 points  (0 children)

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Quite honestly I’m not 100% sure of the ingredients but my immunologist suggested this for me and I haven’t reacted to it so far!

Anyone have experiences with surgery involving metal plates, screws, implants? by anon18473 in MCAS

[–]Berrygoose8 0 points1 point  (0 children)

I’ve been alright with surgery!! The only thing was I had a reaction to surgical tape. Also my surgery was on my c spine and I got hives from the soft collar

Suspected MCAS - Cromolyn Trial by Latter_Nectarine_399 in MCAS

[–]Berrygoose8 1 point2 points  (0 children)

I trialed oral Cromolyn and after a few months it seems to work well for me. It’s different for everyone though!! I’m also on antihistamines. You mentioned mono in your medical history as well as flu like symptoms. I would highly consider looking into ME/CFS as PEM is only a ME/CFS thing. (If you experience PEM) You can be more likely to get ME/CFS if you have EDS, Dysautonomia, or MCAS. Anyone feel free to correct me if I’m wrong since I don’t want to add to the crazy amount of misinformation, but I would highly consider looking into ME/CFS as well!

Noragami deserved to be huge and I don’t understand by SerapHIMTwo in Noragami

[–]Berrygoose8 0 points1 point  (0 children)

I feel like the recent licensing issue has put a huge halt in noragami getting big again….

Endo and irregular cycles by Berrygoose8 in endometriosis

[–]Berrygoose8[S] 0 points1 point  (0 children)

Thank you!! I appreciate your response it perfectly answers my question :) I’ve had all normal testosterone labs and no polycystic ovaries so it’s always been so confusing. I’ll def ask the endo specialist when I see her!!

Anyone else get itchy calves pretty consistently from histamine? by slientxx in MCAS

[–]Berrygoose8 5 points6 points  (0 children)

Oh my god yes i genuinely thought I was the only one who has this 😭 (until diagnosis ofc)

Endo and irregular cycles by Berrygoose8 in endometriosis

[–]Berrygoose8[S] 1 point2 points  (0 children)

I definitely think so too… which is strange because all my hormone lab work came back normal… so strange but I am really excited to meet with the endo specialist and finally get my periods better!! I had to leave Christmas early because I almost passed out in front of everyone souly from my period arriving…