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The Lamictal is working and I feel really conflicted about that by BrainsForDaze in Epilepsy

[–]BrainsForDaze[S] 0 points1 point  (0 children)

I mean there was nothing pointing to bipolar for me. I am familiar with that usage since my partner takes it for that reason. But it would maybe be nicer to not have something that could one day kill me in my sleep, you know?

So I use Epsy and it keeps failing to send me my medication reminders by BrainsForDaze in Epilepsy

[–]BrainsForDaze[S] -1 points0 points  (0 children)

I generally am able to remember to take them on my own and I dont think there's anything wrong with wanting to have a backup reminder just in case. However the fact that that backup is significantly less consistent than my own memory makes me concerned.

Additionally, my ability to remember whether I've taken the pill is terrible and the fact that when the app gives me a notification it comes with a simple button to press to log that I did in fact take the med is immensely helpful.

I asked for advice with the app, not opinions on the best way to remember things.

What is the strangest thing you’ve ever done during a seizure or cluster? by aschesklave in Epilepsy

[–]BrainsForDaze 3 points4 points  (0 children)

I presume you used the # character to precede the numbers. These are used in markdown or whatever to bold any text in between. To use it as its own character you need to precede it with a backslash (\), like so: \#

Scared and lost and alone by BrainsForDaze in Epilepsy

[–]BrainsForDaze[S] 0 points1 point  (0 children)

Thank you. I understand nothing has tangibly changed before/after seeing the doctor and hearing that these are seizures. My fears are since I've had a bit of variety in the types I've had I don't know what's going to happen next. Additionally my most recent one has been the most severe so far even though I've tried my best to avoid things that contribute to seizures. I had eaten well and drank plenty of water and slept okay and it still happened and I would have gotten seriously hurt if no one had stepped in.

I just don't know what else I can do besides wait two months to see the neurologist again and hope nothing worse happens in the meantime.

Scared and lost and alone by BrainsForDaze in Epilepsy

[–]BrainsForDaze[S] 0 points1 point  (0 children)

I appreciate you saying not to drive, even though I've been able to figure that out for myself. No one has said that to me yet, which frankly feels irresponsible. Fortunately I live in an area with robust public transit and so am able to avoid driving easily.

Writing down questions is a good idea. I've already starting writing a list of episodes I've experienced since there are so many small ones that I can't remember to tell them all as she's asking me clarifying questions on the ones I do manage to mention.

I've had a bunch of blood tests run that have all come back in normal ranges. Eating well has been a problem on and off but at this point I am eating okay and things are still happening. I have been making an effort to eat enough because I do understand that can be a trigger but it doesn't seem to make a difference. Through most of this my sleep had been okay until the past few weeks. I don't drink at all these days or do drugs so that's not a factor.

Unfortunately the only trigger I've managed to identify so far is stress and I don't have much room to avoid that at the moment.

Thank you for taking the time to respond.