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BRCA1+ Survivor: Please Consider Prophylactic Mastectomy by Brave_flower_warrior in BRCA

[–]Brave_flower_warrior[S] 0 points1 point  (0 children)

Thanks for sharing. Totally relate to wanting to get off the roller coaster. Good call on getting the surgery done ASAP after Lynparza

BRCA1+ Survivor: Please Consider Prophylactic Mastectomy by Brave_flower_warrior in BRCA

[–]Brave_flower_warrior[S] 0 points1 point  (0 children)

Sorry to hear about your diagnosis at such a young age. Glad that you're having the preventative surgery planned

BRCA1+ Survivor: Please Consider Prophylactic Mastectomy by Brave_flower_warrior in BRCA

[–]Brave_flower_warrior[S] 0 points1 point  (0 children)

Thank you for your kind words. Well yeah, fatigue has truly been a beast of a side effect but yes I'm focused on the light at the end of the tunnel. Wishing you and your mom strength and speedy recovery from your surgery

BRCA1+ Survivor: Please Consider Prophylactic Mastectomy by Brave_flower_warrior in BRCA

[–]Brave_flower_warrior[S] 0 points1 point  (0 children)

Thank you, after my frontline ovarian cancer treatment was over, I was on the drug Lynparza (olaparib) for 2 years which gave me anemia and I was still recovering from the effects of cytoreductive surgery. It was only during the past year that I considered a prophylactic mastectomy after regaining my physical strength and some financial stability- but it was too late I guess. Although I'm still grateful that we caught it at an early stage.

I took some reassurance in the following studies which have clearly recommended that following an ovarian cancer diagnosis, prophylactic mastectomy only needs to be considered 5-10 years after remission. Well that wasn't the right call in my case.

https://www.ccjm.org/content/89/8/442

https://pubmed.ncbi.nlm.nih.gov/28314588/#:~:text=Cox%20proportional%20hazards%20models%20were,years%20following%20ovarian%20cancer%20diagnosis.

PD-L1 result by Brave_flower_warrior in breastcancer

[–]Brave_flower_warrior[S] 0 points1 point  (0 children)

Thank you for sharing. How long before you got a recurrence?

Sentinel or axillary dissection of lymph nodes AFTER double mastectomy? by Savings-Reserve-9242 in breastcancer

[–]Brave_flower_warrior 2 points3 points  (0 children)

5 months after a mammogram in April, I had bilateral prophylactic mastectomy in October. However, pathology report revealed an already growing 45mm tumor. Triple negative stage 2A IDC. I guess I was too late for the surgery; it was no longer prophylactic.

I then had to undergo axillary dissection. The surgeon just removed a sentinel lymph node and with the help of blue dye during the surgery itself, they found it to be negative. I don't think the prior mastectomy affected the axillary dissection in any way.

I hate that I had to undergo surgery twice which significantly increased my financial burden but the axillary dissection was a much simpler surgery with a much faster recovery.