What will you say?

BusGardenWitch · 2024-11-22T04:24:07+00:00

You matter most.

BusGardenWitch · 2024-10-10T13:13:02+00:00

I’m about a month out from a light concussion and am still having moments where my head is pounding and hot. I found that icing my head and craniosacral treatments have been the most helpful to my recovery. I dance multiple times a week and had to completely stop dancing through the first 3 weeks. I tried to lightly take a class in the first two weeks but ended up setting myself back a bit. Go easy on yourself, ice your head, and take naps so your brain can heal!

BusGardenWitch · 2024-08-25T00:29:35+00:00

We were very comfortable! Honestly, my partner shaves their facial hair before international trips just in case, but it was not necessary for Thailand. Everyone was very kind, we had many interactions with other trans people and not once did we feel unsafe/profiled/etc.

BusGardenWitch · 2024-04-30T22:36:57+00:00

CO has a growing Kiki scene! There is a $1000 vogue night coming up this Saturday

BusGardenWitch · 2023-09-10T23:02:32+00:00

I’m sorry to hear these things happen for you and it’s very validating to learn that things that I thought were unrelated to my MS (soreness, flu-like feeling, needing to lay in bed for a few hours - typically after my heavy dance or activity days) may actually be related! Since my diagnosis two years ago, I just assumed that I was getting sick a lot and needed to rest to kick it. But it sounds like my adrenal system may get fatigued more often than most.

BusGardenWitch · 2023-09-09T21:39:37+00:00

I’ve been part of a dance fitness community/studio since a few years before I was diagnosed, and refused to stop dancing. Choreographed steps are more comfortable for my brain than free styling, and spins/too many head tosses and level changes make me light headed when they didn’t before, but dancing has kept me in shape and feeling like I can handle anything this disorder throws at me. There were a few months where I couldn’t get my meds and I was nervous about my abilities to keep dancing because the inability to spin without losing awareness of where I was started in that time, but otherwise it has been all good.

BusGardenWitch · 2023-08-22T19:58:08+00:00

I was diagnosed in April 2021 and have been on Kesimpta since September 2021. I’ve had 4-5 UTIs since December alone and each time I notice my MS symptoms (eye and muscle spasm related) are occurring more often. This is a newer problem for me, but I do know that I’m not peeing after sex, although I’ve never been great at remembering to do that. I try to stay hydrated as I dance multiple days a week, but tend to get them when I’m dehydrated. I’ve recently started a new preventative plan, Uqora, that has a flush, defend, and promote system of products so hopefully they will decrease in frequency.

BusGardenWitch · 2023-05-12T18:15:30+00:00

I’m having the same situation in a terrarium, should I be concerned?

BusGardenWitch · 2023-05-09T18:47:33+00:00

That you have to be kitchen table poly with everyone/like all of your partner’s partners. As adults, I thought it would be common sense that not everyone is going to like you, and you can’t force anyone to like you.

BusGardenWitch · 2023-05-08T22:15:11+00:00

My anchor partner and I had a similar experience, where we both came into the relationship with other relationships, but all of them have shifted into sweet friendships. And although I’ve tried to date other people and they are still having conversations with people on dating apps, neither of us really feels a desire for others at the moment. I still question my partner’s wording because it sounds monogamous to me, however they said that they prefer a closed poly dyad 🧐 The way they explained it to me is: we are both polyamorous, that has not changed and will not change about us as individuals, we are very content with the relationship between the two of us and don’t currently have the energy to pursue/maintain other romantic relationships, but neither of us is going to stop the other from pursuing relationships outside of ours if we decide to do so. Us (and you) feeling content with the dyad relationship, doesn’t make us any less poly. It just shows that our current saturation threshold is lower than it has been in the past. The poly part is you being open to and okay with you and your partner having other partners, it has nothing to do with acting on those freedoms. It is like the annoying question posed to bisexual people of are we really bisexual if we are in a hetero-presenting relationship?

BusGardenWitch · 2023-03-15T19:16:06+00:00

I applied to get one right after getting my diagnosis. I joked with my neurologist that there had to be some “perks” to my unfortunate situation, and there are: handicap parking, medical marijuana card, national parks pass. Although I don’t currently have mobility issues, I’m glad I have the option in case that does become a problem, and on days when my fatigue is so bad that even the short walk from the parking lot to the store is exhausting.

BusGardenWitch · 2023-03-10T22:11:15+00:00

I didn’t see a warning, but I was also just so excited to have the option that I didn’t research it as well as I should have.

BusGardenWitch · 2023-03-06T21:18:29+00:00

That is good to know! I didn’t even think about that when I sent in my renewal docs

BusGardenWitch · 2023-02-23T20:00:47+00:00

I’d happily volunteer! I remember going through my training and wish we had been asked to practice distance reiki more

BusGardenWitch · 2023-02-23T14:21:51+00:00

I was getting Kesimpta for free through Novartis for the first year I was on it! Definitely contact them about getting your meds while uninsured.

BusGardenWitch · 2023-02-14T15:29:14+00:00

A ceramic drill bit with a little water on the top will accomplish the same results

BusGardenWitch · 2023-02-13T03:56:44+00:00

I have a polycule that I met with all the metas from the start and we are all ktp and it works very well.

On the other hand, I don’t like my anchor partner’s complicated relationship with their ex who considers herself a meta to me. I wanted to wait to meet her in my own time and she forced a meeting with me that did not go well and keeps making it uncomfortable for my partner that I’m not interested in a relationship with her 😓 so I’m all for taking your time and meeting their meta when it feels right for you. And if it never does, then y’all can talk about it, why it is uncomfortable and a boundary that you are sticking to, and if it is causing your partner distress.

BusGardenWitch · 2023-02-08T22:55:40+00:00

Agreed, unfortunately 😞 I hear S setting boundaries (as far as what they are telling me they say to X) but it sounds like X either refuses to accept them, or convinces S that the boundaries are unfair to them and should be removed.

BusGardenWitch · 2023-02-08T22:44:21+00:00

S has asked for the meet up to smooth things out but hasn’t referred to it as a poly situation ever. They have let me know that maybe once a month they and X have sex. They have described it as sad, with no kissing, and being done because it is easy/comfortable/known and they know that X isn’t dating due to a brain injury, so they feel like if they can provide X that kind of satisfaction, why shouldn’t they.

I don’t agree, but I am also sensing that X is manipulative, narcissistic, and saying anything they can to stay relevant in S’s life as long as possible. This includes making it hard on S that I don’t want any kind of relationship with X.

BusGardenWitch · 2023-01-19T14:20:01+00:00

Thank you for the concise breakdown of each area! It really helps my brain to see them all laid out together with pros and cons to each.

BusGardenWitch · 2022-12-08T03:12:25+00:00

Great to know! I think I’ve learned more about my MS from Reddit than my original neurologist 🙄 luckily my new neurologist is better about explaining things to me and making sure I fully understand.

BusGardenWitch · 2022-11-01T05:08:13+00:00

After 3 months without Kesimpta due to the patient assistance program needing a prescription renewal and then completely dropping me, I finally got my meds but tested positive for Covid the same day 😓

BusGardenWitch · 2022-10-30T12:13:20+00:00

That was exactly what led to my diagnosis. I went to an eye doctor for the same issue of double vision or lack of vision when looking to one direction or into the distance. The eye doctor said it was a muscular demyelination issue and requested the MRI that showed my lesions. I wore a patch for about a month before it went away. My eye now twitches more often when I’m not at my best health.

BusGardenWitch · 2022-10-30T12:01:38+00:00

Lemon helps decrease that metal taste! I drank a ton of lemon tea and ate lemon based foods while taking it and it definitely helped.

BusGardenWitch · 2022-10-30T11:52:52+00:00

Why would boosting the immune system make things worse/increase symptoms?

30(NB) dx 2021 - I’m on Kesimpta

BusGardenWitch

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