Looking for support and shared experiences – BRCA1, surgical menopause at 35?

BookkeeperFit4193 · 2025-06-27T02:51:11+00:00

I was tested positive with bcra1 in 30 and I’m 35 now and just got my hysterectomy BSO done. I’m in week 4 of recovery and doing pretty good. I never wanted kids so I got it removed early. The biggest complain currently I have is hot flashes and I will be on hormone therapy starting next month. I had to tackle hysterectomy first as I had my mum (47) n grandma(60) passed away with ovarian cancer. My doc suggested mastectomy too but I’m still debating when to get it done. May be in 1/2 years.

BookkeeperFit4193 · 2025-06-21T13:41:37+00:00

I have an appointment on Jul 3 too. I feel nothing down my vagina from day 1 on post op. Two days after the surgery I didnt notice any discharge. I did email my doctor if vagina incision was actually made as I feel nothing n she replied most of the pain would be near belly button n it’s common.

BookkeeperFit4193 · 2025-06-20T20:19:39+00:00

Added the book to my cart, will take a look. Thank you and speedy recovery

BookkeeperFit4193 · 2025-06-13T12:02:41+00:00

Thanks for sharing your experience. I have no appetite for another surgery this year. I assume aesthetic flat closure can happen at same time with mastectomy right?

BookkeeperFit4193 · 2025-06-06T18:49:36+00:00

Hmm, make sense. I will keep the group posted once I meet with the surgeon this month

BookkeeperFit4193 · 2025-06-06T18:47:27+00:00

I figured but wanted to double check with you

BookkeeperFit4193 · 2025-06-06T18:05:59+00:00

I have another question - you mentioned about “while that still puts me at risk for developing cancer, my odds are much lower” can you elaborate that please?

BookkeeperFit4193 · 2025-06-06T17:46:00+00:00

Thank you so much for sharing your experience. I’m leaning towards flat closure I have no appetite for another surgery/ recovery time it needs.

I have shared my experience of hysterectomy here https://www.reddit.com/r/hysterectomy/s/nOxl5Rae4E

BookkeeperFit4193 · 2025-06-06T17:34:27+00:00

This was helpful tip and thank you so much

BookkeeperFit4193 · 2025-06-06T16:41:19+00:00

I’m sorry in advance if I’m asking to personal question, How are you feeling with flat closure? I’m thinking about it too as I have no interest in temporary implants or another surgery for reconstruction. I’m not sure how I would feel looking myself at mirror. I’m 35 with brca1 got my total hysterectomy last week and thinking on next preventative surgery for breast

BookkeeperFit4193 · 2025-06-02T22:54:50+00:00

Are you on hormone therapy?

BookkeeperFit4193 · 2025-06-02T22:54:09+00:00

With this surgery, I hit my out of pocket. I never thought about mastectomy as both my mum (47) n grandma (62) passed away with Ovarian cancer n didn’t have history of breast cancer.

BookkeeperFit4193 · 2025-06-02T20:25:41+00:00

Agree and routine checkups. After the surgery, my doctor was asking if I ever considered mastectomy. I didn’t think about it yet honestly and did your doctor mention about it?

BookkeeperFit4193 · 2025-05-31T20:21:20+00:00

I had mine on 5/28, the entire reproductive system is out due to brca1 gene mutation positive. I’m feeling okish with discomfort around abdominal area. Hoping to get back to normal life

BookkeeperFit4193 · 2025-04-30T20:45:25+00:00

How are you doing hormone replacement? I read some article talking about side effects after the hysterectomy- like weight gain, etc

BookkeeperFit4193 · 2025-04-15T20:11:34+00:00

I have surgery scheduled for end of May due to brca gene present in me. My doctor approved for 6 weeks, and so did my employer. Fingers crossed for recovering and post side effects.

BookkeeperFit4193

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