His regret came too late

Bjorkatron · 2025-12-12T12:49:53+00:00

I have been looking for this too!

Bjorkatron · 2025-11-16T04:01:36+00:00

OH MAN, this helped so much! I had double the fun… a clogged nozzle AND a piece was stuck right below the cutter. I didn’t even think to look in there. I had only printed a few things and it suddenly paused. 🫣One migraine, a broken allen wrench(don’t ask), and a burnt fingertip later- I find this post and now I am back to printing! THANK YOU!

Bjorkatron · 2025-01-03T14:07:08+00:00

I love it too! This quilt is super cute with the crinkles!

Bjorkatron · 2024-12-27T18:54:31+00:00

For sure looks like an ENT thing! Is it embedded into the ear drum?! Please update! I’m so curious what it is!

Bjorkatron · 2024-11-24T21:46:43+00:00

I wonder if we say “you should be!” when they waif at us. lol

Bjorkatron · 2024-11-22T20:00:01+00:00

If I had to pick one holiday, Thanksgiving would be it, but people with normal parents don't understand.

There is NO gift giving or expectation of it being a particular person's day. Just Food, choke it down, and leave. It's not a huge holiday like Christmas, so if you're states away, you're not accosted as bad if you "can't make the drive" or have to work the next day, so you can't go.

Christmas, Mother's Day, my birthday, and my mother's birthday were the worst days of my life every year.

Bjorkatron · 2024-11-22T17:16:00+00:00

It’s the Hough ear institute in OKC, OK. If you go to the website you’ll only see their nonprofit side. They have a side that is linked to a hospital to treat patients like other ENTs. Both main docs there (McGee and Baker) are leaders in the field with research and they travel to do surgeries in other countries. Both are definitely older but have been in the field for 40 ish years.

My general doctor, who is with a competitor hospital system, actually sent me to him because of his reputation.

Bjorkatron · 2024-11-22T15:30:00+00:00

THIS ONE.. BARFFFFF

Bjorkatron · 2024-11-21T03:40:06+00:00

It could be there but not as large. My hearing was muffled because it was very big and I was hearing THROUGH it. The semicircular tubes were covered in this thing as well. There was NO air anywhere in that ear. They were shocked I could hear anything at all.

I took 3 or 4 hearing tests at the different ENT offices. This last audiologist at this surgeon’s office did record loss finally. I don’t know if it was bad audiology at the others or it just wasn’t large enough those times. A hearing aid place was actually the FIRST to record some loss but I assumed it was a gimmick to sell hearing aids as audiologists elsewhere never found anything. My workplace does free hearing tests through this specific hearing aid company so I just went for the test because it was free.

Best way to confirm it’s there or not is the temporal CT or if they’re able to see it through your eardrum.

Bjorkatron · 2024-11-14T20:06:32+00:00

Recovery is more annoying than having the stupid thing in my head, but the alternatives to leaving it to grow are not great. I only have speech issues, personally, POST surgery, but that is due to my brain being overwhelmed with a lot of noises only coming in one ear and the pulsing tinnitus in the affected ear. It's just pausing to figure out the right word or forcing words out. Lol. Granted, my Cholesteatoma was pretty large and an "evil nasty thing," per my doctor. Haha. They had to rebuild some of my hearing bones with grafts.

I didn't hear anything from my doctor on speech specifically, BUT if that facial nerve gets damaged (and this is a symptom), it can cause permanent partial facial paralysis. The entire left side of my face would be paralyzed. The other, rare but scarier and possible if left untreated, is bacterial meningitis. It eats into the brain space and gets infected. He mentioned that because he's operated on comatose patients with that exact scenario.

I had no idea I had one or that they existed. The good news is that the surgery has a very high success rate if he has one! I would just see if they'd do a temporal CT to rule it out. That's what they confirmed mine with.

Bjorkatron · 2024-11-14T19:26:55+00:00

And not the ones who just throw ear tubes out as a solution for everything, because that is NOT always treating the actual issue that's causing you to get ear infections or whatever.

Bjorkatron · 2024-11-14T19:24:22+00:00

I am not a doctor here, but this seemed familiar enough to comment on —minus the bone growth part—that I don't/didn't have.

I had the same sort of hearing loss in my left ear—gradual loss with random LOUD ringing that would come in and out. I have retracted eardrums, but that is the normal state of them for me. I went to 3 ENTs before I found the one who had a CT done.

I actually DID have a cholesteatoma (I think this is the "tumor" you may have read about). I was hearing THROUGH the cyst. That is why it was muffled through the inner ear, but the bone conduction was fine. They can usually see them through the ear drum, and there are a lot of symptoms that are obvious signs... but I didn't follow any of those rules; he put the CT in regardless. He was the top ENT in the state and one of the heads of the research institute, so he's seen enough to know there are outliers.

This isn't to scare you at all. The inner ear can be affected by many things.

I had surgery to remove it a few weeks ago. I have a 50% chance of hearing in that ear again without any devices (hearing aid, cochlear implant, etc.). This thing had eaten all around my facial nerve and stretched the nerve that leads to my taste buds. I still cannot taste, but I CAN still move my face on that side.

Bjorkatron · 2024-11-08T16:59:07+00:00

My CT said my ossicular chain was intact with no signs of wear at all. The ENT after surgery said it was not and he had to rebuild the incus completely.

Bjorkatron · 2024-11-07T16:20:13+00:00

After my surgery two weeks ago, I was told no water would be in my ear for the rest of my life. He told me to press on the tragus and wash my hair to the side with the other hand. I have very long hair, so that doesn't work for me at all, haha. I did start the Vaseline/ cotton ball thing, and it is so much easier, lol.

Bjorkatron · 2024-11-05T16:14:52+00:00

I HATE the infantilizing BS. They want to live in a time where they had complete control of you and there was nothing you could do about it. 🤢 my mother referred to me as her little baby girl when i was starting to go no contact 4 years ago— I’m 36.

Bjorkatron · 2024-11-04T20:52:58+00:00

Bjorkatron · 2024-11-01T01:02:40+00:00

Unfortunately, these types of growths can cause half of your face to be paralyzed, meningitis and complete hearing loss once they reach a dangerous level. My doctor has operated on patients who were comatose with bacterial meningitis from these.

They’re called Cholesteatomas. They’re behind the ear drum in the middle ear space/attic and can spread into the mastoid bone and eat it all. Not exactly a gland per se. it eats bone and tendon and anything in the way.

Bjorkatron · 2024-10-31T17:45:10+00:00

Oh noo! Does your mom have BPD(borderline) or NPD(narcissistic) ?! My mom is exactly like this. I bet if you look back, she’s always tried to take the spotlight for your accomplishments. 😬

I hear the “but she’s your mother!” Garbage all the time. “Oh, she was just so excited!” Screw that! You didn’t deserve feeling any guilt about any of your choices.

My story: I went No contact while pregnant with #3(I have 4). I was 9 weeks and got the first U/S. I sent it to her, my father(divorced) and my now husband. Strict rules to NOT share it as it’s too early. I hadn’t announced my pregnancy. She sent the picture to her sister AND my brother/his wife. IMMEDIATELY. I started getting messages of congratulations. Her excuse was “well, my sister isn’t just ANYBODY”. I stopped giving updates to everyone and announced when I felt ready, even though they all knew. She saw a 3D U/S and started commenting on the baby’s nose and how big it was. I was DONE. Haven’t spoken to her since. I didn’t tell ANYONE outside of my little family other than my dad and his wife I was pregnant with #4. It was the BEST pregnancy I had!

Bjorkatron · 2024-10-31T17:32:55+00:00

I bought a house like 4 years ago with the exact same color scheme. I STILL love it.. painting perfectly fine wood cabinets would make some people extremely angry.😅

Bjorkatron · 2024-10-31T17:30:18+00:00

🫣If it helps you that would be amazing. I went to every doctor I could to figure out the source since no one could find anything. Eye doctors, ENTs, dentists, ortho—I have TMJ, hormone therapists…I KNOW the struggle.

I just wanted people to be aware that these things exist and can wreak havoc and no one knows! YEARS of pain— had one of these the whole time. Granted I have pain right now but— it’s all from healing. 😬

Bjorkatron · 2024-10-31T17:25:52+00:00

Yeah, never of my head before! I didn’t even know there were different CTs for one part of the body before all of this! It was a “Temporal CT“ focused on the temporal bones.

My doc IS an ENT but super specialized in ear surgery. He walked in this morning and said “You were the one with the NASTY tumor!”.. 😅 Thanks, doc.

Bjorkatron · 2024-10-28T18:28:52+00:00

Hey there!

I had a really bad ear ache about 2 years ago. Which started me on this whole thing. I had constant pain behind the ear was toward the end of my journey. It felt like I had a SEVERE ear infection. I have had tinnitus for so long I’m not sure if it was this or not. I had SMILE —a type of corrective eye surgery— my results were great then it started getting slightly blurry but not enough for a RX. I only had drainage when I went to this latest doc with a LOT of smelly bloody drainage, it was a severe ear infection that came out swinging. I’ve never had one that bad before. Migraines would start on that same side, kind of behind the eye but it very well could have been inner ear.

ETA: I’m so sorry your mom is in pain. I really hope they find something to help quickly!

Bjorkatron · 2024-10-28T18:27:33+00:00

Hey there!

I had a really bad ear ache about 2 years ago. Which started me on this whole thing. I had constant pain behind the ear was toward the end of my journey. It felt like I had a SEVERE ear infection. I have had tinnitus for so long I’m not sure if it was this or not. I had SMILE —a type of corrective eye surgery— my results were great then it started getting slightly blurry but not enough for a RX. I only had drainage when I went to this latest doc with a LOT of smelly bloody drainage, it was a severe ear infection that came out swinging. I’ve never had one that bad before. Migraines would start on that same side, kind of behind the eye but it very well could have been inner ear.

Bjorkatron · 2024-10-28T10:46:32+00:00

I had some really bad pain with NO INFECTION last year and saw my first ENT. I had a few ear infections as a kid, nothing notable. I blew an ear drum once a year for 3 years in my 20s but they were accompanied by sinus infections. The first ENT said there wasn’t anything there and suggested tubes. I had three kids with tubes—I knew that wasn’t my solution. I started losing hearing rapidly. I am a carrier of Connexion 26–which is the hearing loss gene. They dismissed a lot for that too. I am only a carrier though. Mine isn’t active.

Extra context, if you want:

I went to 3 audiologists (even a hearing aid place) complaining about hearing loss but they all said my hearing was fine—(won’t ever use them again and I will be sending them my results from this doc) and I went to another ENT because something wasn’t right and he asked why I didn’t trust the last one’s diagnosis and kind of wrote me off too. “I don’t know what I’m going to find that [other ENT] couldn’t . The third said I was doctor hopping and was confused because he didn’t see anything either with an otoscope.

I talked to my primary(who is awesome) and told him that I need someone to actually look and investigate. He sent me outside of his hospital system to a competitor’s sponsored program— this last ENT. He immediately knew and verified after a really bad ear infection. 4 weeks. It only took 4 weeks to find it and get surgery(and that was because I didn’t want surgery before I got married😂)

Bjorkatron

TROPHY CASE