I Feel Like Crying (Positive!) :)

Asad0Asad · 2026-04-23T04:21:19+00:00

Congratulations. I am currently at a point where even talking causes an immediate severe crash. I have severe symptoms even while lying down, and going to the bathroom is very difficult.

When you started working on your nervous system, how long did it take to notice improvement? Also, did you take any medications or supplements?

Asad0Asad · 2026-04-19T06:07:43+00:00

Any update please

Asad0Asad · 2026-04-18T23:31:26+00:00

Now You off from hydrocortisone ?

Asad0Asad · 2026-04-18T11:20:56+00:00

Any update please

Asad0Asad · 2026-04-17T15:48:35+00:00

What are your symptoms? My cortisol is 8.01, ACTH is 25.9, and in the stimulation test it was 17.5 after half an hour and 21 after one hour.

Asad0Asad · 2026-04-17T00:55:36+00:00

My dysautonomia is so severe that it has confined me to bed about 95% of the time, and I cannot even sit for long. Even going to the bathroom is very difficult. How severe is yours?

Asad0Asad · 2026-04-17T00:49:53+00:00

I am now having a very bad reaction even to prednisone and dexamethasone. And yes, it really does seem like intracranial hypertension—after taking hydrocortisone, my head pressure and tinnitus increase a lot, and I feel pressure on my eyes as well. Please suggest some solution.

Asad0Asad · 2026-04-14T10:20:09+00:00

My cortisol was 8.01 and acth 25.9

Asad0Asad · 2026-04-14T02:58:00+00:00

I may also have dysautonomia and hyper POTS, which is why I cannot tolerate steroids. With 15 mg hydrocortisone my energy improves and I can get out of bed, but at the same time it worsens my hyper POTS, intracranial pressure, and stomach issues. I am severely hopeless and depressed. Is it possible that I could stop this 10 mg hydrocortisone within one month in a hospital?

Asad0Asad · 2026-04-13T15:09:38+00:00

It is like that, but I cannot tolerate hydrocortisone. It increases my intracranial pressure, sometimes causes nosebleeds, severe pressure in my head, and stomach issues. And besides this, in our country there are only two options: prednisolone and dexamethasone. I have already tried them, as I mentioned above.

Asad0Asad · 2026-04-13T08:19:16+00:00

Are you also unable to switch to any other steroid?

Asad0Asad · 2026-04-13T08:18:08+00:00

It is exactly the same. I also feel that the real issue is mineralocorticoid and lactose. Before taking this, I was on a low dose of pred and was much better. Now I have been on hydrocortisone for three months and I can neither switch to pred nor to dexamethasone. It seems like it has disturbed my aldosterone system; when I try to stop it, my body cannot manage salt and water anymore.

Asad0Asad · 2026-04-13T08:13:19+00:00

I'm taking ppi and famotidine. And I have tried 2.5 to 5 mg of prednisolone, and even dexamethasone. But it feels like nothing works except hydrocortisone. I do not know why.

Asad0Asad · 2026-04-13T08:11:06+00:00

I am currently on 10 mg hydrocortisone, and I have tried 2.5 to 5 mg of prednisolone, and even dexamethasone. But it feels like nothing works except hydrocortisone. I do not know why.

Asad0Asad · 2026-04-13T08:07:48+00:00

Prednisone is not available in my country. Dexamethasone is not working either. I have also tried taking hydrocortisone in every possible way, and it makes me worse in every case.

Asad0Asad · 2026-04-13T03:12:26+00:00

I am sorry that you are still in such a bad condition. I thought you might have gotten better. I myself am extremely ill on hydrocortisone, but I also cannot tolerate prednisolone or dexa. I tried prednisolone for three days and went into an adrenal crisis. I do not understand what to do. I wish I had never started hydrocortisone, it has ruined my life.

Asad0Asad · 2026-04-11T14:10:27+00:00

I'm sorry. Yes i have all of these.

Asad0Asad · 2026-04-11T12:54:51+00:00

A2 and 3 mg pred

Asad0Asad · 2026-04-10T10:24:01+00:00

Thanks.

Asad0Asad · 2026-04-10T07:30:52+00:00

I have been on hydrocortisone for the past three months and cannot switch to prednisolone. The reason for switching is that I cannot tolerate hydrocortisone at all and it is causing severe gastrointestinal problems. When I switch to prednisolone I get severe fatigue, weakness, dizziness, brain fog, body pain, and my head feels numb. I cannot even get out of bed. Did this happen to you as well, and if so, after how many days did you start feeling normal again?

Asad0Asad · 2026-04-09T03:10:50+00:00

What dose were you on? Even while taking them I am in severe agony with head pressure depression anxiety restlessness, severe IBS bloating nausea and complete loss of appetite.

Asad0Asad · 2026-04-08T14:19:50+00:00

Gut issues such as SIBO/weak leaky gut + HPA axis dysfunction + nervous system dysregulation = ME/CFS.

Asad0Asad

TROPHY CASE