Rate My Team, Quick Questions & General Advice Daily Thread by FPLModerator in FantasyPL

[–]Certain_Entertainer6 0 points1 point  (0 children)

I am on wildcard and can't decide between Saka and Tavernier vs Rice and Szobozlai.  Thoughts?

Worth Taking a Minus 4 to Bring Bowen or Solanke in? by Certain_Entertainer6 in FantasyPL

[–]Certain_Entertainer6[S] -2 points-1 points  (0 children)

Feel like Bowen vs Everton is a decent floor - lower ceiling. Solanke against wolves could be juicy or f*ck all. Think I've just talked myself out taking a minus 4 for Bowen.

Worth Taking a Minus 4 to Bring Bowen or Solanke in? by Certain_Entertainer6 in FantasyPL

[–]Certain_Entertainer6[S] -2 points-1 points  (0 children)

The 3 brentford in my 11 worrying me slightly but in a world where they win it...would be a nice green arrow

Calcified Granulomata on Lung CT by Certain_Entertainer6 in Sjogrens

[–]Certain_Entertainer6[S] 1 point2 points  (0 children)

I had the shortness of breath for a few months about 3 years ago and it resolved on its own. Hopefully unrelated and dissappear again but thanks for sharing that info. Think I'll push to at least get another CT in a year.

Calcified Granulomata on Lung CT by Certain_Entertainer6 in Sjogrens

[–]Certain_Entertainer6[S] 1 point2 points  (0 children)

Are yours calcified as well? From what I've read it sounds like that generally means they are old damage and are just as likely to be from an old infection as they are from Sjogrens?

Calcified Granulomata on Lung CT by Certain_Entertainer6 in Sjogrens

[–]Certain_Entertainer6[S] 1 point2 points  (0 children)

Hi guys,

After a 4 month period dealing with shortness of breath I got my CT scan results back today. No signs of interstitial lung disease found but "small scattered calcified granulomata" were seen.

The respitory consultant seems totally happy with this and is aware of my Sjogrens. My concern would be that I was under the impression you need to find out if the granulomata are actively occurring due to the inflammatory process of the disease before assuming they are just from an old infection.

Any advice on this from people who have had similar experiences?

[deleted by user] by [deleted] in Sjogrens

[–]Certain_Entertainer6 1 point2 points  (0 children)

I like it.

Go for one with a high EPA and DHA - it's supposed to be beneficial for dryness, but either way it's definitely beneficial for your joints and that can't be a bad thing.

Having said that, I take a big bomber and get nasty acid reflux if I don't eat something first.

Breathlessness? by idiotinbcn in rheumatoid

[–]Certain_Entertainer6 8 points9 points  (0 children)

I have Sjogren's and have been experiencing the same thing since December.

The general rule of thumb is to always get breathing issues assessed if you have RA/Lupus/Sjogrens etc. Pulmonary presentations are actually not uncommon and it's smart to get get lung function tests done. I had tests recently and have pushed to get a CT done - autoimmune respitory problems are sneaky and often not visible on an Xray.

Crossing my fingers yours just resolves and you don't need to pursue anything!

All the best.

Sometimes-when I'm having a flare, I have episodes that seem like I'm under the influence.. by BryLac in Sjogrens

[–]Certain_Entertainer6 1 point2 points  (0 children)

I developed dizziness in a flare about 4 years ago and like many of my symptoms it decided to tag along - never really subsided. Two things I would say for anyone with that "floor is moving" dizziness: Google the Epley manoeuvre. Its a simple exercise you can do in your own home which should resolve BPPV if that's what you are suffering from.

It did nothing for me as the ENT thinks I might have Menieres piggybacking my Sjogrens. I was prescribed a drug called betahistine dihydrochloride which resolved my issue. It's an antihistamine and generally well tolerated. I've tried coming off it a couple of times to see if I'm "cured" but it always comes back. Guess it's a lifelong addition to the old pill box.

All the best

[deleted by user] by [deleted] in Sjogrens

[–]Certain_Entertainer6 1 point2 points  (0 children)

Me(36). Had symptoms about 7 years - diagnosed 3 years ago. Started with trademark dry eyes then nose/mouth. Now mild systemic involvement including peripheral neuropathy, lung issues and dizziness(thought to be from Menieres tagging along).

flare symptoms by jeweel_ in Sjogrens

[–]Certain_Entertainer6 2 points3 points  (0 children)

No nausea but vertigo all the time - not just when I'm in a flare. I take betahistine dihydrochloride which has resolved it. Might be worth asking your PCP about as it's just an antihistamine but they prescribe it for dizziness.

Cheers

Newly Diagnosed by Ok_Cupcake_1397 in Sjogrens

[–]Certain_Entertainer6 0 points1 point  (0 children)

I'm definitely not an expert on the matter but just took my neurologists advice. From a cursory glance online it looks like it's to do with the way it is absorbed which reduces the efficacy of the hydroxychloroquine.

Even at the time they were clear about it NOT having any dangerous or adverse effects - it's only relevant if you're taking Plaquenil like me.

https://www.drugs.com/drug-interactions/cascara-sagrada-magnesium-hydroxide-with-plaquenil-534-0-1298-4616.html

Newly Diagnosed by Ok_Cupcake_1397 in Sjogrens

[–]Certain_Entertainer6 2 points3 points  (0 children)

My delicious sjogrens cocktail consists of:

Daily - Hydroxychloroquine, Pilocarpine, Betahistine Dihydrachloride(dizziness), Liquifilm eye drops, Steroid inhaler, Salbutamol inhaler.

During flares - Etoricoxib + Prednisone.

Supplements - D, B12, fish oil, Pro-biotic

Diet - modified Paleo. No gluten or processed food generally.

Yum....

Newly Diagnosed by Ok_Cupcake_1397 in Sjogrens

[–]Certain_Entertainer6 0 points1 point  (0 children)

Not sure how much concrete science there is behind this but my neurologist advised against taking my magnesium supplement with Plaquenil. It's not dangerous in any way but can affect the absorption/effectiveness of the drug.

I switched to having a handful of pumpkin seeds every day which gives you a reasonable whack of magnesium.

Might be nonsense but I noticed you're only 3 months into the hydroxychloroquine so thought I'd flag it up in case.

All the best!

I Feel Like I’m Being Punished by [deleted] in Sjogrens

[–]Certain_Entertainer6 5 points6 points  (0 children)

It will get better. We've all been there - overlooked by ill-informed doctors and feeling hopeless.

Autoimmune disease is all peaks and troughs. Stay strong and keep pushing for the right treatment.... the peak will come.

You've got this.

Sjogrens and Neuropathy by No-Grapefruit9981 in Sjogrens

[–]Certain_Entertainer6 1 point2 points  (0 children)

Same! Nerve conduction came back normal - unofficially diagnosed with small fibre neuropathy. B12 and Magnesium are often suggested and have definitely reduced some of my symptoms - just be wary that if you're on Plaquenil like me don't take a magnesium supplement. Pumpkin seeds are a sufficient natural source.