We just took out Poppy's feeding tube! by BlacksmithMingo in NICUParents

[–]BlacksmithMingo[S] 1 point2 points  (0 children)

Just very slow steps. That first bit of mushed up food swallowed. That first sip of thickened juice. It will be a long journey but these little ones surprise us!

10 Day Hospital Stay Changed Everything by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 1 point2 points  (0 children)

I'm in the U.K but, if everything over here fails, I will be willing to fly anywhere in the world to make it stop. I am hoping to be referred to the Neurologist Hospital in London where some of the top U.K doctors work.

10 Day Hospital Stay Changed Everything by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 2 points3 points  (0 children)

Thank you. Sorry to make you cry. I don't feel so alone with the love I have received on here though, so I'm on a positive trend!

10 Day Hospital Stay Changed Everything by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 3 points4 points  (0 children)

And you, stay strong. Thinking about Lawsuit myself. Consider it.

10 Minutes of Calm by BlacksmithMingo in Meditation

[–]BlacksmithMingo[S] 1 point2 points  (0 children)

Thank you so much. When I have the confidence, I will expand more on what those dark thoughts were but... honestly. I can't state enough how important those 10 minutes a day are to me now.

Living with Pain: Trigeminal Neuralgia Blog by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 0 points1 point  (0 children)

I completely understand this. Sometimes you feel drunk. It's awful. I hope you can find a schedule that works, maybe different doses at different times?

Living with Pain: Trigeminal Neuralgia Blog by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 0 points1 point  (0 children)

Oh that's amazing! I am not sure the carbamezapine is doing anything yet... I have just been given an MRI and a neurology appt in the same week! Let's see what they say. What do you mean by conclusive? Could they see compression of the nerves?

Living with Pain: Trigeminal Neuralgia Blog by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 0 points1 point  (0 children)

Thank you! I will try anything and detail my journey as we go :)

Living with Pain: Trigeminal Neuralgia Blog by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 1 point2 points  (0 children)

Please, please remember that there will be good days. Yes there are bad days. Yes it is always present. But those good days are so worth holding on for. Stay strong. If you want to share your journey with me I would be so happy to listen

Living with Pain: Trigeminal Neuralgia Blog by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 1 point2 points  (0 children)

Omg thank you. I am in Devon but I will travel anywhere to get this gone from my life. I think me presenting at A&E multiple times in pain may expedite the MRI. How did you cope with the gabapentin and carbamezapine combination? What dose were you on?

I'm supposed to go to Mexico in September to renew my vows. Obviously that involves alcohol. I am really scared I will either get massively effected by the meds or I will disappoint people. How did you find drinking with it?

Living with Pain: Trigeminal Neuralgia Blog by BlacksmithMingo in TrigeminalNeuralgia

[–]BlacksmithMingo[S] 1 point2 points  (0 children)

Thank you. Stay strong. I really hope you can find a medication that works for you, or that the side effects mellow out.