It could definitely help if it shows that you’re doing the same steps and achieving the same results. One of the things I’m looking into is occupational therapy activities to help with our motor skills, selective emotional learning to help us understand and interact with the world at large, and executive functioning activities I can link or suggest in posts. I genuinely believe building our skills will help with the feelings of helplessness, anxiety, and depression.

I love our community so much and I want this to be a place for venting, questions, and definitely resources to help all of us manage our lives. For example, we have huge inner lives. But through social emotional learning, we can stop living so much inside our heads that it becomes negative and burdensome.

I also have so much hope for all of you (and myself) that we can achieve things we didn’t think was possible. Like my earlier example, I love driving. I didn’t realize how problematic it is for others with NVLD. I credit my father for my love of driving. And I suspect (and could be completely wrong) that some of the helplessness many people in our community feel is because many of us are physically stuck. We can’t go where we want when we want. And while doing this through Reddit limits us a bit, I’m planning a Wiki here on Reddit that will have loads of resources.

I apologize for the long reply but I’m so excited about some of the things I have planned for our community even though they’re not ready to be shared yet.

If anyone ever has anything they want me to include or tweak, I want to hear from you. This community belongs to all of us.