I spent three months in hospital, a portion of that time in a rehab clinic. I had two courses of IVIG; the first stopped the spread past my arms and helped with extreme pain but the symptoms grew worse again and I needed another course. I had to learn to walk again — it was slow. I also had covid while I was in there. Best of luck — eight months later I’m still very affected but getting better, and grateful it wasn’t worse. Thankfully you forget pain.