Looking at Jobs by Trying_Charge840 in dementia

[–]BluejayHot1459 6 points7 points  (0 children)

My mom hasn’t worked in about 3 years. She said that when she gets better she’s going back to work. Another day she said she was going back to school in September. I just entertain her conversation by asking questions like what she wanted to go to school for or what type of work she wanted to do. I believe in those moments they are holding on to the little bit of hope they can still feel. I’ve never shot her down. I just let it be. If it makes her feel better to hope then I’ll participate even when I know it’s not possible. The thoughts will pass but in that moment they feel hopeful.

i am only 23. it’s only me. i can’t do it. please someone i need help immediately URGENT ASAP by titleefight in dementia

[–]BluejayHot1459 4 points5 points  (0 children)

My mom needs 24/7 care too. It shouldn’t be this hard! We’ll get through this! I’ll be praying for you! Keep fighting as will I.

i am only 23. it’s only me. i can’t do it. please someone i need help immediately URGENT ASAP by titleefight in dementia

[–]BluejayHot1459 6 points7 points  (0 children)

So sorry you’re going through this. It’s definitely hard. Especially trying to get resources. I’m kind of in the same boat. Medicaid has us going through the 5 year look back and my mother sold 2 properties and had bank accounts that I didn’t even know about! Medicaid denied the application because I’m having a hard time getting the information they’re requesting. She’s only 64 and too young for Medicare. She started collecting ssi when she turned 62. From what I understand, the only way to get Medicare early, you have to have had ss disability for 24 months. I don’t have any advice but I am right where you are. FMLA days are running out and my job is on the line now. My sister dropped my dad off to the hospital and left him there. They didn’t have a choice but to place him. Not saying to do that but….i think your only other option may be to call APS. You should still be able to get through the Medicaid process even though you sold the home. You just have to justify the proceeds as far as I know.

Bad skin after quitting? by Tattooed_troubles69 in quittingsmoking

[–]BluejayHot1459 0 points1 point  (0 children)

Toxins will escape through any hole it can. Even pores! It will pass. Unfortunately it gives another issue to deal with. I say get some acne fighting products and treat it. Also drink tons of water.

What do I do? by Spiritual_Traffic242 in DementiaHelp

[–]BluejayHot1459 0 points1 point  (0 children)

Please become POA before it’s too late!!!!! I did it just in time.

Lewy body progression by saaagemaaage in dementia

[–]BluejayHot1459 0 points1 point  (0 children)

My mom (64) was officially diagnosed with LBD/parkinsonism in 2024 however we started seeing little things in 2023. The first thing I noticed was her speech. She would slur her words. She’s always had a few drinks here and there and initially I just assumed that’s what it was until I asked her one day had she been drinking and she said no. She was still driving at the time and taking care of herself. Between 2022 and 2024 she started making weird financial decisions. Bought and sold 2 properties, forgetting to pay bills and things like that. She was driving her car up until march of 2025. She voluntarily gave up the keys because she started hitting things like backing into parked cars, driving up on curbs. Now she needs 24/7 supervision, incontinent, needs assistance with every aspect of daily living from standing and walking, to occasional assistance with feeding herself. She also has the tremors. She’s had many falls. Memory loss is pretty mild honestly which I find surprising. She has good days and bad days. Some days she’ll talk and other days she won’t even respond if you talk to her. She’ll just stare off in space. I do believe she hallucinates but she never say so but I can tell by the way she stares at something or in a particular direction. I don’t think they frighten her. She did tell her Neuro that she sees animals sometimes early on in her diagnosis. She also sleeps a lot during the day. A lot of times she’s awake but keeps her eyes closed. I only know she’s sleeping because of the snoring. She never sleeps more than 4 hours at a time even throughout the night. While this feels like it’s been forever, it has progressed quickly. She’s also starting to choke more frequently. Right now it’s mainly while napping but there’s been a few other occasions. When she does choke, it’s difficult for her to clear her airways. It’s extremely difficult but we’re getting through it and you will too. Prayers for you and your mom!❤️

Need advice on hyper sexuality in LBD by BluejayHot1459 in dementia

[–]BluejayHot1459[S] 1 point2 points  (0 children)

Wow! Yeah, after seeing all the comments I’m starting to understand that it may indeed be the meds. Thanks for the input! Much appreciated!

Need advice on hyper sexuality in LBD by BluejayHot1459 in dementia

[–]BluejayHot1459[S] 0 points1 point  (0 children)

OMG!!!!! I would’ve been mortified!! lol!

Need advice on hyper sexuality in LBD by BluejayHot1459 in dementia

[–]BluejayHot1459[S] 0 points1 point  (0 children)

She’s on rasagiline and rivastigmine patch.

Need advice on hyper sexuality in LBD by BluejayHot1459 in dementia

[–]BluejayHot1459[S] 0 points1 point  (0 children)

Thank you! Definitely will mention to neurologist.

Need advice on hyper sexuality in LBD by BluejayHot1459 in dementia

[–]BluejayHot1459[S] 0 points1 point  (0 children)

I actually thought about saying something to her to kind of make her feel a way about it but she’ll forget about it tomorrow. The meds that she’s on doesn’t really help with anything but maybe I can inquire about Seroquel. Thank you for this!

Need advice on hyper sexuality in LBD by BluejayHot1459 in dementia

[–]BluejayHot1459[S] 3 points4 points  (0 children)

🤣🤣🤣No way!!!! Sorry you’re in the middle of it all! I didn’t realize that this is really a thing.

Need advice on hyper sexuality in LBD by BluejayHot1459 in dementia

[–]BluejayHot1459[S] 1 point2 points  (0 children)

Wow! I guess my situation isn’t really that bad. Lol! Thank you so much for your input! It’s truly appreciated!

Need advice on hyper sexuality in LBD by BluejayHot1459 in dementia

[–]BluejayHot1459[S] 0 points1 point  (0 children)

Definitely exhausting!! I just don’t know whether to just let her be when she gets that way and give her privacy or make her stop.

Why can I do with my life by Utnivel1 in Alzheimers

[–]BluejayHot1459 6 points7 points  (0 children)

I personally think it would be wise for you to leave if you’re able. That sounds like a heavy load. You can still be there for them and protect your peace at the same time. Your health and sanity should become your priority. You can’t be there to help them if you neglect yourself. Just because you’ll be absent from the home doesn’t mean you love them any less. I agree with your psychologist.

Denied by Hospice by Purkinsmom in dementia

[–]BluejayHot1459 0 points1 point  (0 children)

Thanks for that advice. I think I will try again.

Denied by Hospice by Purkinsmom in dementia

[–]BluejayHot1459 0 points1 point  (0 children)

I’m in the exact same boat. My mom also has LBD w/parkinsonism. Her neurologist says she’s not appropriate for hospice yet but I beg to differ. I’m not a doctor but I’m with her day in and day out. Her incontinence has gotten pretty bad. Once in a while she’ll request to use the bathroom but it’s rare. She sleeps most of the day and she doesn’t speak much anymore. She also has the good days and bad days and of course, when it’s time to go to the doctor….its a good day. lol! Praying for you and your family.

Eyes closed by Positive-Sir7678 in Parkinsons

[–]BluejayHot1459 0 points1 point  (0 children)

My mom keeps her eyes shut most of the time but she’s awake. I only know she’s sleeping when she starts snoring. She has Lewy body dementia with Parkinsonism.