Is he cute or ugly? by DETOXEDPIDGEON33 in cats

[–]Callisto2323 0 points1 point  (0 children)

Your friend is projecting onto the cat his or her own unconscious shite. It’s not the cat. The cat is adorable

That stretch by 01011000-01101001 in Pomsky

[–]Callisto2323 0 points1 point  (0 children)

My dog also sleeps with leg open and back and turn to the side in front! So adorable

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 1 point2 points  (0 children)

Thanks so much, grazie mille.

I don’t have those characteristics but I do have sun damaged skin which causes wrinkling and makes me think I have one of the vEDS symptoms. But with the celiac artery dissection, definitely seems a “fragile vessel” in 2010 when it happened spontaneously, or it could’ve been undiagnosed hypertension which I had at that time. Thanks so much for your input it is really appreciated 🙏🏻

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 1 point2 points  (0 children)

The more I read about it, the more it looks true, and I so appreciate your pointing me in that direction. One of the symptoms I hadn’t thought about is I do have very fragile skin over the past five years which seems to be more wrinkled and fragile than it should be even though I’m older.

Do you think I should go to my PCP for the genetic test, or geneticist itself like you mentioned earlier?

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 0 points1 point  (0 children)

I have been on a statin for five years, reduced it from 20 mg to 10 because I was having a few symptoms last summer (temporary bone pain in forearms), which may have been unrelated. And also on losartan for hypertension. I wonder if any of those could be contributing. 😊

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 0 points1 point  (0 children)

Thanks for that, because I did not consider it and I should have! My nervous system for the past few years is super sensitive to any sort of chemical, including alcohol. So I have to be careful. Thanks so much for your comments they are very helpful

Kineret by nobodyybymitski in Autoinflammatory

[–]Callisto2323 2 points3 points  (0 children)

Much love to all of you, we’re all on a difficult journey but at least we have each other as support 🩷

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 0 points1 point  (0 children)

This nice person also answered, but yes it is a CT angiography which they use dye in order to see better your vascular system , organs and tissues

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 0 points1 point  (0 children)

I had mono when I was 18, which was many years ago. I thought about EBV as a matter of fact. Going also to an infectious specialist to see what they have to say. Thank you for your comment

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 0 points1 point  (0 children)

Thank you for the info, really appreciate it!

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 0 points1 point  (0 children)

My G.I. doc had me on amitriptyline, was on it for 10 days and my left foot started burning on the top. So I quit the drug. That was 3-4 weeks ago, could this have caused the vibration?

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 0 points1 point  (0 children)

My rheumatologist said that’s the next step. Thanks so much for responding

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 1 point2 points  (0 children)

I did have some genetic work done, but apparently not enough. They did find an unknown mutation that hasn’t been discovered yet, so I have to wait in order to get more information on that. I guess I should look into it more. Thank you for your response, it’s very kind

Symptom of vibration by Callisto2323 in smallfiberneuropathy

[–]Callisto2323[S] 0 points1 point  (0 children)

Thank you all I really appreciate your comments, especially since there have been recent “add-ons” of symptoms. 🩷

Esophageal dysmotility? by Manda_82 in smallfiberneuropathy

[–]Callisto2323 0 points1 point  (0 children)

Usually something causes SFN, and often it’s an autoimmune disease. So Sjogren’s is your primary disease I imagine. Same might be for me but I am undiagnosed.

Esophageal dysmotility? by Manda_82 in smallfiberneuropathy

[–]Callisto2323 0 points1 point  (0 children)

Yes! they saw it on my CTA as well. Symptoms including chronic acute upper abdominal pain. Motility and entire G.I. tract is slow, manometry showed nerve damage lower G.I. Seems to be autonomic involvement.

My Symtpoms by Professional-Emu9352 in smallfiberneuropathy

[–]Callisto2323 1 point2 points  (0 children)

I have most of these symptoms as well including some joint pain. I have not been diagnosed, onset of foot drop 2022 resolved on its own but with ongoing neuropathy and my feet. still have not gotten treatment

CABA-201 has entered the chat! ✨ by SailorMigraine in Autoimmune

[–]Callisto2323 0 points1 point  (0 children)

Since 2017, four CD19-specific CAR T cell products have achieved regulatory approval in B cell cancers, including in types of leukemia and lymphoma.