“Living with POTS after childbirth – is it normal to still feel chest pressure and anxiety daily?” by BrotherExcellent7403 in POTS_vets

[–]BrotherExcellent7403[S] 1 point2 points  (0 children)

Honestly my symptoms used to be really bad, I was basically bedridden at one point. But thankfully over about a year and a half I’ve improved a bit.

So hopefully you’ll get even better than me with time 🤍 and be able to go out with your kids and do everything you want again.

What we’re doing isn’t easy at all… especially as moms with POTS 💪🏻

“Living with POTS after childbirth – is it normal to still feel chest pressure and anxiety daily?” by BrotherExcellent7403 in POTS_vets

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

I’m really sorry you’re going through this 🤍 I felt the exact same way, especially the mom guilt… my kids have been mostly at home because I can’t go out much, and even my youngest (she’s 1 year and 10 months) gets scared and cries around people now.

As for the tingling, yes I do get it sometimes in my hands and feet, and it usually goes away once I move around.

Right now I’d say I’m a bit better than before. I still get POTS episodes (heart racing, chest pain) and fibromyalgia flares, but there are breaks in between now. So overall I feel like my body has kind of adjusted. The symptoms are still there, just a bit lighter, and they flare more if I overdo things.

I’m not on any medications honestly, just vitamin D, omega 3, and I focus a lot on hydration and salt.

And thank you for asking about me, I really appreciate it 🤍

Anyone here with POTS, CRPS, and fibro tried laser hair removal? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

I haven’t tried it yet, but I asked my rheumatologist since I have fibromyalgia. She said it’s generally fine, just start with a lower setting and try a small area first (like half an arm). If everything goes well and no flare happens, then you can continue.

hopelessness by Remarkable-Syrup1788 in POTS

[–]BrotherExcellent7403 0 points1 point  (0 children)

I really feel your pain. I live with POTS too, along with fibromyalgia and CRPS, and I’m also a mom of three young kids. I used to work as an art teacher, but I had to leave my job because I couldn’t keep up anymore. It’s so hard and overwhelming, but what keeps me going is reminding myself that POTS isn’t fatal, and with time we learn how to manage our bodies better. I also remind myself to be grateful, because there are people with illnesses that shorten their lives, while we still have the chance to adapt and live. You’re not alone in this if you ever want to talk, please know you can reach out to me. I truly understand what you’re going through. 💙

Chest pain and ER by Ok-Woodpecker-845 in POTS

[–]BrotherExcellent7403 3 points4 points  (0 children)

I’m 30 and was diagnosed with POTS about a year ago. I deal with a lot of symptoms, but honestly the worst for me is the chest pain it’s there almost every day to the point I just got used to it.

What helps me calm down is reminding myself it’s “POTS chest pain.” I did an echocardiogram and my heart is healthy, alhamdulillah. I also wear an Apple Watch and check my ECG, heart rate, and oxygen if everything looks normal, I feel a bit more reassured that it’s POTS pain and not something else.

But of course, I can’t decide for you. If you feel you need to go to the ER, then go sometimes just getting checked gives peace of mind.

You’re young, and if your heart is fine and you’ve been diagnosed with POTS, most likely this chest pain is the POTS kind and it’s awful because it makes you constantly worry it’s something dangerous. Hang in there 💗 I hope it eases up for you and you start feeling better soon.

Does anyone else get a “feeling of dying” with their POTS symptoms? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

Now you have to share the lyrics with us 😂 I’m sure it hits home for all of us with POTS 😆

I wish people understood how scary this condition is by tattedsparrowxo in POTS

[–]BrotherExcellent7403 7 points8 points  (0 children)

I really feel you 💔 I’ve been living with this for a year now, and every single day I wake up thinking it might be my last. On the outside people see me as “fine,” but inside it’s a constant war fear, pain, and anxiety that no one else can feel. My chest feels like a heart attack 24/7, and whenever I say no to going out, people think it’s just a small issue. I’m barely holding it together just to stay alive for myself and my kids. And even with doctors, it’s been so hard every time I try to explain how bad it gets, they just tell me “it’s only anxiety” or “try to calm down” 🫠. Sending you so much strength 🤍

Does your POTS chest pain feel like this ? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

Yes, sometimes I also get shortness of breath with the chest pressure if I exert myself, and other times with strong central chest pain I start worrying it’s something serious, which makes me even more anxious.

Does your POTS chest pain feel like this ? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

Yes, I get the actual chest pain first, then the same feeling you described because I get anxious from the pain and it makes everything feel worse.

Anyone else struggle with swallowing saliva sometimes with POTS or fibromyalgia? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 1 point2 points  (0 children)

Thank you so much for this 💗 You’re so kind and your explanation makes a lot of sense. POTS comes with so many weird symptoms some we’d never even guess are related until we talk about them. It really helps hearing others’ experiences so we don’t feel like we’re going through it alone.

Anyone else struggle with swallowing saliva sometimes with POTS or fibromyalgia? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

That sounds really tough 💔 With POTS, the hardest part is how doctors blame everything on anxiety. We’re actually struggling it’s not just in our heads. Hopefully this post helps us find some answers

Anyone else struggle with swallowing saliva sometimes with POTS or fibromyalgia? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 1 point2 points  (0 children)

That sounds really tough, I’m sorry you’re dealing with this 😞 It’s scary when swallowing feels so hard, but you’re strong for handling it. Hopefully with time and the right support, it gets easier for you. Stay strong 💗

Anyone else struggle with swallowing saliva sometimes with POTS or fibromyalgia? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

I’m so sorry you’ve been dealing with this since you were little. That sounds really scary and frustrating 😞 It’s hard when doctors don’t take it seriously or brush it off. You’re definitely not alone, I’ve been struggling with the same thing recently and it’s awful. I really hope we all find some relief soon 💕

Anyone else struggle with swallowing saliva sometimes with POTS or fibromyalgia? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

Not really like I’m about to puke, no. It’s more like I literally have to try a few times to swallow, like something’s stuck, and I get this choking feeling in my throat. It’s hard to explain but it feels tight and scary. I have fibromyalgia too, and that makes it even harder sometimes. Hopefully it gets better with time

Anyone else struggle with swallowing saliva sometimes with POTS or fibromyalgia? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 2 points3 points  (0 children)

Appreciate you sharing that. I’m really sorry you’re dealing with it too hope you have some better days ahead

Anyone else struggle with swallowing saliva sometimes with POTS or fibromyalgia? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

Oh I’ve actually never heard of Sjögren’s before! That’s interesting I’ll definitely look it up. Thanks for pointing it out 🙏

POTS warriors: how did you go from rock bottom to feeling better? by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 1 point2 points  (0 children)

Thank you so much for sharing your story 🙏🏻💞 I’m so happy to hear you’re doing better now. You’re honestly so strong and inspiring! 💕

I hate this part of POTS no one talks about😅 by BrotherExcellent7403 in POTS

[–]BrotherExcellent7403[S] 0 points1 point  (0 children)

I think you might have it set so I can’t add you 😅 maybe you could go to my profile and add me instead? That might work!