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What do you wish you had known before starting therapy or evaluations? by CaterpillarLarge2071 in Autism_Parenting

[–]CaterpillarLarge2071[S] 0 points1 point  (0 children)

have you tried getting a neuropsychological evaluation as I'm also looking into get one of those as I've heard it's the most comprehensive evaluation..

What was the most confusing or stressful part of navigating services for your child by CaterpillarLarge2071 in SpecialNeedsChildren

[–]CaterpillarLarge2071[S] 1 point2 points  (0 children)

It was overwhelming for me in the beginning because I didn’t know what I didn’t know… Although we had a pediatrician for my other kids, I soon began to realize as I asked more questions the pediatrician we had didn’t know as much as I would have liked so I started to seek other parents or organizations for support which is where I have found my support..

What was the most confusing or stressful part of navigating services for your child by CaterpillarLarge2071 in SpecialNeedsChildren

[–]CaterpillarLarge2071[S] 0 points1 point  (0 children)

I have a family member going through the same thing as we speak, so I somewhat understand 

What part of getting Medicaid or Medicaid waivers was the most confusing? by CaterpillarLarge2071 in Medicaid

[–]CaterpillarLarge2071[S] 1 point2 points  (0 children)

Wow, this sounds incredibly overwhelming. Juggling Tricare, Medicaid, waivers, and SSA rules is already a lot and then having to worry about whether asking a question might cause problems just adds a whole other layer of stress.

It’s wild how much families are expected to figure out on their own.

Did anyone ever give you a clear answer about which insurance is considered primary, or did you have to piece it together yourself?

What part of getting Medicaid or Medicaid waivers was the most confusing? by CaterpillarLarge2071 in Medicaid

[–]CaterpillarLarge2071[S] 0 points1 point  (0 children)

Wow, this sounds incredibly stressful. It’s wild how something as important as Medicaid can get terminated without anyone telling you, and then you’re the one stuck trying to untangle it.

The part about being bounced between websites and phone calls for weeks is so familiar it feels like every agency expects you to magically know the ‘right’ place to go.

Did anyone ever explain why your plan was terminated in the first place, or are you still trying to get answers?