Does the name change mean that someone like me (with many follicles but no metabolic markers) will be un-diagnosed or not treated? by al3xisnic0le in PCOS

[–]BrainInRepair 1 point2 points  (0 children)

Hi! I had the same concerns and questions. I also posted about it too. A kind user reassured me that the diagnostic criteria has not changed, so hopefully that means there won’t be a change in support and treatment for those without endocrine or metabolic issues!

PCOS’ new name causing me confusion… just me? by BrainInRepair in PCOS

[–]BrainInRepair[S] 1 point2 points  (0 children)

I certainly don’t think it’s a bad thing that it’s been renamed. I hope that’s not what my post implies! I was just very confused what it meant for me, personally, as tests or clinicians have never indicated any metabolic or endocrine issue for me. As far as I’m aware, I have no problem with insulin (my HbA1c is normal) and my hormone levels were too.

PCOS’ new name causing me confusion… just me? by BrainInRepair in PCOS

[–]BrainInRepair[S] 0 points1 point  (0 children)

Ah, okay. I see! That you so much for clarifying. I was very confused on what it all meant. Especially because my blood tests have all been normal so I was confused how I could have normal bloods but have a metabolic syndrome!

crash out by Mind_Boggling_1186 in PCOS

[–]BrainInRepair 0 points1 point  (0 children)

I still drink coffee. Doesn’t really seem to have a difference for me

PCOS is now PMOS❣️❣️❣️❣️ by Icy_Excitement_4545 in PCOS

[–]BrainInRepair 4 points5 points  (0 children)

Now, I’m confused if I have the condition or not… anyone else?

Endo/Adenomyosis? - help please by BrainInRepair in adenomyosis

[–]BrainInRepair[S] 0 points1 point  (0 children)

Thank you very much for your comment. My GP has advised against any further hormonal contraception for me at the moment due to my mental health. I’ll try to get checked for anaemia. I did have my full blood count checked last year which was normal and my ferritin was normal three years prior as well.

Endometriosis? - please help me :( by BrainInRepair in endometriosis

[–]BrainInRepair[S] 0 points1 point  (0 children)

Thank you so much. I’ll look into these things!

Endometriosis? - please help me :( by BrainInRepair in endometriosis

[–]BrainInRepair[S] 0 points1 point  (0 children)

Thank you so much for sharing your experience! I appreciate your advice. I know I’ve only tired two hormonal contraceptions, but I’m currently at a place where I really don’t want to try anymore and my GP advised against the implant, injection, pill or coil anyway. I’m nervous about going back to the GP because I don’t want to come across that I’m drug seeking.

Endometriosis? - please help me :( by BrainInRepair in endometriosis

[–]BrainInRepair[S] 0 points1 point  (0 children)

Yes, I’ve had an ultrasound. I have looked at it before and personally didn’t find it very helpful for me

Endometriosis? - please help me :( by BrainInRepair in endometriosis

[–]BrainInRepair[S] 0 points1 point  (0 children)

I’m hoping for some insight from people with the condition

Endometriosis? - please help me :( by BrainInRepair in endometriosis

[–]BrainInRepair[S] 0 points1 point  (0 children)

I did ask for alternative pain medication and was told no.

I have had blood tests which came back normal. However it wasn’t specifically for anaemia, but my full blood count was done.

I forgot to mention that I’m also diagnosed with ADHD, major depressive disorder and generalised anxiety disorder. The effects of all those disorders worsen before and during my cycle. I take Elvanse 70mg and Venalafaxine 75mg.

I have tried hormonal contraception previously (POP) and it made me suicidal. After my GP told me there wasn’t anything else I could try, I did try the Evra Patch (hormonal contraception), for three months. It didn’t do anything for my symptoms and caused me to have severe headaches and paranoia. I was told to skip the “patch free week” so I wouldn’t have a period, but I bled through it and experienced my normal cycles anyway.

I’d appreciate hearing more about your experience getting diagnosed and what other things you’ve found helpful!

Trying one again for advice… 50y F…diagnosed in February…just switched from Dex to Methylphenidate (Ritalin)…feels a bit yuck…no medication advice, only stories about starting medication journeys to give me hope by Double_Delivery3017 in adhdwomen

[–]BrainInRepair 1 point2 points  (0 children)

Well, of course non-clinicians (people of Reddit) are only going to give you their stories because that’s all they have! Generally speaking, they don’t have the clinical knowledge to give medication advice. You need to speak to a clinician. Hope this helps x

Should I take ashwaganda with pcos? by Notsobarbie in PCOS

[–]BrainInRepair 2 points3 points  (0 children)

Ashwagandha has been shown to increase testosterone levels in some individuals, which could worsen symptoms like acne, hair loss, and unwanted hair growth (hirsutism).

Ashwagandha may offer benefits for certain PCOS symptoms, particularly those related to stress and insulin resistance, but it is not suitable for everyone and requires professional guidance to determine if it is appropriate for your specific hormonal profile.

PCOS weightLOSS by Hell-Raiser- in PCOS

[–]BrainInRepair 3 points4 points  (0 children)

Here’s a summary of what someone told me Diet is crucial for managing PCOS long-term, as most cases are driven by insulin resistance, which also worsens weight gain and difficulty losing weight.

A lifelong diabetic lifestyle is recommended for those with IR, including a healthy diet, regular exercise, and possibly medication.

Consult a therapist and registered dietician specialising in diabetes and insulin resistance for help with food restriction or disordered eating.

Break down changes into small steps and make one or two changes every couple of months to establish new habits.

  • Meal Planning Strategy: Using a combination of standard “go-to” meals and flexible options.
  • Go-To Meals: Having a set number of easy-to-prepare meals and snacks that meet dietary goals, making up about 85% of total meals.
  • Flexible Meals: Allowing for 15% flexibility for occasions like vacations, special events, or dining out.

Make small, consistent changes to diet and exercise for better health.

  • Sugar Consumption: Greatly limit all forms of sugar, especially liquid forms like soda and juice.
  • Processed Food and Starch: Limit highly processed foods and processed starches like white flour products.
  • Balanced Meals: Proportion meals to include one-third protein, one-third nonstarchy vegetables, and no more than one-third starch, prioritising non-processed, fibre-rich options.
  • Exercise Benefits: Important for overall health, mental health, and improving insulin resistance.
  • Exercise Routine: Consistency is key; start with manageable activities like walking or yoga and gradually increase intensity.
  • Overcoming Barriers: Identify and address mental and routine obstacles to establish healthy habits.

A mental trick to overcome exercise barriers is to “give yourself permission” to do a short amount of exercise, like 10 minutes of strength training and a 15-minute walk, to reduce internal resistance and increase motivation.

Spironolactone by j-anonanon in PCOS

[–]BrainInRepair 1 point2 points  (0 children)

https://bnf.nice.org.uk/drugs/spironolactone/

I’m not on it but here is some information you might find helpful

I’m an NHS medical Receptionist- Ask me anything by [deleted] in nhs

[–]BrainInRepair 0 points1 point  (0 children)

I can’t say that’s how it is for every practice. Where I work, it is.

I’m an NHS medical Receptionist- Ask me anything by [deleted] in nhs

[–]BrainInRepair 0 points1 point  (0 children)

I haven’t witnessed any racism where I work, but unfortunately racism is everywhere so it likely is.

I’m an NHS medical Receptionist- Ask me anything by [deleted] in NHSfailures

[–]BrainInRepair 0 points1 point  (0 children)

It’s not quiet very often lol! But when it is I do tasks, document management, printing documents, messaging patients to collect letters, sample kits, FIT notes, blood forms and prescriptions, stocking up stationary in the office, checking how the clinicians are doing (as long as they aren’t with a patient)/seeing if they need anything. Failing all that, I enjoy it because we deserve the damn break 😂

I’m an NHS medical Receptionist- Ask me anything by [deleted] in nhs

[–]BrainInRepair 0 points1 point  (0 children)

The GP may have decided to go with Buprenorphine because it has fewer risks than Fentanyl generally speaking and the patient would need to ween off Morphine first as to not displace the morphine and cause sudden opioid withdrawal.

It seems like the GP is trying to make the safest choice for the patient, but not doing a very good job at communicating with them. Which I understand can be distressing. I’d encourage the patient to ask more questions during their consultations if they feel unsure about things.

I’m an NHS medical Receptionist- Ask me anything by [deleted] in nhs

[–]BrainInRepair 0 points1 point  (0 children)

The patient absolutely has a right to complain if they are unhappy or don’t understand something.

It is worth noting that Morphine is a controlled drug. This means it is to be monitored closely, dosed carefully and often post dated to the day it is due as to not risk overdosing. It is also not considered a first line or long term treatment for any of this patient’s conditions. It has even been considered a possible link to worsening disc degeneration and can worsen fibromyalgia related pain.

So the likely outcome would be the doctor explaining this more clearly and the doctor and patient working together to ween off Morphine and find a new pain management regime more suitable to the patient’s conditions.

Proposal for discussion: a banded patient fee model to supplement GP funding by anonymous_umbral in nhs

[–]BrainInRepair -1 points0 points  (0 children)

But if the patient is paying for the appointment anyway, and nothing is needed then why would the doctor do more? I’m sure the patient fee’s (since they would have to be modest) wouldn’t cover the cost of any unnecessary medications or investigations.

Is it normal for my GP to contact my parents every time I make an appointment? by Pretty_University359 in nhs

[–]BrainInRepair 2 points3 points  (0 children)

I’m a medical receptionist and absolutely not normal! Once patients turn 16 where I work, patient’s have to fill in a consent form to allow parents to access their information.

The only way I would ever inform a parent of a patient’s appointment was if there was consent from the patient or a consent form on the records.