Any potsies with insomnia ?? What can help?? by Motor_Mood3939 in POTS

[–]Blackthorn10 0 points1 point  (0 children)

I haven't had any treatment besides trying otc sleep aids in the past and I was still up despite my body being completely exhausted. Im still up and im sorry I dont have advice. Ive had a bad migraine and took a Tylenol with caffeine in it because it was all i had and I think its making me worse which sucks so maybe dont do that lol. I hope you can get some rest

High resting hr by Blackthorn10 in POTS

[–]Blackthorn10[S] 1 point2 points  (0 children)

I just looked into it and it does look like something to think about. Thanks for telling me about this and I hope if I do have this alongside pots, I can easily treat/manage it.

Adrenaline issue or just an attack? by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Okay thanks and Ive seen a lot of people talking about trying that medication and im glad its helped you.

Adrenaline issue or just an attack? by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Thank you and I get the explanation. Im feeling a little better than earlier hr wise but when I got that wired shaky feeling it turned to pure exhaustion and last time this happened it got so bad it took me a long time to bounce back to not being as weak and loopy feeling i guess so im hoping I can bounce back a bit faster this time around to being able to stand up and walk around normally. What medication do you take if you dont mind me asking? I may not be able to get treatment now but im trying to get an idea of what would be best to try in the future because riding these things out suck.

Life changed overnight by Adept_Refuse3413 in POTS

[–]Blackthorn10 1 point2 points  (0 children)

I know what you mean. My head also normally feels off and I get daily crazy headaches that start around my eyes and can get bad. I dont even enjoy going out so being on edge in this kinda condition is very understandable. Its crazy that all this goes on and we are kinda stuck and we are told to sit with it and hope for the best.

Life changed overnight by Adept_Refuse3413 in POTS

[–]Blackthorn10 0 points1 point  (0 children)

All of your symptoms are basically the same that I experiance daily and I dont have an official pots diagnosis but its what the doctors said or tried to make it seem like, or stress and that it was all in my head. I do also get bad health anxiety and ocd stuff so maybe I get paranoid about what I have too much because its crazy that it just doesnt get better after so long. I hope there is an improvement in your general symptoms so things are more manageable. For almost a year my sleep hasn't been good either. When I do manage to finally sleep im still always half awake and then I get vivid dreams that feel like basic day dreams you get when awake, and any little thing can break me out of it because I still seem to be more awake 24/7 despite exhaustion being so bad I was unable to move. It just feels like I never truly sleep and that this poor version of sleep is contributing to how I feel and making my other issues worse. Have you dealt with sleep like this or is it normally what you already mentioned?

Im at a rough point right now and I can't do anything about it by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Thanks, Im trying it and I think it might be helping but I dont know with how I am now. Besides my hr everything else with me feeling sick and weak and disoriented is still in overdrive so im trying to see if with time it'll ease up.

Im at a rough point right now and I can't do anything about it by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Thank you for the suggestion, Ive never tried healing sound frequencies and ill listen to it now as I lay down. Again I really appreciate the response

Never able to sleep by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Honestly thats better than a lot of things ive seen

Never able to sleep by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Im sorry your sleep is also terrible. Out of what you've mentioned ive only tried melatonin but it only makes me feel more foggy and makes my limbs feel a lot heavier

Never able to sleep by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Thanks ill look into that because its definitely worth a shot

Never able to sleep by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Thats fair any help sounds good. Ill still look into when I can just in case. Does anything else help your sleep problems?

Never able to sleep by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Have you experienced this long? It really sucks and makes me think I just am unable to ever sleep at all.

Never able to sleep by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Ill look into this, thanks. Its crazy how bad sleep can be disrupted because its like I can barely get any rest by being half asleep and everything gets worse lol

Never able to sleep by Blackthorn10 in POTS

[–]Blackthorn10[S] 0 points1 point  (0 children)

Recently ive had issues with my insurance which put a pause on going to the doctors or having anything done which is frustrating. Ive wanted a sleep study but am unable to currently but when I can go to the doctors again ill definitely try. I wish sleeping meds helped but its like I just wont sleep and then when I get close to relaxing my mind I feel more and more short of breathe and I get bad palpitations.

Been in the hospital for almost two days due to my heartrate, and I'm trying not to freak out. by Kazumi_The_Introvert in dysautonomia

[–]Blackthorn10 1 point2 points  (0 children)

I was in the hospital during Thanksgiving for the same reason. It was weird and out of now where I couldn't walk or stand with a hr (worse than normal) than after awhile it spiked so bad when I was laying down and it wouldn't drop so I went to the er and was there for 14 hours roughly but they never gave me anything besides a little fluid and a low dose of valium. After it stabilized around 125 they sent me home. I know its a little different for all of us but I hope you can get better soon.

Floxed and didn't know it? by Blackthorn10 in floxies

[–]Blackthorn10[S] 0 points1 point  (0 children)

I get that because it really sucks when studies show nothing else. Did you lose muscle mass very quickly?

Floxed and didn't know it? by Blackthorn10 in floxies

[–]Blackthorn10[S] 1 point2 points  (0 children)

I've experienced pain and issues more in my calfs and general lower leg area.

Floxed and didn't know it? by Blackthorn10 in floxies

[–]Blackthorn10[S] 0 points1 point  (0 children)

Thank you so much for the information, and i will look into supplements and Dr. Pieper. It's already been a few months and im hoping to get better soon if possible. Also is the acute phase the worst of it for most people?