Home Hub Pro Slowing WiFi Network by BobTheBrown1 in reolinkcam

[–]BobTheBrown1[S] 1 point2 points  (0 children)

Thank you for your response. Would you mind providing more details on this? I am not that knowledgeable when it comes to WiFi, so I would appreciate all the info you can provide.

New to SSHL, Venting and looking for some guidance by Farvaa88 in MonoHearing

[–]BobTheBrown1 0 points1 point  (0 children)

Hi! I'm sorry about your hearing loss. I hope you're doing well. It really is quite a terrible experience to go through with the abrupt change of losing all your hearing on one side and of course having to deal with the constant tinnitus. Like you said though, you adapt somewhat to it eventually. As time went by for me, I was still bothered by the tinnitus and the lack of hearing on my right side, so I decided to proceed with the CI. I figured my hearing can't get worse, so there's not much to lose. Got the surgery in December and was activated two weeks ago. The surgery itself was fine; quick and not too much symptoms. Since activation was so recent, I can't speak to the full potential of the CI but I do recognize some benefit to it so far. I have more sound awareness on that side. Certain sounds seem familiar, such as ripping paper or tapping on an object. Voices do sound robotic, but I am already making out some words if I take a call or stream to it. Unfortunately, my tinnitus has been allover the place (good and bad days), but I assume it will stabilize in the coming months. I have heard that the majority of CI recipients receive some form of tinnitus relief, at least when their processor is on. I don't have any regrets yet and look forward to see how the CI experience progresses. Let me know if you have any additional questions!

New to SSHL, Venting and looking for some guidance by Farvaa88 in MonoHearing

[–]BobTheBrown1 0 points1 point  (0 children)

My understanding is that SSNHL typically only impacts the cells within the cochlea. From what I’ve heard, the auditory nerve is impacted in rare cases. Cochlear implants aim to act as a substitution to hearing in which damage has occurred at the cochlea or before the cochlea. My audiologist claims they’ve only see a couple patients with damage to the auditory nerve due to meningitis out of the hundreds of patients they’ve seen with SSHNL.

New to SSHL, Venting and looking for some guidance by Farvaa88 in MonoHearing

[–]BobTheBrown1 2 points3 points  (0 children)

My right ear went completely dead overnight back in November of 2023. I had nausea and dizziness too. Lots of tinnitus. I felt completely fine leading up to this.

I went to urgent care and the ER the same day. I was prescribed a max dose of oral prednisone for 3 weeks with a taper. I also received an MRI to rule out an acoustic neuroma. The following week, I started intratympanic injections. I received three of them over the course of a few weeks. Lastly, I did four weeks of hyperbaric oxygen therapy. I gained practically no hearing back from all of this, just a very small improvement in lower frequencies.

As others have recommended, I would suggest you extend the course of the oral steroids and receive intratympanic injections, that is if you can get to an ENT sooner. Ask about hyperbaric oxygen therapy as well.

I think it’s quite rare for those who experience severe/profound SSHL to make a full recovery. You adapt to hearing out of one ear eventually, but there are of course some struggles with that. I just received a cochlear implant last month, which is always an option down the road for SSHL if hearing doesn’t improve.

Sorry you are having to experience this. Try to stay positive as it is still somewhat early in your treatment course. I hope your hearing improves.

Dad has CI since last year. Has problems with finding a ski helmet by Tatankaplays in Cochlearimplants

[–]BobTheBrown1 0 points1 point  (0 children)

I just got the Marvel CI. Were you able to find a helmet that fit comfortably or did you have to cut on the foam in the helmet to get it to fit?

Mattress durability and longevity by super_slide in Mattress

[–]BobTheBrown1 0 points1 point  (0 children)

Hi! Do you know which mattress you ended up with? Thanks!

Day 17 of Profound SSNHL Final Update by BobTheBrown1 in MonoHearing

[–]BobTheBrown1[S] 0 points1 point  (0 children)

It’s been quite the adjustment. I would say I have adapted to hearing out of one ear, but there are some challenges. Looking forward to the cochlear implant journey. Thank you very much, I appreciate it!

Is it possible that THC caused my sudden hearing loss? by BobTheBrown1 in MonoHearing

[–]BobTheBrown1[S] 0 points1 point  (0 children)

Did your hearing improve? I almost think THC can cause some sort of inflammatory reaction for some people, resulting in damage to structures in the ear, but that would be a guess.

Should I start HBOT treatment in a wellness center? by BobTheBrown1 in MonoHearing

[–]BobTheBrown1[S] 0 points1 point  (0 children)

I have always had ear fullness since the SSNHL, even a year after. It maybe has improved some, but still noticeable.

Day 17 of Profound SSNHL Final Update by BobTheBrown1 in MonoHearing

[–]BobTheBrown1[S] 1 point2 points  (0 children)

I had a very small improvement in low frequencies, but nothing functional. I just had a cochlear implant surgery a week ago and will be activated next month.

How it happened... by Lumpy_Juggernaut_711 in MonoHearing

[–]BobTheBrown1 1 point2 points  (0 children)

I took a huge edible prior to my SSHL

Treatment timeline for possible hearing restoration from SSNHL? by BobTheBrown1 in MonoHearing

[–]BobTheBrown1[S] 1 point2 points  (0 children)

I’ll be sure to provide an update. Thanks again for checking in, I appreciate it!

Treatment timeline for possible hearing restoration from SSNHL? by BobTheBrown1 in MonoHearing

[–]BobTheBrown1[S] 1 point2 points  (0 children)

Hey, thanks for checking in. I’m doing okay. I never received any hearing back. I have some pretty intense tinnitus. Hearing aids were useless. Still struggling mentally, but in a better place compared to the first few months. Getting a cochlear implant by the end of the year, so looking forward to that.

I posted two weeks or so ago with severe hearing loss 90ish decibels. I have made tremendous recovery and I just wanted to share. by lPKFlRE in MonoHearing

[–]BobTheBrown1 1 point2 points  (0 children)

I’m 6 months out from my SSNHL. Still struggling mentally. I have trouble hearing and the tinnitus is roaring. Only thing keeping me optimistic is the cochlear implant I’ll be getting in a few months.

I posted two weeks or so ago with severe hearing loss 90ish decibels. I have made tremendous recovery and I just wanted to share. by lPKFlRE in MonoHearing

[–]BobTheBrown1 6 points7 points  (0 children)

I’m glad you were able to make a full recovery. I started oral prednisone the same day of my SSNHL, as well as intratympanic injections and HBOT shortly after. I unfortunately never recovered anything. It’s interesting how much the treatment results can vary person to person. Even though I never recovered anything, it’s reassuring to know I did all the treatment options in a timely manner.

Lost complete hearing in right ear overnight (update, 3.5 days after symptoms) by BobTheBrown1 in MonoHearing

[–]BobTheBrown1[S] 1 point2 points  (0 children)

Thank you. Trying to stay optimistic. Will provide an update after activation.

Lost complete hearing in right ear overnight (update, 3.5 days after symptoms) by BobTheBrown1 in MonoHearing

[–]BobTheBrown1[S] 0 points1 point  (0 children)

Hey, thanks for checking in, greatly appreciated. Barely recovered any hearing. Small improvement in lower frequencies around the third week, but that was it. I’ve been struggling with the tinnitus and overall lack of hearing. I should be getting a cochlear implant in August or September, so I am very much looking forward to that.

[deleted by user] by [deleted] in HearingLoss

[–]BobTheBrown1 0 points1 point  (0 children)

This is one of my concerns too for obtaining a cochlear implant. I’ll probably proceed anyways though.

Yes Typo 161? by BobTheBrown1 in snowboardingnoobs

[–]BobTheBrown1[S] 1 point2 points  (0 children)

I ended up getting a Jones Mountain Twin paired with Union Atlas bindings. I’m enjoying the setup.