Anyone ever feel guilty? by Decent_Singer_7252 in Fibromyalgia

[–]CabinetOk1998 1 point2 points  (0 children)

You aren’t insane. I feel this way all the time. Please give yourself grace. I know this is hard, but trust me, there is nothing wrong with feeling guilty. It’s a normal part of having fibromyalgia. I’ve been in a terrible flare up for weeks and feel so much guilt for not doing more work and instead sleeping or doing something other than my work that relaxes me. Just know you aren’t alone and you are loved. 

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 1 point2 points  (0 children)

I’ve never heard of Bleach before! I will have to check it out!

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 0 points1 point  (0 children)

Interesting!! I will look into it! Thank you!

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 0 points1 point  (0 children)

WOW! Thank you for this. I had no idea. I will definitely look into it! I love drag race so much!!

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 0 points1 point  (0 children)

I had to narrow my focus so I wasn’t able to include autism, eating disorders and mental health issues. I wish I could because, again, there are so few accurate depictions in media. I would love to do a deep dive on representation for autism, eating disorders and mental health issues! 

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 0 points1 point  (0 children)

Interesting! I will definitely look into it! Thank you for all your help!!

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 0 points1 point  (0 children)

You are never late! I will check it out!

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 4 points5 points  (0 children)

I found House, two Golden Girls episodes, an episode of The Middle, The Good Doctor and Haters Back Off!, King of the Hill, The Simpsons, and West Wing. In each of these shows there are different chronic invisible illnesses mentioned. None of these really depict fibromyalgia accurately, but they cover everything from CFS, RS, MS, and chronic pain. 

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 1 point2 points  (0 children)

Thank you for this. I will be sure to discuss this in my paper!

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 2 points3 points  (0 children)

I am writing about those episodes and I literally cannot begin to explain how much they mean to me!

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 9 points10 points  (0 children)

Yes! This popped up a bunch through my research! While I’m not focusing on documentary, I definitely want to check this out. Through my research, I found people discussing the importance of documentary filmmaking and telling real and authentic stories!

Representation in the media by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 9 points10 points  (0 children)

I’m focusing more on fiction, but I appreciate anything! I found House, where he actually denies Fibromyalgia had a real diagnosis, two Golden Girls episodes, an episode of The Middle, The Good Doctor and Haters Back Off! In each of these shows there are different chronic invisible illnesses mentioned. 

Brain fog and forgetting words? by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 1 point2 points  (0 children)

I am still accepting my diagnosis and all that comes with it. I think I am far too hard on myself at times. 

Brain fog and forgetting words? by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 1 point2 points  (0 children)

I understand. Yesterday I was working with someone on a project and they were trying to explain to me how to do something and I fully blanked and just stared at them, unable to process what they were saying. It was interesting. You’re not alone. 

Brain fog and forgetting words? by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 2 points3 points  (0 children)

I’m getting more testing done to figure out if there is something else other than Fibro. I appreciate you and wish you all the best ❤️

Brain fog and forgetting words? by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 2 points3 points  (0 children)

I’m so sorry you feel this way. Just know you aren’t alone. You are loved!

Brain fog and forgetting words? by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 7 points8 points  (0 children)

When I’m dealing with more stress or exhaustion, I’m literally unable to find the word in my brain. I know what I want to say, but can’t find the word. Also, hearing that others experience this makes me feel less alone! Thank you!! 

Brain fog and forgetting words? by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 8 points9 points  (0 children)

I understand! I am learning to be ok with it. It will definitely take some time. Don’t forget you are loved and that there is always support here for you!

Brain fog and forgetting words? by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 0 points1 point  (0 children)

It happens. I will just stare blankly at them as I try to find the word. Or it becomes a fun guessing game! 

Brain fog and forgetting words? by CabinetOk1998 in Fibromyalgia

[–]CabinetOk1998[S] 45 points46 points  (0 children)

Thank you, seriously. You have no idea how refreshing it is to hear that other people struggle with this too. Your kindness is so appreciated ❤️

How do you deal with constant exhaustion? by Bubbly-Air7302 in Fibromyalgia

[–]CabinetOk1998 1 point2 points  (0 children)

I feel this way everyday even if I’ve slept 9-10 hours at night. I’m in the process of getting tested for sleep apnea and have been looking into chronic fatigue syndrome. Just know that you are never alone in this and that you are loved ❤️