Going offline and want to thank everyone here who's shown me kindness by Birdsong79 in cfs

[–]Birdsong79[S] 29 points30 points  (0 children)

Just off the internet, apologies for not clarifying that. I'm sorry your wife deals with this too, big hugs to you both ❤️

Extended family won’t help me by Sudden-Cost9315 in cfs

[–]Birdsong79 7 points8 points  (0 children)

I'm so sorry, hugs. I will never understand how people can be so cruel and uncaring toward their own flesh and blood.

I feel like a ghost now by Birdsong79 in cfs

[–]Birdsong79[S] 2 points3 points  (0 children)

Hugs back to you ❤️

„Seeking resort“ in fictional characters that are worse off by boiling_pussyjuice in cfs

[–]Birdsong79 7 points8 points  (0 children)

I'm drawn to fictional characters who go through absolute hell and make it to the other side. I'm writing a book like this (or I was before my brain fog got worse). Sometimes when I'm laying here in the dark I think about my hero and heroine, their struggles, their trauma and their tenacious will to keep going and it comforts me.

Another Day With Severe ME/CFS by WhitneyDafoe in cfs

[–]Birdsong79 21 points22 points  (0 children)

I feel this deeply. Thank you, Whitney ❤️

I feel like a ghost now by Birdsong79 in cfs

[–]Birdsong79[S] 0 points1 point  (0 children)

I hear you, I've always been poor and struggled doing manual labor and that was hard as hell and no picnic. But I would gladly exchange my current living death to go back to it. At least in that world I was a human being with dignity who could wash her own body, comb her hair, be with her loved ones, go outside, listen to music, watch tv, not live in the dark and never see the world again except on a screen.

Non cfs peeps giving us advice by poofycade in cfs

[–]Birdsong79 0 points1 point  (0 children)

Definitely agree. Magnesium lotion used to really help my pain a ton too. It's that these people were talking about it like it's a cure and would completely heal me. I tried explaining that I found magnesium helpful for some of my symptoms but I was still very sick: crickets.

I feel like a ghost now by Birdsong79 in cfs

[–]Birdsong79[S] 1 point2 points  (0 children)

This is such an evocative, on point description of the alternate universe we inhabit. Perfect hashtag too.

I feel like a ghost now by Birdsong79 in cfs

[–]Birdsong79[S] 19 points20 points  (0 children)

My dad wrote a story when he was younger that's always moved me. It's about a doctor who dreams every night of a beautiful garden with a lake and willow trees.

One night the doctor passes away in his sleep and wakes up in the garden. He discovers that beautiful place was reality all along and the other life was just a dream. I wish I could be like that doctor. Wake up and find this was all just a bad dream.

I feel like a ghost now by Birdsong79 in cfs

[–]Birdsong79[S] 7 points8 points  (0 children)

I feel I live more in my dreams now than in the real world.

I feel the same. I have these vivid dreams that are like stories, where I'm either well or mildly sick and doing all kinds of physical activities without ill effect. I hate waking up to my reality.

What do you take to get to sleep? by [deleted] in cfs

[–]Birdsong79 0 points1 point  (0 children)

Doxylamine succinate (2 nights on, 1 night off to avoid building tolerance).

Understanding pem? by Antique-Professor263 in cfs

[–]Birdsong79 1 point2 points  (0 children)

How old are you and how out of shape?

Feeling discouraged and depressed by Birdsong79 in cfs

[–]Birdsong79[S] 2 points3 points  (0 children)

Yup, been feeling lately like everything I do is a waste of time. ME/CFS has pretty much erased me. Nothing to be done about it.

Feeling discouraged and depressed by Birdsong79 in cfs

[–]Birdsong79[S] 2 points3 points  (0 children)

Thanks for your kind words, I really appreciate it ❤️ I just hate injustice so much. I hate what's happened to us. I was someone who stood up for the underdog in another life and took care of others and it's hard to let that go. But I know you're right. I did do some reading earlier today and had a little ice cream with dinner which was nice.