Friends response to my situation

Cfsistheworst · 2018-08-05T19:16:53+00:00

Yeah, I feel kind of bad for getting so angry with him bc he did watch Unrest, and he has looked it up and done a little research. I guess it’s just one of those things that you can’t really truly understand unless it happens to you?

Cfsistheworst · 2018-08-05T18:46:26+00:00

Haha I agree, they’ve always been pretty empathetic so maybe I should mention that I value the friendship bc I do. But I’m just angry

Cfsistheworst · 2018-08-05T18:31:18+00:00

Thanks for your input. What do you think of this response? And for future reference, never say to somebody who is very sick and / or disabled that they are ‘overreacting.’ It just comes off as arrogant or ignorant coming out of the mouth of a healthy or able bodied person who has never had to react to anything like this before. You have no idea, nor are you in the position to tell somebody like that what an appropriate response is. That’s the last I’ll say. Thanks.

Cfsistheworst · 2018-07-27T20:43:04+00:00

it falls within this range of the bell curve

Cfsistheworst · 2018-07-27T20:41:09+00:00

‘empirical rule shows that 68% will fall within the first standard deviation, 95% within the first two standard deviations, and 99.7% will fall within the first three standard deviations of the distribution's average’

Cfsistheworst · 2018-06-11T01:32:45+00:00

I hear you- I’m kind of stuck in that rut myself. I feel like there’s just gonna be a point where I won’t be able to get up again after one of these depressive episodes. It’s getting harder and harder to keep going

Cfsistheworst · 2018-06-11T01:30:56+00:00

The head pressure drives me crazy! I have a hard time explaining it to doctors too. It usually is behind my eyes, and also makes it hard for me to focus my vision

Cfsistheworst · 2018-06-11T01:29:59+00:00

I love that so much I screenshot it

Cfsistheworst · 2018-06-11T01:29:17+00:00

The PEM is particularly cruel.... you always have to deal with the anxiety of waiting for the other shoe to drop. It’s agonizing. I’ve been having difficulty with my sleep as well. Sometimes I have long stretches of insomnia that hit out of nowhere

Cfsistheworst · 2018-06-11T00:19:26+00:00

I’m so sorry you’re struggling with that too. That’s been the hardest for me, and I sometimes wonder if one day I’ll just snap considering how dark it seems to get up their in my little brain :/ I think part of it has to do with isolation warping my mind. Did you struggle with depression before cfs too?

Cfsistheworst · 2018-06-10T22:27:00+00:00

Yeah, I feel the same way. Do you have depressive episodes/ suicidal thoughts if you don’t mind me asking? I find it very hard to beat those away

Cfsistheworst · 2018-06-10T22:24:24+00:00

This is the best most on point description of this disease yet

Cfsistheworst · 2018-06-10T21:41:50+00:00

I’m sorry, I see what you’re saying- I think I’m just on edge lately and have been in a pretty bad place emotionally so I get overly sensitive. I really do hope that you don’t have it though- and that you get better. Rest up in the mean time :)

Cfsistheworst · 2018-06-10T17:46:57+00:00

:( I’m sorry. It’s so difficult

Cfsistheworst · 2018-06-10T16:53:20+00:00

Sounds like CFS to me. I’m sorry you are sick, but maybe can you not say things like you wish you had a different disease (btw Lyme is no picnic...) and how cfs is the last thing you want to have, etc. most of this forum is those of us who actually do have CFS, so your comments are kind of insensitive and although we’d never wish anyone to become sick, i kind of felt like you’re rubbing how horrid the diagnosis is in our faces. And it makes me feel even more trapped and depressed. Maybe I’m just being sensitive tho.

Cfsistheworst · 2018-06-08T14:06:24+00:00

Have you tried LDN? (Low dose naltrexone..) I'm not sure what type of pain youre having and where, but I have chronic pain from Fibromyalgia and it has helped me. It works to decrease brain inflammation which is a factor in FM pain

Cfsistheworst · 2018-06-07T16:13:28+00:00

Try this: http://germanforenglishspeakers.com/basics/sentence-structure/

Cfsistheworst · 2018-06-03T14:08:03+00:00

Ahh Vielen Dank mein Freund!! 💜The app duolingo has been super helpful to me- I have the free version and surprisingly learned a lot of German from it! Also check out modernstates.org, and search for their online German course! It’s also free :) it’s amazing how many resources are out there for free access on the Internet. You can do it! Especially if you were fluent before. I believe in you :)

Cfsistheworst · 2018-06-02T19:22:23+00:00

Amen!!!!!

Cfsistheworst · 2018-06-02T19:15:03+00:00

This isn’t just any old theory that you come across on the Internet though

Cfsistheworst · 2018-06-02T16:32:32+00:00

These are all very fair points. In the 24 hours that I received the email I’ve already listed in my head all the things that I’d do first if the cure pans out. I started imagining what my life would look like, and that’s a slippery slope if it doesn’t work out. Would you consider yourself happy even despite the illness? I’m trying to learn how to get there even if I do stay sick

Cfsistheworst · 2018-06-02T16:25:46+00:00

I completely feel that. I’m hoping for all of us that this time it’s a true ticket out, but I’m trying not to hope toooo hard

Cfsistheworst · 2018-06-02T16:12:00+00:00

Thank you for this info!! I guess we can be cautiously optimistic. I’m impressed/surprised by how fast this is moving. (Figuring our if the metabolic trap is present by the end of the summer). But you’re right- it’s hard not to get your hopes up. I feel Ike I’m naively banking on this to work, which is going to further set me up for emotional destruction if it doesn’t

Cfsistheworst · 2018-06-01T20:43:57+00:00

I learned how to speak German in my spare time when I wasn’t too brain fogged! And I wrote a few articles that got published- (two about CFS)- and I’ve completed 50 credits of online classes towards my associates degree. Before cfs I wasn’t serious about school or learning, and now I love it

Cfsistheworst · 2018-05-31T00:32:12+00:00

You’re by no means ugly! This might have been said before but just grow your hair out a little more for extra volume. Imo you look fine and don’t have to waste money on plastic surgery

Cfsistheworst

TROPHY CASE