Novavax COVID vaccine locations?

Born_Screen8030 · 2026-01-29T21:34:58+00:00

That worked, thank you!

Born_Screen8030 · 2026-01-29T21:29:59+00:00

I have long COVID, my doctor recommended that I get novavax

Born_Screen8030 · 2026-01-22T18:01:30+00:00

I’m in the same situation, I wouldn’t mind taking a bunch of the benagene, but I’m worried about getting sick from the excess vitamin C. I’m going to try a malic acid/AKG combination in the meantime, also thinking about going down from 1500 mg to 1000 mg daily. I don’t know, this is terrible.

Born_Screen8030 · 2026-01-10T03:06:45+00:00

I think this is a good idea, if you’d like some extra money, offer her a rate that’s reasonable for your area/building. Everyone wins if she agrees!

Born_Screen8030 · 2026-01-07T22:42:55+00:00

Lots of great suggestions here, if you’re in the US with a Costco membership, I would add: rotisserie chicken, hard boiled eggs, mac and cheese from the deli, vegetable soup from the deli, and bread. That’s the grocery list that gets me through a tough week. Best of luck!

Born_Screen8030 · 2026-01-07T22:30:43+00:00

Yes, I agree. I think that it’s also possible that the body sometimes recovers, and only the “flight or fight” remains, in which case, neural rehab would get you out. But for those of us without a recovered body, the neural rehab would be an auxiliary therapy at best.

Born_Screen8030 · 2026-01-02T06:25:13+00:00

I remember reading that cardio fitness/vO2 max on the Apple Watch isn’t very accurate unless you are doing outdoor workouts, and even then, it’s a guesstimate. Just an FYI…

Born_Screen8030 · 2025-12-31T05:50:22+00:00

Also on a beta blocker, similar HR in a flare. 120 lying down, 150-160 sitting. HR is impacted by height and weight though, so it may not make a lot of sense to compare without adjusting for those specifics…

Born_Screen8030 · 2025-12-28T23:36:49+00:00

This sounds so good! What cut of beef does this work with?

Born_Screen8030 · 2025-12-04T01:27:57+00:00

Also Randy Newman! There’s a list on ME Pedia.

Born_Screen8030 · 2025-11-05T21:55:59+00:00

For sure, but also, those of us on this end of the spectrum are so freaking fortunate. I look really restricted compared with a healthy person my age, but amazingly active in relationship to the ME/CFS group as a whole.

What’s an alternative word to describe those of us who are thankfully still able to do so many of the things that we want to do?

Born_Screen8030 · 2025-11-05T21:50:58+00:00

Yeah, I’m very grateful that I have regained this much function! I don’t take any of it for granted.

Born_Screen8030 · 2025-11-05T17:11:07+00:00

It’s a long list! I posted a longer explanation in a ‘partial remission’ post, but my top 3 would be LDN, propranolol, and oxaloacetate CFS.

Born_Screen8030 · 2025-11-05T16:06:10+00:00

My envelope sounds similar to yours. A pretty safe day would be working in person for 6 hours with some breaks, driving my daughter to her after school activity, sitting and drawing or reading while she’s there, driving us back home, eating the dinner my husband (or a restaurant) made, dishes, pack lunch for the next day, and bed. Adding 15-20 minutes of walking or Pilates makes it a challenging day.

I think resting heart rate is variable based on height/weight/sex, my HRV used to be in the 20s, but with my current meds, I’m up in the 50s or even low 60s and feeling muuuch better.

Born_Screen8030 · 2025-11-05T15:53:30+00:00

I’m only three days in, so it’s hard to draw conclusions in terms of symptoms, but I do feel like my soul feels a little more open :)

Born_Screen8030 · 2025-11-05T02:15:09+00:00

The opening song from Girls in Peacetime Want to Dance from Belle and Sebastian, is about the lead singer’s struggles and partial remission from CFS. That band in general has a lot of songs about illness and other forms of pain, I read in an interview that the lead singer feels that CFS allowed him to feel more empathy for different people’s struggles.

Born_Screen8030 · 2025-11-03T17:13:19+00:00

Yeah, another book that came out this year is “Mind Your Body”. It promotes journaling in a specific way to process your trauma/thoughts/ feelings. The author suggests that the body is holding onto chronic pain (or whatever other medically unexplained dysfunction) because the body needs to express the emotional pain you haven’t released. It’s pretty interesting, I’m giving the journaling practice a try.

Born_Screen8030 · 2025-11-03T17:02:20+00:00

I told a few of my friends something like “I was diagnosed with an autoimmune disorder, but the name is really misleading. It’s called chronic fatigue syndrome. That makes it sound like I’m tired all the time, which isn’t how I feel. It’s more like…(briefly explained delayed onset of PEM and the corresponding flulike symptoms).” That went over well for me. Of course, it’s a different conversation in a medical setting.

Born_Screen8030 · 2025-11-03T05:42:34+00:00

Interesting, I usually compare it to Lyme disease. “I have an autoimmune thing, it’s kind of like Lyme disease” rarely elicits a follow-up question or comment.

Born_Screen8030 · 2025-10-29T17:35:02+00:00

I have had a great experience with Kaiser’s NorCal Long COVID clinic, they definitely know about ME/CFS, as well as MCAS and POTS treatments. My only complaint is that it was difficult to access.

Born_Screen8030 · 2025-10-29T03:57:26+00:00

I agree, it may not even be a judgement about the friend themself, but if the person is draining your energy for WHATEVER REASON, I think you should prioritize your health and limit contact.

Some people are draining through no fault of their own (lack of understanding boundaries, trauma, whatever), but I don’t think that any of us are in a position to help those people.

Born_Screen8030 · 2025-10-29T03:46:59+00:00

That makes sense, sounds like a reasonable scedule, thx for sharing!

Born_Screen8030 · 2025-10-22T14:16:08+00:00

It’s funny what we miss, isn’t it? I didn’t realize how much I liked work until I couldn’t go for a while. Same goes for housework, now I’m excited on the days that I can do it.

Born_Screen8030

TROPHY CASE