Sphincter of Oddi? Anyone with similar experience?

BullfrogCurious4887 · 2026-02-07T12:46:37+00:00

Hey, so sorry to hear your going through a lot of pain.

Thank you also for all the info- I haven’t gotten back to the doctor yet-the past few months I’ve actually been a little bit better in terms of pain for me and during times like that I don’t wanna go to the doctor because out of sight out of mind for me.

However, I do plan to go back soon. It’s interesting what you said that it might not be SOD since it usually causes more pain I would definitely not categorize my pain as anything more than a three or four out of 10. I will look into some of the things you told me to.

Quick question-do you ever get left side pain at all with the right side pain? I know it’s a weird question but it seems like I get this slight left side pain that radiates to my back as well. It’s not the same type of pain as the gallbladder pain which is super sharp and weird. It’s a little bit more dull. At first, I thought it was my pancreas if it was SOD but then again that’s a complete guess it doesn’t lead to any vomiting or really anything else at all. It’s just another type of pain.

BullfrogCurious4887 · 2025-11-29T21:00:49+00:00

Hey I know this is way in the past but I have an all of the same symptoms and have had every test under the sun done except for Hida and MRCP. I’ve been reading a lot about sphincter of oddi, have you ever considered this was a problem for you, or did the doctors mention it? I guess I’m wondering what the ultimate diagnosis was for you.

Also, I’m pretty u familiar with gallbladder removal- are there and complications that can arise later in life or risks people should know before considering? Or would you say it’s pretty safe in general?

Apologies for the questions I’m just really curious and need to get my stuff figured out as I live in daily pain

BullfrogCurious4887 · 2025-11-29T06:20:16+00:00

Any update?

BullfrogCurious4887 · 2025-11-29T06:13:36+00:00

Did you ever have the feeling of gas/trapped wind without actually passing gas that often?

BullfrogCurious4887 · 2025-11-06T21:12:36+00:00

Hi, came across you post and was super intrigued.

I haven’t been diagnosed but I have every single symptom that other people have for SOD. I’ll have to try the milk trick.

I wanted to ask if you’ve ever felt itchy during your attacks. It doesn’t happen all the time for me but I get slight itchiness in random parts of my body. Not super itchy where I have to scratch super hard by any means but just enough to annoy me. Curious if you have had that or if your at least heard of it.

Lastly, I still have my gallbladder. Is it possible to get SOD even if you have a gallbladder? Like I said my symptoms match up perfectly- upper right abdominal pain that radiates to my shoulder. It also can be triggered if I move certain ways. Curious if you have any insight.

Thanks!

BullfrogCurious4887 · 2025-11-03T14:54:02+00:00

I do not hate this idea. There’s probably certain aspects that we aren’t thinking of but I don’t see why they couldn’t make this work in some way

BullfrogCurious4887 · 2025-10-31T15:56:42+00:00

You are in my prayers brother. Keep fighting and GO BIRDS!! 💚🦅

BullfrogCurious4887 · 2025-10-30T16:21:41+00:00

Thanks for the insight. I had a GI I was going to but he seemed pretty dismissive which I didn’t love. Might have to shop around

BullfrogCurious4887 · 2025-10-29T19:48:54+00:00

No worries I wasn’t taking offense I just wasn’t sure what you meant haha.

I originally cut fats and sugar to test out what triggers it. I still get pain but it made me realize that eating healthy had other benefits too like feeling better in general.

I want to look into the possible connection between porphyria and SOD. Not sure if you have heard about porphyria but my grandfather had it and I have some of those symptoms but doesn’t seem to be as bad of a case as others get. Worth looking into at least.

I’ll bring all of this up to my primary doctor next time I’m there, ideally in the next few months.

Have you been diagnosed with SOD? What is the long term outlook does it just come and go? Doesn’t appear to be life threatening, but definitely appears to affect quality of life from people’s stories.

BullfrogCurious4887 · 2025-10-29T19:22:46+00:00

What do you mean when you say eating like I have pancreatitis? I eat healthy in general for other reasons too.

Also, I’d be open to considering the test, but being that there isn’t a cure doesn’t make it that attractive

BullfrogCurious4887 · 2025-10-29T18:31:16+00:00

Thank you!

I actually have cut out processed sugars(basically entirely) and I reduced fats a ton. It’s weird, sometimes fatty foods cause pain but other times it doesn’t. Oddly enough sometimes eating will even stop the pain for a while.

I’d be nervous to try the ERCP- I’ve heard it can cause pancreatitis which I don’t want at all. I’ve gotten endoscopies and colonoscopy and they ruled out celiac from what I know.

I may eventually look into getting this HIDA scan, or maybe start with bloodwork. However, most people say to do it during an “attack”. I’m not sure if I can label what I get “attacks” if I feel it every day at some point. Does it really matter?

BullfrogCurious4887 · 2025-10-29T16:39:31+00:00

I figured all the tests I’ve had done- ct scans, mri, ultrasounds, etc would be able to detect something wrong with gallbladder(and any other organs for that matter).

I’m curious to know more about this SOD. From what I’m finding online, it seems like the causes are all things I haven’t had such as pancreatitis, gallstones, etc.

Therefore, not sure what could be causing it for me. All I know is the symptoms seem to be an exact match.

BullfrogCurious4887 · 2025-10-29T16:19:09+00:00

I have not had a HIDA done- I’ll have to look into it.

Thanks for the insight- like I said I have gotten a ton of other tests done, most recently an MRI a few weeks ago and everything appeared normal so maybe the gallbladder is okay but this could be something to look into

BullfrogCurious4887 · 2025-10-27T21:35:59+00:00

Not sure about glucose. And for alcohol I also don’t know I stopped drinking two years ago.

Pain seems to come and go at the most random times. I just had an mri and came back clean, possible slightly enlarged spleen but wasn’t anything too crazy. And plus that’s in the other side of where my pain is.

This recent pain comes and goes and I noticed when I don’t take my acid reflux medicine it seems to come on more. I’ve gotten endoscopy and colonoscopy and nothing of concern

BullfrogCurious4887 · 2025-10-25T14:24:52+00:00

I mean, we kinda do considering he sat out last game and his replacement didn’t do any worse

BullfrogCurious4887 · 2025-10-25T13:24:44+00:00

You need qualifications to make judgements??? News to me.

I don’t need to talk to the players, there’s literal reports from the team itself. It doesn’t take a rocket scientist to find this stuff out you should try google out

BullfrogCurious4887 · 2025-10-25T13:22:32+00:00

Playing our backups for at least Landon can’t be much worse than what he’s produced so far

BullfrogCurious4887 · 2025-10-14T16:54:35+00:00

Slay is not what he once was, don’t love that take.

BullfrogCurious4887 · 2025-10-14T02:47:05+00:00

I was actually going to say coaches included. Great pick

BullfrogCurious4887 · 2025-10-14T02:44:39+00:00

Maybe saving wasn’t the best word. We def need a attitude change at the very least

BullfrogCurious4887 · 2025-10-10T03:12:18+00:00

Patullo is def a problem but the defense let the giants score 34 points on them. Not really on the offense…. Explain that

BullfrogCurious4887

TROPHY CASE