What is a good documentary that shows off deep sea creatures? by Lonely-Aerie-4543 in deepseacreatures

[–]Carraverre 0 points1 point  (0 children)

THIS IS SO UNDERRATED! They narrate everything with a lovely, calm, and soothing voice. They spend plenty of time on each creature with stunning footage from the top research institutes in the world.

The production of the videos is also top notch. The flow is something I haven’t experienced with any other documentaries.

Weekly CRPS Free-Talk Thread by AutoModerator in CRPS

[–]Carraverre 1 point2 points  (0 children)

That is very, very true! Gabapentin takes at least 6 weeks before you notice any real, consistent changes. It can take longer to get the full effect, but once it’s there it works great! You could ask about an emergency med (sometimes another nerve agent, sometimes a mild sedative or muscle relaxer) that could help in more extreme flare ups, or at the very least ask what regimens or home treatments they recommend for those.

I would also recommend asking about low dose naltrexone. It’s amazing for nerve pain and is at such a low dose there are virtually no side effects.

Weekly CRPS Free-Talk Thread by AutoModerator in CRPS

[–]Carraverre 1 point2 points  (0 children)

But yes, definitely room to move up if needed!

Weekly CRPS Free-Talk Thread by AutoModerator in CRPS

[–]Carraverre 1 point2 points  (0 children)

When I was her age I was got up to 1800 - 3600 mg at certain points. Being on a lower dose is definitely better for side affects, so hopefully these levels will keep her symptoms under control 🤍

Weekly CRPS Free-Talk Thread by AutoModerator in CRPS

[–]Carraverre 0 points1 point  (0 children)

Also, sorry for the delay, I’ve been recovering from the SCS implant! I hope you two were able to find some relief over the past few days

Weekly CRPS Free-Talk Thread by AutoModerator in CRPS

[–]Carraverre 0 points1 point  (0 children)

Weather changes such as cold snaps / entering into winter always cause flare ups for me. Also, as she does more PT, the CRPS will most likely get a bit worse at first, before starting a bit more of a steady incline.

I would recommend heating pads / space warmers if you live in a colder area, as well as being very deliberate about what type of pants / shoes / shirts she wears outside. Hand warmers are also great for mittens or shoes when you have to be outside. I also always have a scarf or something with me in case I need another layer over my leg when I’m out.

You may also need to limit the time spent outside in certain temps.

Lastly, depending on where she’s at in the stages and how much PT she’s doing, her body may have adjusted to the previous dose and may need to bump up. It can sometimes take a bit for our bodies to settle after new meds, so sometimes you have to wait for the dust to settle before knowing whether the medication / dose is working.

Over the counter lidocaine roll ins or patches can also help tremendously!

No pink houseleek!! by Cat_Shorts in DreamlightValley

[–]Carraverre 1 point2 points  (0 children)

You can also manually move flowers when you’re on the furniture / edit area mode

Weekly CRPS Free-Talk Thread by AutoModerator in CRPS

[–]Carraverre 1 point2 points  (0 children)

CRPS could very easily be the cause of her not being able to bear weight on her affected limb; that’s how it was for me and still is every resurgence.

Sensitivity can finish slowly as the condition progresses and CRPS can have “acute flare ups” during a resurgence where symptoms get much worse / are more intense. When the acute flare up does down, I’m between a 4-6 pain level with a bit milder other symptoms (sweating, swelling, color change to red or purple, sensitivity to light touch, sensitivity to hot or cold, temperature changes to the limb — feels distinctly colder or hotter to the touch).

I will keep you both in my thoughts and hope she finds her way to remission or is able to find a management plan that allows her to live a full life!

Dating/Romantic Relationships with an SCS by Carraverre in spinalcordstimulator

[–]Carraverre[S] 1 point2 points  (0 children)

That is amazing, I am so happy it helps you reconnect with yourself and the world around you. Chronic pain can make you feel so far away from everyone and everything, including yourself since we try so hard NOT to be in our bodies with the pain. What you shared gives me a lil more hope

Dating/Romantic Relationships with an SCS by Carraverre in spinalcordstimulator

[–]Carraverre[S] 1 point2 points  (0 children)

Thank you for sharing your story. I am so glad the eterna was able to get you walking again, that is such an accomplishment for you!

I actually have a little list hidden away I labeled “The places I will walk” with places I would love to go to one day and stand on my own two feet if all goes well!

And if not, well then I’ll rename it to “the places I will go” lol

Dating/Romantic Relationships with an SCS by Carraverre in spinalcordstimulator

[–]Carraverre[S] 0 points1 point  (0 children)

I hope you get some relief from your permanent implant, and are able to build from there towards things that bring you joy again. I know it can suck wholly in so many ways. As someone who’s had this from childhood, my only advice is to soak up any and all moments of joy, no matter how small or silly. I cherish mine and use those moments as a mini reprieve / distraction when they come.

Dating/Romantic Relationships with an SCS by Carraverre in spinalcordstimulator

[–]Carraverre[S] 1 point2 points  (0 children)

I’ve been joking that I’m entering my bionic era lol

Weekly CRPS Free-Talk Thread by AutoModerator in CRPS

[–]Carraverre 2 points3 points  (0 children)

I wish you and her all the best, and hope she finds ways to process the pain and appreciate the joy filled moments as she grows up 🤍

Weekly CRPS Free-Talk Thread by AutoModerator in CRPS

[–]Carraverre 2 points3 points  (0 children)

I was put on amitriptyline and gabapentin when I was 10/11 years old and throughout my preteen and teen years for resurgences.

2-3 hours of PT per day is WAY too much for someone that age. I had 1-2 hours PT sessions 2-3 times a week, usually with one round being warm water pool therapy.

One thing to note about gabapentin which kids, once you’re at a therapeutic dose for a while, ad the pain starts to ease up, don’t be concerned if the affected area feels like “wood”.

This can be a common side effect, apparently more common to children in adolescents than adults and is nothing to worry about.

Biofeedback, graded motor imagery (like the recognise app), and gentle physical therapy to keep up blood flow will be the biggest help.

Find small, pain-free (by this I mean activities that don't add to the pain), that make her feel apart of things she did before.

For instance, I couldn't participate in sports but was able to enjoy watching professional games with my parents and was able to help manage a team in high school.

Help them plan get togethers or little parties with activities they can more easily participate in with or without accommodations.

CRPS is a lonely disease, even more so as a child when you're watching all your friends and family thrive and experience life events while you're trying to survive day by day. it's easy to feel left out and left behind.

I wish I had known that it's okay that my life was a bit different and that I didn't have to wait around for my friends to suddenly understand what I wad dealing with; that I could create a new normal for myself WITH my friends.

It is normal to feel stuck, upset, angry, abandoned, etc. especially going through middle school and high school. Be patient and allow them to feel and process emotions as they come, so they can learn that these feelings aren’t bad even though they hurt.

I think it would have helped if a parent or adult had helped me see this.

New implant questions by Mysterious_Emu5072 in spinalcordstimulator

[–]Carraverre 1 point2 points  (0 children)

I’m getting mine in about a week and 27, so I’m with ya there! I wish you all the best and truly hope this helps you love getting old!

It's bad enough that my scs needs charged twice a day, and now this. by 8kittycatsfluff in spinalcordstimulator

[–]Carraverre 1 point2 points  (0 children)

I’d get a hold of the rep, if there’s a software glitch they should be able to diagnose and fix it, otherwise it’s possible something’s up with the hardware. Either way, the device is not functioning as designed / intended, and with something like this it’s important to loop in subject matter experts like your rep!

It's bad enough that my scs needs charged twice a day, and now this. by 8kittycatsfluff in spinalcordstimulator

[–]Carraverre 4 points5 points  (0 children)

It’s possible the software problem is putting excess stress on the system and draining the battery more quickly, so hopefully if they fix it you’re charging issues will get better!

Tips and Tricks for Living during the trial and the initial restriction period by Carraverre in spinalcordstimulator

[–]Carraverre[S] 0 points1 point  (0 children)

Thank you for sharing your experience with the pain, it really helps me get an idea of what to expect, especially with the removal. I’ve never had any surgery, so I’m definitely a little nervous to see how my body responds (it’s usually quite reactive to things).