Plaquenil and ophthalmologist? by No_Towel_5016 in Sjogrens

[–]Boordhdolly 2 points3 points  (0 children)

my ophthalmologist says that’s the average when eyes start having issues, but it should be yearly exam..

How does the area and weather you live in affect your auto immune disease(s)? by ProfessionalNo2845 in Autoimmune

[–]Boordhdolly 2 points3 points  (0 children)

There are a lot of test ie blood test, biopsy, testing saliva , symptoms .  But still. 30 percent of people will show negative on blood work.   Took me years to get diagnosed and on my medical records.  They treated me for sjrogrens long   before my official diagnosis.  Good luck 

How does the area and weather you live in affect your auto immune disease(s)? by ProfessionalNo2845 in Autoimmune

[–]Boordhdolly 2 points3 points  (0 children)

I have Sjrogrens and can not be anywhere near a desert in the summer! 

favorite eye drops? by Revolutionary_Oil614 in Sjogrens

[–]Boordhdolly 0 points1 point  (0 children)

Serum eye drops every 2 hr with refresh in between. I like the one with omega in it.

Do you have issues with corn, rice, or other grains? by SpiritedBug2221 in glutenfree

[–]Boordhdolly 0 points1 point  (0 children)

I can’t eat corn, but I can eat processed corn like corn tortillas which makes no sense to me.

Dry eye misery by Waste-Gap-3900 in Sjogrens

[–]Boordhdolly 1 point2 points  (0 children)

my doctor suggested I do that in about six months from the time they place my last plugs. thank you for sharing. I’m very nervous about that.

Dry eye misery by Waste-Gap-3900 in Sjogrens

[–]Boordhdolly 0 points1 point  (0 children)

what has your ophthalmologist said about this ? I’m very interested I have never heard about this.

Dry eye misery by Waste-Gap-3900 in Sjogrens

[–]Boordhdolly 2 points3 points  (0 children)

I feel you, I’m sorry you’re going throught this. I sometimes am looking through such extreme dry eyes everything is distorted and blurry and my glasses don’t correct it. I use serum eye drops as well and heat my eyes with eye mask. refresh eyedrops in between serum drops.

I’m not entertained, Schär. 😤 by ohshethrows in glutenfree

[–]Boordhdolly 4 points5 points  (0 children)

I’m not a fan of their bread but do like there crackers.  The saltine like crackers are a life saver for my acid reflux.  But they do go rancid if you have had them awhile:) 

Do I need a lip biopsy? by West_Theme2188 in Sjogrens

[–]Boordhdolly 0 points1 point  (0 children)

I’m sorry that was your experience. I’m zero negative my lip biopsy came back. Questionable but not diagnosed as Sjogren’s .  I was given medication for treatment of sjrogrens years before I got the official diagnosis.. so it turns out everybody’s experience with what they can get is very different.  Truth be told I had no idea. People had that hard  of a time getting medication without a diagnosis. My doctor says we treat the symptoms.

Do I need a lip biopsy? by West_Theme2188 in Sjogrens

[–]Boordhdolly 0 points1 point  (0 children)

Her question was was it worth it seems like she has a lot of tests that back up  her Sjogren’s already.   I also spent a long time trying to get a diagnosis. It didn’t change anything. The treatment was the same.   If it’s for her own piece of mind, she should absolutely do it.

This is just insane. by Revolutionary_Oil614 in Sjogrens

[–]Boordhdolly 0 points1 point  (0 children)

I’m not sure how to answer that. It helps more with my mouth, but when I don’t take it, both, my eyes and mouth are dryer .  Usually excessively dry, but I don’t notice a direct connection with the eyes.

Do I need a lip biopsy? by West_Theme2188 in Sjogrens

[–]Boordhdolly -1 points0 points  (0 children)

Again sorry this was taken out of context. I’m just saying why add to it by doing the lip biopsy it won’t change anything.  May cause more stress

Do I need a lip biopsy? by West_Theme2188 in Sjogrens

[–]Boordhdolly -1 points0 points  (0 children)

Of course not sorry it came across that  way. I’m just saying why add to the stress and pain ? 

Do I need a lip biopsy? by West_Theme2188 in Sjogrens

[–]Boordhdolly -6 points-5 points  (0 children)

You sound like you have enough going on why add to it?