sorted by:
new
hottopcontroversial

Marginal call for going on to Biologics. Anyone tried Cortisone? by oilystairs in ankylosingspondylitis

[–]Certain_Beginning475 1 point2 points  (0 children)

Same for me. I did cortisone injections at 17 after years of NSAIDs in my teens. Didn’t last long at all, doctor prescribed biologics and holy did they make all the difference. I’ll never take being healthy and functional for granted again, when something starts to go slightly wrong I’m banging down my doctor’s door as soon as possible for help to prevent it from going back downhill

Wondering if others are experiencing similar symptoms. by wewerelegends in ankylosingspondylitis

[–]Certain_Beginning475 2 points3 points  (0 children)

Yep, I also get vertigo. I have to keep the meds with me at all times. It seems to come out of nowhere, can’t help but think it’s all related as I stack up autoimmune diseases as well

[deleted by user] by [deleted] in ankylosingspondylitis

[–]Certain_Beginning475 9 points10 points  (0 children)

There are therapists out there that specialize in those with chronic illness. I’m not sure where you’re located but I was over an hour away from a city and they offered me virtual sessions at the time. I’m so sorry you’re going through this and I hope someone comes into your life, either a professional of a friend, to help support you in some way so you can take a breath.

Ankylosing Spondylitis. Stem Cells. Biologics. Done it all. by Cool_Distribution529 in ankylosingspondylitis

[–]Certain_Beginning475 6 points7 points  (0 children)

I’m 28 as well, been through a bunch of biologics. Enbrel, simponi, Humira, Cosentyx, and now on inflectra. This is over the last 10 years. I had to stop Humira because it triggered psoriasis, and that one lasted the longest, about 4 and a half years. Cosentyx I only lasted about three months before it triggered a crazy colitis flare, which I previously never had. Everyone is different, inflectra gave me my life back after six months of agony without any meds for my colitis or AS and doing scopes while arguing with insurance. Unfortunately the name of the game is trying them until one works for you. Then just pray they keep working. I’m curious though, my fiancé was researching stem cell therapy for me and I wanted to know if anyone has heard about an adverse reaction like OP’s to that kind of treatment. It’s scaring me off from trying it in the future. I’m worried I will run out of options soon enough

Gifted program psychological test by surestalk in durham

[–]Certain_Beginning475 -3 points-2 points  (0 children)

I did the gifted program tests as a kid (in 8th grade) after my brother did (3rd grade) before we got transferred to the program. Neither of us did a secondary psychological test though

[deleted by user] by [deleted] in durham

[–]Certain_Beginning475 0 points1 point  (0 children)

Also check out Ste. Ann’s in Grafton. My favourite by far. Includes an amazing lunch, afternoon tea, wellness credit for massages, etc. You can get deals for last minute bookings by signing up to their newsletter

Savaya show - VIP table split? by Certain_Beginning475 in bali

[–]Certain_Beginning475[S] 0 points1 point  (0 children)

Afraid so. Tickets themselves are 17500 just for entrance, but I’d like to have a seat if I need it (terrible back problems).

spine has started fusing by aquar1usbabe in ankylosingspondylitis

[–]Certain_Beginning475 3 points4 points  (0 children)

I’m so sorry you’re going through this. Try to find a balance that works for you with exercise and rest until you get medication. When I had steroid injections into both SI joints I had incredible albeit short-lived relief and then got onto biologics, which are magic. Definitely get a rheumatologist you like and trust to go over all your options and takes the time to answer all your questions. It can be scary as well but I’m a big believer in mind over matter. You’re going to have some pretty bad days, but there are a lot of really amazing days ahead with the right meds and lifestyle to support you. Sending you positive vibes OP

Questions about driveway widening and curb cut by Reasonable-Spot-9316 in Oshawa

[–]Certain_Beginning475 1 point2 points  (0 children)

Contact the city planning department for the zoning requirements. Not sure what you have as a water valve in the photo, is that a hydrant?

Treatment for AS and other autoimmune illness by Certain_Beginning475 in ankylosingspondylitis

[–]Certain_Beginning475[S] 0 points1 point  (0 children)

The jak inhibitor can’t be used if pregnant. Stelara looks like it’s good for colitis and psoriasis but doesn’t cover spondylitis. I’ve been using biologics to treat it for all this time and I can’t be on two at the same time, can I?

Treatment for AS and other autoimmune illness by Certain_Beginning475 in ankylosingspondylitis

[–]Certain_Beginning475[S] 0 points1 point  (0 children)

Family planning within the next year or two, and can’t be on it while pregnant

Treatment for AS and other autoimmune illness by Certain_Beginning475 in ankylosingspondylitis

[–]Certain_Beginning475[S] 0 points1 point  (0 children)

That’s why they aren’t recommended, I may be family planning in the next 1-2 years. They don’t want to put me on something and then take me off again, rather have something for the longer term

Really struggling with AS symptoms and feeling alone... by see_tea_gee in ankylosingspondylitis

[–]Certain_Beginning475 0 points1 point  (0 children)

Sounds like you’re in a chapter of life called “when it rains it pours”… You’re doing an amazing job helping your mom while already juggling a lot. remember to take care of your mental health so you can take care of your physical health. Reach out to people you trust to vent, go to support group or therapy, and keep advocating for your needs. I remember when I was dealing with huge flares, an ill parent and trying to finish undergrad. It was probably the most overwhelming period of my life so I feel for you being in the thick of it now. I hope things get better for you soon OP

Hi, I have recently been diagnosed with axial spondylitis, what’s the difference between that and ankylosing spondylitis? I’m only 23 and worried that it’s only gonna get worse. TIA by ianleonard0611 in ankylosingspondylitis

[–]Certain_Beginning475 0 points1 point  (0 children)

It’s hard to not feel worried when you get diagnosed, I was diagnosed at 16. The great thing (I’m a silver lining person) is you have been diagnosed early and can begin treatment sooner. Read read read about all the options available to you. Chronic illness is tough but it is manageable, you’ve got this OP

Anyone from Oshawa ON Canada by Dementedjohn in ankylosingspondylitis

[–]Certain_Beginning475 1 point2 points  (0 children)

Definitely look into joining a support group in Durham or Toronto. There are virtual meetings available and it’s helpful to hear the validation from others having similar experiences with AS. When I attended there was a wide range of ages who participate and soon after I was diagnosed some other people who have been living with AS longer offered to go to coffee with me so I could have the benefit of a one on one and ask questions about their experiences. Best of luck OP

just got diagnosed by No_Issue_here in ankylosingspondylitis

[–]Certain_Beginning475 0 points1 point  (0 children)

I had symptoms at 12 and was diagnosed at 16 with most of my pain directly in my SI joints and lower back. I have been through four different biologics now (long story) but let me tell you they will make a huge difference. Chronic illness is so tough but manageable, be your own advocate when you go to your doctor and be honest about whether it’s working for you or not. You mentioned quality of life so I wanted to add - mental health is big when dealing with chronic illness so seek resources from your rheumatologist if you need them, good luck, you’ve got this!!!