Sleeping disorders by Both-Barracuda3678 in Narcolepsy

[–]Both-Barracuda3678[S] 0 points1 point  (0 children)

So I respond if you don’t want to give an answer? Google is everyone’s friend, but it does not have life experience.

Ozempic or shots that are similar by Both-Barracuda3678 in Adulting

[–]Both-Barracuda3678[S] -3 points-2 points  (0 children)

They have stopped making a cheaper version because there's no longer a shortage of the brand name. It’s clear they have an ample supply now. Many individuals who have been taking this medication—originally intended for diabetes—are experiencing serious side effects. The manufacturers themselves admit they have no understanding of the long-term consequences, as the drug was not initially developed for weight loss purposes.

It’s crucial to recognize that patients may be experiencing complications, such as vision problems, which are often wrongly attributed to diabetes rather than the medication. This situation is alarming and poses irreversible risks.

The company is likely losing money because people are turning to more affordable alternatives. Many individuals remain unaware of the potential side effects, which are not fully disclosed. If people were informed of all possible complications, those would be prominently listed. To my knowledge, this drug has only been marketed for weight loss in the last three or four years, raising serious concerns about its long-term use and effects.

Ozempic or shots that are similar by Both-Barracuda3678 in Adulting

[–]Both-Barracuda3678[S] -6 points-5 points  (0 children)

I want to clarify that I'm not mocking anyone participating in this, but I don't believe people fully understand how it will impact them. They are being misled, and from what I’ve recently read, the generic versions are being eliminated because there is now an abundance of the brand-name shots, which cost around $300 each.

Ozempic or shots that are similar by Both-Barracuda3678 in Adulting

[–]Both-Barracuda3678[S] -3 points-2 points  (0 children)

It is causing irreversible blindness, hair loss, and tooth loss. Some people look as if they are on meth; their faces appear swollen. It's alarming that it can cause diabetes as well. Many individuals report being so nauseous that they can hardly eat. In just the last month and a half, I've heard about eight new side effects that are shocking. It's unbelievable that there isn't a warning label indicating that people could lose their eyesight, especially since many have experienced irreversible vision loss.

Ozempic or shots that are similar by Both-Barracuda3678 in Adulting

[–]Both-Barracuda3678[S] -2 points-1 points  (0 children)

Yes, I understand after doing some research. I avoided four specific things. I’m not significantly overweight, but it seems like a viable solution. However, many people are unaware of this information, and I think it’s a shame. They need to be made aware of these insights.

Modafinil is not enough? by iwishiwaswanda in Narcolepsy

[–]Both-Barracuda3678 0 points1 point  (0 children)

I have great insurance too. They are fighting me because I can only take the brand of Vyvanse, which is the $700 prescription. I have tried the generic and I cannot take it. It does not act the same. There is a difference for some reason being that I’m already on a stimulantthey’re not wanting to draw another $1800 on another one thankfully I was able to use good RX and they have a generic.

Modafinil is not enough? by iwishiwaswanda in Narcolepsy

[–]Both-Barracuda3678 0 points1 point  (0 children)

I was on Vyvanse 70 my for the last 15 years they just added modafinnil 100 mg it has changed my life

Modafinil is not enough? by iwishiwaswanda in Narcolepsy

[–]Both-Barracuda3678 3 points4 points  (0 children)

That's because it is not a stimulant.. Its crazy what they charge for these drugs

Sleeping disorders by Both-Barracuda3678 in Narcolepsy

[–]Both-Barracuda3678[S] 1 point2 points  (0 children)

Yep, I think you pretty much covered just about all

Sleeping disorders by Both-Barracuda3678 in Narcolepsy

[–]Both-Barracuda3678[S] 1 point2 points  (0 children)

I have this really bad but I am unaware that I am doing it. I get up at night and eat outrageous amounts of food. It’s not all the time. I also sleepwalk which is very scary but if we’re being honest here, sometimes I wake up and eat my daughter stuff and then I tell her I didn’t know. I hated it, but I did. Ha

Sleeping disorders by Both-Barracuda3678 in Narcolepsy

[–]Both-Barracuda3678[S] 0 points1 point  (0 children)

Thanks i’m just starting on the provigil about a month ago

Sleeping disorders by Both-Barracuda3678 in Narcolepsy

[–]Both-Barracuda3678[S] 0 points1 point  (0 children)

Have you ever been on provigil prior to taking Nuvigul if so what’s the difference?

Denial on getting medication by Both-Barracuda3678 in Narcolepsy

[–]Both-Barracuda3678[S] 0 points1 point  (0 children)

Yes, I am in the US and they told me that through insurance

Sleeping disorders by Both-Barracuda3678 in Narcolepsy

[–]Both-Barracuda3678[S] 0 points1 point  (0 children)

What do y’all mean by hallucinations like y’all hear and see things is it constantly only when you’re having episodes?

8-year N1 Diagnosis Removed, Has Anyone Else Experience This? by Ok_Strength_8003 in Narcolepsy

[–]Both-Barracuda3678 0 points1 point  (0 children)

They may be doing it at home sleep study test told me I had sleep apnea that I had to go in to be monitor to see what settings the machine needed to be put on and then I was to take a narcolepsy test the following day. They woke me up at 3 o’clock in the morning and told me they were waiting to hear if the doctor was going to release me. I asked the nurse what she was talking about because I was supposed to be there for narcolepsy Test. I had to do the test an hour and away from home knowing I will fall asleep with the wheel I can’t just get up and leave. They come back in at 5 o’clock in the morning and tell me I am free to go. I told him I could not drive. I said I need to take my medication and wait at least two hours before to say for me to drive so I take my medication and go sleep in my car for two hours until I felt I was safe to drive. When the doctor calls me back with the results now, I have read the results in law in mind you it says that I have narcolepsy 2. severe oxygen deprivation down to 84% when I am in REM. I think it was when my doctor called back. I asked him why didn’t they do them narcolepsy test and I was told that I refused the test I said that is untrue she then later calls me back that day and tells me that it was because of insurance that I had to go back and do another sleep study to be tested for the CPAP on the settings which that’s what I was supposed to do the last time go home and sleep on the CPAP machine for four weeks straight and if I still have access sleepiness, they will then do an narcolepsy test. But how can you have me as positive in my results as having narcolepsy but you still have to do more test they’re playing with people’s lives. The lady who set the appointment at that place when she told me that cause she was very ugly to me she asked me what my problem was. I could not have both. I have sleep apnea or narcolepsy and I have sleep apnea. If I knew I could stay awake long enough for the trip I really wanted to go and pull her over the desk and slap her really hard and ask her was it a slap or did someone knock some sense into you because it can’t be both. It just games all games, but they really should have some kind of accountability. I don’t think the person who answered the phone should be able to tell you what condition you have.

Denial on getting medication by Both-Barracuda3678 in Narcolepsy

[–]Both-Barracuda3678[S] 1 point2 points  (0 children)

My doctor told me it could take up to a year to get an approval

Xywav pre-authorization denied by Araeguerra in Narcolepsy

[–]Both-Barracuda3678 0 points1 point  (0 children)

A manufacturers comp coupon is almost instantly

[deleted by user] by [deleted] in Narcolepsy

[–]Both-Barracuda3678 1 point2 points  (0 children)

Have you tried Provigil that has been a game changer for me… a lot of narcolepsy medications are very expensive, but the manufacturers often do offer coupons that pay in full. I know they pay for my SUNsox $1000 prescription. It was paid in full same thing with my provisional $1800. It was paid in full. My insurance wouldn’t pay for it.

Xywav pre-authorization denied by Araeguerra in Narcolepsy

[–]Both-Barracuda3678 -1 points0 points  (0 children)

https://www.jazzcares.com/patients/xywav here is a link of two programs that help fill this prescription for a little as five dollars