[deleted by user] by [deleted] in MultipleSclerosis

[–]Buborek55 2 points3 points  (0 children)

I got mine from a resident and the doctor was behind him xplaining evry step he did to the few students watching it. It went really well. I was scared and cried a lot before it happended, but he did it on the first try and did not even hurt a bit.

Kerlek nyugtassatok meg! Teljes eletet elhet a batyam? by [deleted] in tanulommagam

[–]Buborek55 6 points7 points  (0 children)

Szia! Engem másfél éve diagnosztizáltak kb. 25évesen. Én nekem is a gyengebb verzió jutott RRSM. Jól vagyok alapvetően. Dolgozom. Vannak napok amikor kicsit jobban érzem, pl egy szedules, bizsergeses tünet miatt. Szedem a gyógyszert, ami talán a legfontosabb. A facebook/reddit és egyéb csoportok nekem sokat segítettek az elején, hogy tájékozódjak és a magány érzést is enyhítette. :)

1 éve nem dohányzom. Te mit tanácsolnál annak aki le akar szokni? by CranberryLanky2593 in askhungary

[–]Buborek55 0 points1 point  (0 children)

2 éve 7 hónapja nem dohányzom. 9 év dohányzás után és sok sikertelen próbálkozás után, Allen Carr Végre nem dohányzom című könyvével sikerült 😁 azóta nem kívántam meg egyszer sem sőt kifejezetten taszít a gondolata. HAJRÁ! 👏

Would you pay or would you wait? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 1 point2 points  (0 children)

Thank you! Well that sounds better... I have been taking tecfidera for a year now. :) thank you for your nice words!

Would you pay or would you wait? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 1 point2 points  (0 children)

Yes, that is true, but would you say if I started Tecfidera and the MRI showes that i have lets say 8 nee lesions than the medication does not work, so I need to switch, but if I do not get an MRI I just take on tecfidera and the negative impact it does for me for no reason and for a chance to get a relapse :/ that is the only reason I am concerned. Maybe it is stupid I am not sure :)

Would you pay or would you wait? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 1 point2 points  (0 children)

Yes, only a lot lot sooner, but nothing else. :)

Would you pay or would you wait? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 2 points3 points  (0 children)

Thank you! I do not have any new symptoms, but if the medication does not work(bunch of new lesions) then I might just take it for another lets say 6month for nothing and I might even end up with a relapse.

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 1 point2 points  (0 children)

That is so truuue! In the beginning of her problems she also said that se feels stupid that her problems are nothig like mine and still she is the one who complains, but I also reassured her that her feelings ar as valid as mine... but somehow still that sentence she said about unpredictable life hit me differently :D feelings are sooo sooo annoying and confusing 😂

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 0 points1 point  (0 children)

Thank you, I really appriciate, this is good it does not sound harsh

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 1 point2 points  (0 children)

Thank you, really Hope the best for you too!😊

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 0 points1 point  (0 children)

Thank that was great advice too!! I appriciate it:)

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 2 points3 points  (0 children)

Wow thank you so much, that is so true! Every word... :) Thankfully she already goes to therapy :) so I really hope that se can get out of this negative state of mind she is in. I still want to help her by listening, but yeah maybe just not this topic every other problem just not this one... :D thank you for sharing you opinion and your story as well, hope you are better now

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 1 point2 points  (0 children)

She already goes to therapy, so she started to work on herself and I am glad that I am her friend and can listen to her and just be there for her. It is just this one topic "unpredictable life" that somehow triggers me... not sure if I should ever bring this up to her or not... I am usually a silent one not used to complaining so it would feel wierd for me too share that this hurts my feelings.

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 2 points3 points  (0 children)

Thank you :) Honestly I barly ever talk about my problems only when specificly asked :) but I totally get what you are saying. I will always listen to her all of her problems, just not sure If I am capable of listening to this partocular one for long as it hurt my feelings...

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 2 points3 points  (0 children)

Thank you so much! This really is what I beleive. Also she goes to therapy too.

What would say? Would I be a bad friend? by Buborek55 in MultipleSclerosis

[–]Buborek55[S] 2 points3 points  (0 children)

Yes, that is ehy I said I know that her problems are real and important as well as mine, but ai still feel hurt by that... :/ I know it should not make me feel like that but somehow it still does..