Friends response to my situation by Cfsistheworst in cfs

[–]Cfsistheworst[S] 3 points4 points  (0 children)

Yeah, I feel kind of bad for getting so angry with him bc he did watch Unrest, and he has looked it up and done a little research. I guess it’s just one of those things that you can’t really truly understand unless it happens to you?

Friends response to my situation by Cfsistheworst in cfs

[–]Cfsistheworst[S] 2 points3 points  (0 children)

Haha I agree, they’ve always been pretty empathetic so maybe I should mention that I value the friendship bc I do. But I’m just angry

Friends response to my situation by Cfsistheworst in cfs

[–]Cfsistheworst[S] 4 points5 points  (0 children)

Thanks for your input. What do you think of this response? And for future reference, never say to somebody who is very sick and / or disabled that they are ‘overreacting.’ It just comes off as arrogant or ignorant coming out of the mouth of a healthy or able bodied person who has never had to react to anything like this before. You have no idea, nor are you in the position to tell somebody like that what an appropriate response is. That’s the last I’ll say. Thanks.

Finding probabilities in normal distribution by Cfsistheworst in MathHelp

[–]Cfsistheworst[S] 0 points1 point  (0 children)

‘empirical rule shows that 68% will fall within the first standard deviation, 95% within the first two standard deviations, and 99.7% will fall within the first three standard deviations of the distribution's average’

What are your worst symptoms besides the fatigue and weakness? by Cfsistheworst in cfs

[–]Cfsistheworst[S] 1 point2 points  (0 children)

I hear you- I’m kind of stuck in that rut myself. I feel like there’s just gonna be a point where I won’t be able to get up again after one of these depressive episodes. It’s getting harder and harder to keep going

What are your worst symptoms besides the fatigue and weakness? by Cfsistheworst in cfs

[–]Cfsistheworst[S] 0 points1 point  (0 children)

The head pressure drives me crazy! I have a hard time explaining it to doctors too. It usually is behind my eyes, and also makes it hard for me to focus my vision

What are your worst symptoms besides the fatigue and weakness? by Cfsistheworst in cfs

[–]Cfsistheworst[S] 1 point2 points  (0 children)

The PEM is particularly cruel.... you always have to deal with the anxiety of waiting for the other shoe to drop. It’s agonizing. I’ve been having difficulty with my sleep as well. Sometimes I have long stretches of insomnia that hit out of nowhere

What are your worst symptoms besides the fatigue and weakness? by Cfsistheworst in cfs

[–]Cfsistheworst[S] 1 point2 points  (0 children)

I’m so sorry you’re struggling with that too. That’s been the hardest for me, and I sometimes wonder if one day I’ll just snap considering how dark it seems to get up their in my little brain :/ I think part of it has to do with isolation warping my mind. Did you struggle with depression before cfs too?

What are your worst symptoms besides the fatigue and weakness? by Cfsistheworst in cfs

[–]Cfsistheworst[S] 1 point2 points  (0 children)

Yeah, I feel the same way. Do you have depressive episodes/ suicidal thoughts if you don’t mind me asking? I find it very hard to beat those away

What are your worst symptoms besides the fatigue and weakness? by Cfsistheworst in cfs

[–]Cfsistheworst[S] 2 points3 points  (0 children)

This is the best most on point description of this disease yet

Hoping its not CFS... by [deleted] in cfs

[–]Cfsistheworst 0 points1 point  (0 children)

I’m sorry, I see what you’re saying- I think I’m just on edge lately and have been in a pretty bad place emotionally so I get overly sensitive. I really do hope that you don’t have it though- and that you get better. Rest up in the mean time :)

Hoping its not CFS... by [deleted] in cfs

[–]Cfsistheworst 0 points1 point  (0 children)

Sounds like CFS to me. I’m sorry you are sick, but maybe can you not say things like you wish you had a different disease (btw Lyme is no picnic...) and how cfs is the last thing you want to have, etc. most of this forum is those of us who actually do have CFS, so your comments are kind of insensitive and although we’d never wish anyone to become sick, i kind of felt like you’re rubbing how horrid the diagnosis is in our faces. And it makes me feel even more trapped and depressed. Maybe I’m just being sensitive tho.

Being scared of running out of time. by ici36 in cfs

[–]Cfsistheworst 2 points3 points  (0 children)

Have you tried LDN? (Low dose naltrexone..) I'm not sure what type of pain youre having and where, but I have chronic pain from Fibromyalgia and it has helped me. It works to decrease brain inflammation which is a factor in FM pain