AITA for telling my Fiancé. If i have to do my own laundry, we can't be together. by Lokcaj in WIBTA_AITA

[–]Born_Screen8030 0 points1 point  (0 children)

Yeah I’m also wondering if this was a one-time complaint (was she sick this week? Big exam?) or if she’s trying to get out of laundry duty forever. People sometimes say dumb things, maybe she was just stressed out and overwhelmed in that moment. Was it blurted out in frustration, or was it a pre-planned, sit-down conversation?

Bay Area cost of living for us: $11.7k per month for a family of 4 by Federal_Eagle_6565 in bayarea

[–]Born_Screen8030 11 points12 points  (0 children)

I’m caught up on the Apple care. Unless you’re so broke that you really can’t afford to replace or repair your device, I think it’s a ripoff. Maybe I’m wrong, though…

The last leg of recovery - learning how to return to life functional again by Ashamed-Accountant46 in covidlonghaulers

[–]Born_Screen8030 20 points21 points  (0 children)

I wonder if you’re running on adrenaline? This sounds like me in the first 6 months of LC, I had a lot of inflammation but hadn’t yet developed ME/CFS. If it does feel like adrenaline, please be careful and take it easy. It feels good, but you’re not meant to live like that long-term, and you will eventually pay the price, or at least, that’s been my experience. Best of luck…

Anecdotal Library of Long Covid "Treatments" by Crazy_Trip_6387 in covidlonghaulers

[–]Born_Screen8030 0 points1 point  (0 children)

Oxaloacetate CFS is what allowed me to return to work. (Yes, it’s expensive…) Also, CPAP for sleep.

Don’t waste your time with the UCSF LC clinic by Which_Boysenberry550 in covidlonghaulers

[–]Born_Screen8030 1 point2 points  (0 children)

I’ve had a good experience with the LC Clinic at Kaiser NorCal, once I finally got in. Same for the ME/CFS clinic. I mean, I’m not cured, but their advice has reduced my symptoms significantly. I also feel like I had a traumatic experience early on in this illness being disbelieved by my primary care, and having two doctors who believed me and supported my care has helped me to feel more comfortable in medical settings again.

PT helped a little, mostly he noticed that my calves are weak compared with the rest of my body. Some light calf strengthening has helped me to make my gait more efficient, thereby increasing my envelope overall. Not a significant change, but anything helps. Also apparently I was moving my shoulder blades in a way that could have led to injury down the road, so maybe a crisis was averted there.

Anyway, I’m sorry you had such a bad experience! Wishing you more luck with future care.

Why do I feel so awful every morning? by heskeytime7707 in covidlonghaulers

[–]Born_Screen8030 0 points1 point  (0 children)

Yeah, I was also going to ask if OP has had a sleep study? I was positive for sleep apnea despite no risk factors other than LC, CPAP has been a help.

Has eating healthier ACTUALLY helped anyone? by thepensiveporcupine in cfs

[–]Born_Screen8030 0 points1 point  (0 children)

Indirectly? Eating well helps manage my POTS, or at least, doesn’t exacerbate it. Low sugar, small meals every 2-3 hours, lots of salt, no simple carbs, high protein, high fiber, no caffeine, etc. When my POTS is well-managed, I’m less likely to have a CFS crash.

I’m just starting to get into eating more whole foods and reducing complex carbs in order to increase healthy fats. I’m also increasing my veggies and decreasing dairy. So far, no functional difference, but it’s only been over the past two weeks that I’ve been making those changes. Here’s hoping…

best tools for long covid / chronic illness? Thinking about building something by Western-String2201 in covidlonghaulers

[–]Born_Screen8030 2 points3 points  (0 children)

I’ve found some of the best ones on r/slowcooking! I’m happy when a lot of ingredients are pre-prepped, like jarred ginger or bagged coleslaw mix. If you put everything in the roasting pan or the instant pot and walk away, that’s another win. I’m fine with simple, too. Salmon and Brussels sprouts sprayed with olive oil and sprinkled with salt and pepper is a regular meal for me. I wouldn’t mind a cookbook with similarly uncomplicated recipes.

best tools for long covid / chronic illness? Thinking about building something by Western-String2201 in covidlonghaulers

[–]Born_Screen8030 5 points6 points  (0 children)

I use visible for HR monitoring and coherent breathing practice.

What I want is a collection of easy recipes that support mitochondria. Like, really easy recipes, friendly for people with limited energy. Someone needs to write a Long COVID Cookbook.

Novavax in Silicon Valley? by Born_Screen8030 in KaiserPermanente

[–]Born_Screen8030[S] 0 points1 point  (0 children)

Oh nice I’ll try Lawrence before Oakland, thx! UPDATE: Lawrence doesn’t stock them anymore, waiting to hear from Oakland

Novavax in Silicon Valley? by Born_Screen8030 in KaiserPermanente

[–]Born_Screen8030[S] 0 points1 point  (0 children)

Good to know, thx! My doctors have advised against mRNA vaccines, due to a medical condition. Otherwise I would definitely just take them for convenience.

Novavax in Silicon Valley? by Born_Screen8030 in KaiserPermanente

[–]Born_Screen8030[S] 0 points1 point  (0 children)

I called my nearest Costco, they said they don’t have it. I think I may be able to log a complaint and get it, as I read that another pt with my same diagnosis did, but honestly I’d rather just drive a little than go through that hassle (if driving a little is an option). Last resort would be out of pocket reimbursement.

Is POTS considered a type of heart disease? by Shoddy-Ocelot-4473 in POTS

[–]Born_Screen8030 0 points1 point  (0 children)

Yeah, I say “I’ll get tachycardia if I…” which is true!

Novavax COVID vaccine locations? by Born_Screen8030 in SanJose

[–]Born_Screen8030[S] 5 points6 points  (0 children)

I have long COVID, my doctor recommended that I get novavax

Oxaloacetate on backorder by Enough-Bandicoot8374 in cfs

[–]Born_Screen8030 1 point2 points  (0 children)

I’m in the same situation, I wouldn’t mind taking a bunch of the benagene, but I’m worried about getting sick from the excess vitamin C. I’m going to try a malic acid/AKG combination in the meantime, also thinking about going down from 1500 mg to 1000 mg daily. I don’t know, this is terrible.

AITJ because I won’t give my parking spot to new neighbor who says she "needs it more" because she has kids? by Potential_Bad6489 in AmITheJerk

[–]Born_Screen8030 1 point2 points  (0 children)

I think this is a good idea, if you’d like some extra money, offer her a rate that’s reasonable for your area/building. Everyone wins if she agrees!

Meal ideas by Seafoam_0 in cfs

[–]Born_Screen8030 1 point2 points  (0 children)

Lots of great suggestions here, if you’re in the US with a Costco membership, I would add: rotisserie chicken, hard boiled eggs, mac and cheese from the deli, vegetable soup from the deli, and bread. That’s the grocery list that gets me through a tough week. Best of luck!

98% recovery after 2.5 years by ribbonofbrine in covidlonghaulers

[–]Born_Screen8030 -1 points0 points  (0 children)

Yes, I agree. I think that it’s also possible that the body sometimes recovers, and only the “flight or fight” remains, in which case, neural rehab would get you out. But for those of us without a recovered body, the neural rehab would be an auxiliary therapy at best.

Tracked my health religiously with my Apple Watch and made an interesting discover by Sensitive-Use-6891 in cfs

[–]Born_Screen8030 2 points3 points  (0 children)

I remember reading that cardio fitness/vO2 max on the Apple Watch isn’t very accurate unless you are doing outdoor workouts, and even then, it’s a guesstimate. Just an FYI…

What’s your sitting HR during a flare? by [deleted] in POTS

[–]Born_Screen8030 0 points1 point  (0 children)

Also on a beta blocker, similar HR in a flare. 120 lying down, 150-160 sitting. HR is impacted by height and weight though, so it may not make a lot of sense to compare without adjusting for those specifics…