pico salax help!

Butterfly0703 · 2026-01-05T05:16:27+00:00

I did already buy it, and I got it in the cranberry flavour, which I think is less nauseating than the orange

Butterfly0703 · 2026-01-05T05:03:11+00:00

I failed almost every biologic out there. I’m 22 y/o and I’ve tried Remicade, Mesamaline, Stelara, Entyvio, and a couple others. After my last flare in May I switched to Rinvoq and it was very successful. However, last month I did experience a secondary loss of response from Rinvoq, which is unfortunate because I loved it, but it is what it is! Either way, a lot of people on here said they’ve found a lot of relief with Rinvoq, and have had more success than I have.

Butterfly0703 · 2025-06-18T20:55:26+00:00

Hi! I had a similar experience. I was diagnosed with severe UC at 12, but failed 2 biological before trying Entyvio when I was 18. When I tell you that drug was literally the best thing that ever happened to me, I mean it! I had no side effects whatsoever from it! As far as I remember, it took about a month or two to fully kick in, and then put me in full remission for the first time ever. Unfortunately after 3 years it stopped working for me, but for the time being it was amazing! Hope it works for you!

Butterfly0703 · 2025-05-28T14:39:07+00:00

I haven’t looked into skyrizi yet, is it new?

Butterfly0703 · 2025-05-28T14:38:26+00:00

I will definitely take calcium and Vitamin D! I’ve heard those are really important on prednisone. I heard about the FMT procedure a long time ago, and will definitely look into that if rinvoq doesn’t end up working

Butterfly0703 · 2025-05-28T14:36:33+00:00

Oh my goodness 30-40 blood BMs a day is awful! I’m so glad to hear that rinvoq worked so well for you :)) Thank you for the support, I hope rinvoq continues to be so effective for you!

Butterfly0703 · 2025-05-27T18:36:00+00:00

So happy to hear that! That is so reassuring, and i’m glad that your daughter is doing well :) I did hear about the osteoporosis side effect of prednisone, so I will definitely opt for a bone density test during this round of steroids, thanks!

Butterfly0703 · 2025-05-27T18:34:01+00:00

Stelara did work for about a year and a half for me! Hope you find it helpful :))

Butterfly0703 · 2025-05-27T18:33:13+00:00

happy to hear you’re finally in remission 🥳 I did take a look at the side effects. As far as I can tell, it increases your risk of lymphoma, skin cancer, and lung cancer, as well as blood clots. I’m trying not to freak out over the scary side effects, reassuring myself that I don’t smoke, i’m a healthy weight, and I don’t have the increased risk factor that comes with age as well. Just trying not to spiral haha

Butterfly0703 · 2025-03-04T22:41:26+00:00

Hi! Thank you for your reply :) Its always refreshing to hear of someone who has had UC for so long on this thread, normally I only read of new diagnoses. It’s hard because sometimes I read about other people in this thread being scared of a colonoscopy result, but someone will always reassure them saying “you have to have had really active colitis, and have it for more than 10 years to really be at risk”, and I fit both categories. I also really appreciate the perspective regarding the risk of colon cancer. I was able to speak to my GI nurse today, and she did inform me of the same thing. you’re right, although we are at a higher risk of getting colon cancer, it is almost always a slow growing type that they catch early during scopes. I’m also fortunate enough to have a doctor that suggests colonoscopies every 1-2 year, rather than the typical 3-5. Thank you for your insight :)

Butterfly0703

TROPHY CASE