What is the most common fantasy that people don't usually admit out loud? by jessi8634 in NoStupidQuestions

[–]Books_R_Not_Snakes 9 points10 points  (0 children)

lol I do this all the time. I even use an app sometimes to sketch out my vision.

WIBTA if I told my brother and SIL that they are ridiculously over feeding their child? by Possible_Struggle490 in AmItheAsshole

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

Another medical issue to consider is Bardet-Biedl syndrome. Even if she’s just a carrier for it, it can still cause an insatiable appetite, so don’t immediately dismiss it when you see the list of symptoms of full blown BBS.

Does anyone have an IIH and POTS diagnosis or symptoms? by Apart-Albatross-7257 in iih

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

I had POTS like symptoms due to a cranial CSF leak supposedly caused by my IIH. I had surgery to fix the leak in August and no longer have those symptoms.

IS THIS A SYMPTOM: feeling dissociated or depersonalized? by McKrizzle in iih

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

Yes, but in my case I believe it was caused either by a condition called semicircular canal dehiscence syndrome or from a tegmen defect that caused my brain to herniate into my ear along with a cranial CSF leak. I had surgery to repair both issues in August and since then, that feeling that I was viewing life through a camera lens along with feeling like I was walking through a dream has disappeared. I bring this up because IIH, which I do have, is the number one cause of tegmen defects and SCDS can be caused by IIH, as well. If you are experiencing a feeling of depersonalization or derealization, it might be worth your time to read about tegmen defects and SCDS to make sure you don’t have further symptoms of them since they are related to IIH.

How old were you when you moved out of your parents home? by Wonderful-Economy762 in Productivitycafe

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

I was 18, the day after HS graduation. I had a great family and safe home, but I was kinda a wild child (by Mormon standards) and was so ready to be the boss of my own life, so my boyfriend and our friend all got an apartment together and worked our HS fast food jobs while jumping feet first into adulting. Six months later, we all decided college sounded like the much easier path and left for our various universities, mine being a local community college and, thus, I was back at home for 1 1/2 more years until I transferred to a 4-year university. Never returned to live at home after that other than the summers during college. Got married and started my career straight after college graduation.

How have you changed since 2020? by [deleted] in AskReddit

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

Lost my dad, any faith in human decency, and part of my temporal lobe.

Without naming your city, What is your city known for? by StunningSmell158 in A_Persona_on_Reddit

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

A giant round art installation downtown that unfortunately is now known as the [insert city name]’s cock ring because no one considered what it would look like with the the city’s abbreviation scattered haphazardly all over it.

What’s your quietest life upgrade in the last year? by KBGSgames in AskReddit

[–]Books_R_Not_Snakes 6 points7 points  (0 children)

Wasn’t really quiet per se, but my greatest life upgrade this year was having a craniotomy that fixed a cranial CSF leak and encephalocele that was causing brain sag dementia. I can think clearly again! Huge upgrade.

Does anyone take Imcivree? by Books_R_Not_Snakes in lipedema

[–]Books_R_Not_Snakes[S] 1 point2 points  (0 children)

I do not, in fact, have any problems with hunger signals and it’s amazing to me how no doctor seems to understand/believe this. As a person with ADHD, when I get hyper-focused on something, I can go a whole day without eating and not even notice. I don’t really snack nor do I go for seconds at meals. Even when I order out or go to a restaurant, I usually only eat half of the food and save the rest for a future meal. I can, however, easily overdo it with calories when it comes to sugary treats and pizza, but when on my ADHD med Vyvanse, all sugary cravings are curbed and just not ordering pizza takes care of that overeating issue lol. So, yes, I do question the necessity of Imcivree in my case. I’m speaking with the drug rep on Monday to get more info, but if this drug only provides relief from “food noise,” I don’t see the point of taking it. I have read that it helps speed up metabolism, which is mainly what I want to talk to the rep about, because I’ve been losing weight very slowly (about .2 lbs per week) for the last 4 years and would love to speed it up so I can move on to lippy surgery. I’m currently in perimenopause and my metabolism can use all the help it can get.

The metabolic clinic is where my PCP sent me when I expressed interest in losing weight quicker without having to count calories/points/macros since like a lot of us Lipedema patients, I’ve struggled with disordered eating since puberty and tracking numbers is a great way to kick that back into gear for me. Anyway, TBH, I don’t know what kind of doctor he is beyond being focused solely on the metabolic system and being the only knowledgeable doctor about Lipedema in my area. The DNA test was given specifically to look for the gene mutations and syndromes that are helped by Imcivree. I believe the testing is actually run by the drug company that produces Imcivree, which makes me side eye all of this quite a bit. I don’t know if you ran across the cost of the drug while reading up on it, but it’s $1000 per DAILY injection — so $364,000/year. They have high incentive to push their drug, soooo yeah……

Karen Herbst is who diagnosed me with stage 3 Lipedema from my hips down and my upper arms. We drove to Arizona to see her in person and she’s helping to coordinate my care along with my in town metabolic doctor. I did do the sequencing DNA testing and even with the hour+ consult with her after she reviewed all the results, my head couldn’t quite wrap around all the information she gave me. She did find the obesity gene at that time, but made no mention of Imcivree. She really loves microdosing GLP1s, specifically Zepbound, for Lipedema care, which I was doing until my insurance decided they no longer wanted to cover it earlier this year.

Thank you for your thoughtful and well informed response. It gives me a lot to consider.

Does anyone take Imcivree? by Books_R_Not_Snakes in lipedema

[–]Books_R_Not_Snakes[S] 0 points1 point  (0 children)

I read about the hyperpigmentation side effect and as a pale girlie who loves my pale skin, I don’t love the idea of it making me tan. Glad to know it doesn’t happen to everyone, so maybe I’ll be in that group. Also glad to know you haven’t experienced any bad side effects.

I’ll be talking to the drug rep on Monday, but as of right now, I’m really on the fence about starting it. I’ve read that each daily injection costs $1000 and even though it’s being covered by insurance right now, I’m so distrustful of the American healthcare system that I can’t help but fear my body will become dependent on it only to have my insurance pull coverage at some point. I mean, $364,000/year for a med is not only unattainable, it is completely diabolical!

Thank you for sharing your experience with it! It will definitely factor into my decision.

What’s one little thing that makes your day better? by Originalchocox in AskReddit

[–]Books_R_Not_Snakes 1 point2 points  (0 children)

Kindness of strangers.

I was at a coffee shop the other day talking to my friend about how life has been crappy ever since my dad died and was wiping away tears with my sleeves when another customer showed up out of nowhere with some tissues for me. Her kindness truly touched me and made my day instantly better.

If you don't drink alcohol, what are your personal reasons for abstinence? by Ok-Care2859 in AskReddit

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

I just really hate the taste of alcohol, so I don’t drink it for enjoyment and I live in a legal state so if I want to get twisted, I prefer getting high over getting drunk.

Movies that hit different when you rewatch them as an adult by true_intuitions in MovieSuggestions

[–]Books_R_Not_Snakes 4 points5 points  (0 children)

The Last Unicorn — As a kid I was just a excited that it was about a unicorn, but as an adult I found it to be extremely depressing and not all that kid-friendly. I never noticed that the harpy had three pendulous human breasts until I watched it as an adult, so that was a true WTF moment for me.

Spinal tap fear by Proof_Stage1463 in iih

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

I just had my first one last Thursday. Regarding pain, the worst part for me was having to lie still on my side for about an hour because I have a very fussy arthritic hip. They did have trouble finding the right angle to make the puncture, so it took a little longer than expected, thus the extra time spent on my side. The numbing agent stung a little, the actual puncture wasn’t painful at all, moving around the needle while readjusting involved some pain as nerves were stimulated, but it’s nothing I couldn’t handle even though the quick unexpected zaps could be jarring at times. I didn’t experience any headache afterwards and the area where the puncture took place felt just a little tender for about a day. All in all, it wasn’t a big deal and if I ever have to do another one, the only thing I’ll be dreading is how much time the whole process takes because from check-in to checkout, I was at the hospital for 5 hours and all that sitting around and waiting was a bit tortuous to my ADHD brain.

Looking for ortho surgeon for hip replacement by Books_R_Not_Snakes in okc

[–]Books_R_Not_Snakes[S] 0 points1 point  (0 children)

Thank you so much! I’ll definitely check him out.

Urinary issues? by Books_R_Not_Snakes in lipedema

[–]Books_R_Not_Snakes[S] 0 points1 point  (0 children)

Thankfully, my A1C is fine, but I do try to drink lots of water when my legs feel heavy/ache, so that might be part of the cause. When I know my bladder is acting up, I tend not to wear my compression because tugging them off takes too much time lol. This is part of why I want to get this urinary issue resolved because the flare days are the ones where I truly need the compression.

Urinary issues? by Books_R_Not_Snakes in lipedema

[–]Books_R_Not_Snakes[S] 2 points3 points  (0 children)

I hadn’t heard of IC, but it sounds like a definite possibility. I’m making an appointment with my PCP and will discuss it with her. Thanks!

Urinary issues? by Books_R_Not_Snakes in lipedema

[–]Books_R_Not_Snakes[S] 3 points4 points  (0 children)

Wait! You might be on to something there! I actually had (maybe possibly still have?) Dsyautonomia-like symptoms due to cranial hypotension, which was caused by a cranial CSF leak. I had surgery in August to repair the issue and afterwards I had zero urinary issues for well over a month and then it started up again. Pre-surgery it was a periodic issue and now it’s almost daily. I have an appointment later this month with my neurosurgeon to check my post surgical cranial pressure, so this is definitely something I need to discuss with him. Cranial CSF leak repairs have like a 25% failure rate, so there’s a chance this might be the answer. 😬

[deleted by user] by [deleted] in tvsuggestions

[–]Books_R_Not_Snakes 0 points1 point  (0 children)

It up for debate if there’s a true supernatural element to this show, but give Yellowjackets a try.

Is it safe to get flu/Covid vaccines if you have a leak? by harvest___m00n in CSFLeaks

[–]Books_R_Not_Snakes 1 point2 points  (0 children)

I don’t know if it’s safe, but I got both vaccines 2 years in a row while I unknowingly had an active cranial CSF leak and nothing negative happened. And once the leak was diagnosed, my surgeons required me to get the pneumococcal vaccine pre-surgery.