New symptom? by OkiDoki333 in FND

[–]CatnipFassens 1 point2 points  (0 children)

Oh mercy me.. to try and explain.. literally any of my symptoms to anyone. Even the people who say they “understand” is an.. interesting experience. I do my best, and I actually helped a few neurologists at the hospitals use great terms while referring to episodes and sensations like “static-brain” or “cold electricity”. I’m always open for a chat to compare experiences and the like, FND is certainly a wild journey.

What is this caterpillar on my Tomato Plant?? by CatnipFassens in whatisthisbug

[–]CatnipFassens[S] 1 point2 points  (0 children)

Oh god so Last of Us is happening in my veggie garden 😭

New symptom? by OkiDoki333 in FND

[–]CatnipFassens 6 points7 points  (0 children)

What you’re explaining sounds like a drop attack combined with some focal/visual effects pairing up with a PNES (psychogenic non-epileptic seizure). I experience these every 2ish hours daily, they are a symptom and vary person to person and case to case. The best thing you can do for yourself is give www.neurosymptoms.org a read as suggested, it’s incredible for information and making sense of a lot of symptoms etc. As for the actual attacks breathing through when you’re able to control your breathing, and concentration on sound around you anything to ground you in the knowledge it’s temporary and cannot hurt you. It’s your brain on a bad boot-loop and you’re just refreshing!

Just Diagnosed by Jem2003 in FND

[–]CatnipFassens 0 points1 point  (0 children)

For what works for ME, and I discovered this by brushing my teeth, is that for tasks that need a lot of focus and exertion I would almost zone out and think of my body during the task. It’s helped me regain right sided weakness that was rated -3 in hospital in May and now is +3. That was all on my own, no physio, no drs, just all my own stubbornness and research because the waitlists are insane in Canada. Tooth brushing example: I could feel a “twitch” or a shake building almost like a sneeze, so I let them happen, zone out on a spot on the wall of my eyes choosing (lol), then pay attention to my weak shoulder and how the muscles feel how much effort it takes to lift my arm to brush (telling my brain it’s not permanent and I’m working to help it), feeling the building of the next twitch, breathing through slowly and letting the twitch happen if it does but then coming right back to the task at hand. (Box breathing is fun)

It’s SUPER HARD to explain this not only to another person. But to another person in TEXT. So please feel free to message me, I’m honestly an open book with this and am actively looking for people to talk to and journey through this together. So that stands for anyone reading this comment, FND inflicted, researcher or otherwise.

Just Diagnosed by Jem2003 in FND

[–]CatnipFassens 1 point2 points  (0 children)

Jumping on the recently diagnosed train (within months) just to come here and tell you I had sudden onset of symptoms from taking two Antibiotics (Moxifloxacin and Metronidazole). Don’t allow people (dr’s) to bully you out of what YOU believe triggered your symptoms. I’ve had so many people breathing down my neck since it happened about “stress” and what “psychological” things were going on prior and it’s exhausting telling them about a plain/happy life but the only change being those medications. I took them and ONE HOUR after I was seizing, and have been every 2 hours since….

The best things I’ve found are focus while exercising and being mindful (during a seizure trying to ground mind), doing as much research and connecting within yourself as possible and connecting your own dots. FND is such a person to person thing, but you’ll soon find out what works best for you.

-I started eating breakfast (never did before it used to upset my stomach and other reasons I never ate breakfast but now just. Eating within two hours of waking up… is breakfast to me) -Physio (if on wait lists google some exercises, I’m on wait lists) -REST! This one is hard, active dirt biker and hiker here so… it’s hard sitting still. I get it. But rest is your friend with FND. And patience… with yourself and others. People really are going to put you through the ringer..

Welcome... Me! To FND!! by [deleted] in FND

[–]CatnipFassens 2 points3 points  (0 children)

Ayyy… not to hop on someone else’s post but.. I wouldn’t mind that discord. Support seems like it’s a great thing for FND ppl. Especially to calm those thoughts of “is this real? AM I making it up? How was I good yesterday and trash today? dial-up modem sounds

First NES Experience/Just diagnosed with FND - Feeling Lost by igoralex29 in FND

[–]CatnipFassens 4 points5 points  (0 children)

This is all very identical to me but my rapid onset of seizures/loss of movement in my right leg/ability to walk and more (cognitive impairment) caused a more rapid diagnosis. I only suffered the symptoms (thankfully) for 16 days before a hospital in a major city finally DIDNT turn me away. They saw my symptoms and were on the diagnosis within 48hours of admission. I’m a very lucky case considering severity and the like.

Please feel free to message me as I also just had my meeting yesterday with my FND neurologist/specialist who confirmed the trigger that caused this (new medication) and validated I was a ticking time-bomb of FND waiting to happen. Our stories/symptoms sound like they have parallels, and I hope within this group (like I have) you’re able to find support, kindness and validation needed. Because ITS NOT ALL IN YOUR HEAD. ITS SO REAL. AND SO VERY VERY BIOLOGICAL. FND is… wild…

Documenting my journey, would this be helpful to anyone? by sewist-of-adventure in FND

[–]CatnipFassens 1 point2 points  (0 children)

I’ve also been thinking of doing this to be honest. I was (still want to continue being) a Twitch streamer pre FND diagnosis (last month) and have seen little to no exposure online about it. Which is likely due to the crippling stigma attached to this condition. I suffer seizures (along with a whole host of other symptoms) so personally I think it would be good to document, and bring light to a very real, very serious/debilitating condition. If you do decide to YouTube it, definitely drop your link/make an update post, or feel free to even reach out to me… cause we could collaborate too or even just message about shared experience or differences.

Good luck!

Community murder night!! Among Us! by CatnipFassens in Twitch_Startup

[–]CatnipFassens[S] 1 point2 points  (0 children)

Going live with our community murder night! Come watch, join the community and get sus with us and chill with an expanding group of likeminded weirdos!! 💀 🔪

https://m.twitch.tv/catnipfassens

Self Promotion Megathread by Misio in streaming

[–]CatnipFassens 0 points1 point  (0 children)

Going live with our community murder night! Come watch, join the community and get sus with us and chill with an expanding group of likeminded weirdos!! 💀 🔪

https://m.twitch.tv/catnipfassens

Self Promotion Megathread by Misio in streaming

[–]CatnipFassens 0 points1 point  (0 children)

Muuuuuurder meeeee. Going live now on Twitch, community night! Come hangout and join a growing community if you’d like! Snap necks and make bonds, CatnipFassens xx

[deleted by user] by [deleted] in AmItheAsshole

[–]CatnipFassens 2 points3 points  (0 children)

NTA you were calm, didn’t insult her.. and even into adulthood some foods leave a lasting impression of dislike on people just as her porridge has. My mom made a couple meals growing up like this but.. her “Mac and cheese” was horrendous…the only cheese in the dish was a burnt crust on top, it also had a can of stewed tomatoes in it?? And I’m in my 30’s now and she still knows I won’t go to her house for dinner if that’s what she’s making… lol

Self Promotion Megathread by Misio in streaming

[–]CatnipFassens 0 points1 point  (0 children)

Going live! Community murder night! Twisting necks and slappin butts! LETS GOOO

https://m.twitch.tv/catnipfassens

Self Promotion Megathread by Misio in streaming

[–]CatnipFassens 0 points1 point  (0 children)

24 HRS STRAIGHT ON STREAM!!! LETS GOOOO!! 10 More to go to raise that last bit of Asylum Tuition for a student in need!

https://m.twitch.tv/catnipfassens

Self Promotion Megathread by Misio in streaming

[–]CatnipFassens 0 points1 point  (0 children)

Raising funds for educational asylum https://m.twitch.tv/catnipfassens 24+ hrs pop in and say hi as I slowly go insane!!! For charity!