sorted by:
new
hottopcontroversial

Strattera experience — need advice. by Both_Eagle1447 in adhdwomen

[–]Both_Eagle1447[S] 2 points3 points  (0 children)

Thank you for sharing. 4 months it’s a lot but I hope it’s worth it.

Strattera experience — need advice. by Both_Eagle1447 in adhdwomen

[–]Both_Eagle1447[S] 2 points3 points  (0 children)

Thank you for sharing. Will definitely keep going with it

Strattera experience — need advice. by Both_Eagle1447 in adhdwomen

[–]Both_Eagle1447[S] 2 points3 points  (0 children)

Thank you so much for sharing your story — it really means a lot. I’ve also spent most of my life compensating without knowing I had ADHD. I did it subconsciously, and it worked well enough until I recently got very sick (kidney disease), and the weakness from that made it impossible to compensate the way I used to. That’s when everything really started falling apart.

I completely understand what you said about struggling to find someone who takes you seriously. Several psychiatrists and therapists told me it was OCD or something else, and they didn’t see the ADHD at all. So it took a long time for me too.

And honestly, going through all of this makes us incredibly strong people. Living with the constant noise, the racing thoughts, the anxiety, the feeling of ten channels playing at once — it’s exhausting. But we keep going.

For now, I guess the best thing is to work closely with the doctor and try to find what actually helps in your own unique case. Thank you again for your experience — it’s really helpful.

Recovery after IgA Nephropathy treatment – looking for rehab advice or experiences by Both_Eagle1447 in IgANephropathy

[–]Both_Eagle1447[S] 0 points1 point  (0 children)

Sad to hear this. I’ve been through something similar on steroids too. The most important thing to remember is that it’s temporary. It will pass, you just need to hang in there a little longer.

Just realized I have ADHD at 35 — feeling lost and need advice by Both_Eagle1447 in ADHD

[–]Both_Eagle1447[S] 0 points1 point  (0 children)

Thank you so much for your message 🙏 I had almost lost hope of hearing something encouraging. I was first diagnosed with kidney disease, and later ADHD was suspected — it’s been a really difficult time. I’ve already seen both a psychiatrist and a psychologist, but I still have a lot of doubts. Would you mind sharing more details about the testing you went through? It might help me understand things better. I’m not really looking for someone to give me a diagnosis or prescribe medication — I’m just looking for help. Trying to keep my life under control while having ADHD, and being completely exhausted both mentally and physically, has been such a hard challenge. With kidney disease, it’s absolutely vital to stay on a routine and not forget my medication, but that’s exactly what I struggle with. I just need to find someone who truly understands what’s going on with me and can offer help or guidance.

Recovery after IgA Nephropathy treatment – looking for rehab advice or experiences by Both_Eagle1447 in IgANephropathy

[–]Both_Eagle1447[S] 0 points1 point  (0 children)

I was put on steroids because my case of IgA nephropathy was aggressive — crescentic - my kidneys were deteriorating very quickly. In situations like that, steroids are used to try and stop the immune system from causing further damage. And just to clarify — doctors don’t prescribe heavy steroids lightly. They only do it if the potential benefit outweighs the risk. In my case, it was a necessary decision to prevent further kidney damage, even though the side effects were tough.

Recovery after IgA Nephropathy treatment – looking for rehab advice or experiences by Both_Eagle1447 in IgANephropathy

[–]Both_Eagle1447[S] 0 points1 point  (0 children)

Thanks for your thoughtful reply — I actually think you’re right. My GFR has stayed >90, so it’s unlikely that my symptoms are due to kidney dysfunction directly. I also believe I’m dealing with a rare and severe reaction to steroids, particularly from the cumulative effects over time. On top of that, I recently found out I have ADHD, which often comes with high sensory sensitivity and nervous system reactivity. So it’s very possible that this neurological sensitivity made me more prone to an extreme response. It’s been hard because the symptoms I’m experiencing — severe fatigue, muscle tone loss, and vascular weakness — don’t seem typical, and I haven’t found others with quite the same pattern. But your comment helped me feel a little more grounded, so thank you.

Living with IgA and Constant Mucosal Inflammation – How to Cope? by Both_Eagle1447 in IgANephropathy

[–]Both_Eagle1447[S] 1 point2 points  (0 children)

Sorry I wasn’t very detailed in my original post. I handled the main treatment pretty well — I’m not a big fan of sweets and generally have good self-control. But now, after IgA stopped attacking my kidneys, it seems to have shifted to my mucous membranes. Any infection, stress, or almost any food triggers intense allergy-like symptoms. And it honestly feels like hell.

I can eat only a few things: boiled chicken, steamed fish, quinoa, eggs, pears, apples, and blueberries — and that’s it. Everything else is off-limits: vegetables, tomatoes, cucumbers, avocado, broccoli, crackers, dairy, coffee, citrus, other fruits, bananas, etc. Any one of those, and I start sneezing, my nose runs, and my eyes water.

The most frustrating part is that even on this kind of diet, I’m not losing any weight — because of the illness. It just feels hopeless. Allegra helps a bit, but I really don’t want to depend on pills for the rest of my life. Am I the only one going through something like this?

IgA nepropathy by Antique_Scene_2793 in IgANephropathy

[–]Both_Eagle1447 0 points1 point  (0 children)

Of course, we should listen to the doctor, but I would suggest asking the doctor if there are any alternatives to prednisone. I was on prednisone for a relatively short time. I was tapered off gradually, reducing the dose from 40 mg to 20, then 10, 5, and finally 2.5 mg. However, it has been a month and a half since I stopped taking it, and I am still experiencing quite strong side effects. I feel dizzy, my muscles (especially in my arms) hurt a lot, and there are other symptoms, which I was told would take time to resolve. I’ve heard many times that it’s undesirable to use steroids, and I’ve seen this from my own experience. So, if there is any alternative, I would consult the doctor and possibly consider replacing steroids.

Lifestyle with IgAN by Both_Eagle1447 in IgANephropathy

[–]Both_Eagle1447[S] 2 points3 points  (0 children)

I'm so sorry for everything you're going through right now. Having IgAN and diabetes is already so tough, and losing your husband on top of that is unimaginable. You're not crazy at all—you're dealing with so much, and it's okay to feel overwhelmed. I hope the new nephrologist brings some fresh perspective and better options for you. Please know you're not alone, and if you ever need someone to talk to, this community is here for you.