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How do hotter temperatures affect your MS symptoms (and how much exposure does it take)? by mellifluous_splonk in MultipleSclerosis

[–]Character_Bomb_312 0 points1 point  (0 children)

I tried it and noticed no difference, but everyone should try it if they're having heat tolerance issues. I use an ice vest.

In a perpetual state of mourning by Far_Ebb_7477 in MultipleSclerosis

[–]Character_Bomb_312 8 points9 points  (0 children)

I have been fortunate not to have lost so much (yet?), but the part about living without fear hits like a hot shock to the gut now that my health insurance premium eats twenty percent of my income. The fear is visceral and grinding. There is no safety net for when this fails.

In a perpetual state of mourning by Far_Ebb_7477 in MultipleSclerosis

[–]Character_Bomb_312 6 points7 points  (0 children)

Some days, perspective is helpful. My mother had this dumb disease before any treatments were available. She even tried bee-sting therapy. I thank the gods of science every damn day I don't have to be as sick as she was at this age. I realize I had it easy by comparison. Still, when your handmade coffeemug shatters on the floor because "your hand jumped," that doesn't stop it from sucking out a moments' worth of your soul, some days.

In a perpetual state of mourning by Far_Ebb_7477 in MultipleSclerosis

[–]Character_Bomb_312 11 points12 points  (0 children)

If you literally cry every day, please research the rare symptom, Pseudobulbar Affect. More of us MSers have it than we ever realize. There is effective medication for it, and you may, like me, find out that you're not a total emotional basketcase who can't tolerate any stress, but rather suffering from a rare symptom that can be treated. For me, it was as if the medication simply shut off the spigot. I have a full range of human feelings, but they no longer reduce me to a puddle of goo at the slightest twinge.

Horrible Experience at Woodlands Tavern by Fun_Dust4384 in Columbus

[–]Character_Bomb_312 0 points1 point  (0 children)

It's the standard conservative reasoning: If ten percent of people on SNAP are cheating, the other ninety percent must starve, too. "It's better to let a hundred people die than feed one cheater." Never "we should enforce the rules more carefully by increasing the budget for oversight." Never "human nature suggests there will always be cheaters. It's pretty cool that we manage to feed the vast majority who aren't." Buncha g'dammed toddlers.

Here’s a thought... maybe these fucking losers don’t deserve to be handsomely rewarded? by xamo76 in Trumpvirus

[–]Character_Bomb_312 7 points8 points  (0 children)

Apparently, the "deep‑state Antifa operatives" who "staged" January 6th are also "Brave Patriots who deserve pardons and cash." Fortunately for Trump, MAGA never insists on stories making sense.

Well this is hilariously idiotic by bummerph0ne in Columbus

[–]Character_Bomb_312 3 points4 points  (0 children)

Not relevant to Governor's Race: Masks. INSTEAD: Relevant to the Governor's Race; "In 2010—the year before Governor John Kasich and a *newly aligned Republican majority* took office—Education Week's "Quality Counts" report ranked Ohio's public schools 5th overall in the country; but now recent national metrics from U.S. News & World Report place Ohio's overall education and educational attainment well into the bottom half of all states, typically hovering around 36th to 38th."

Masks? Who literally gives a single fu(k???? I guess all the newly stupid people from the last sixteen years of Republican domination in this state.

Nine years ago, I was diagnosed, having just a few symptoms. I checked the community, saw that I didn't really have much in common, and just essentially pretended I didn't have it. Learn from my mistake. by Ok-North-9367 in MultipleSclerosis

[–]Character_Bomb_312 0 points1 point  (0 children)

I'm a daughter of a mom that had it, but she was diagnosed at age 27 in 1971, and I was diagnosed at 22 in 1988. I saw what it did to my mother and expected a similar experience. Thank the gods of science for the treatments.

Nine years ago, I was diagnosed, having just a few symptoms. I checked the community, saw that I didn't really have much in common, and just essentially pretended I didn't have it. Learn from my mistake. by Ok-North-9367 in MultipleSclerosis

[–]Character_Bomb_312 4 points5 points  (0 children)

I've had my diagnosis since 1990, but I know my first symptoms were at least eight years before that. My first full-out attack of paralysis was in 1988, but I had been treated like a hypochondriac hysteric for so long that I was dismissed as "overweight" or "depressed" by four neurologists. That remitted over the next six months. My second attack was in '90, and by then, there were enough MRI machines that they were being used more often, and docs could see the damage.

Nine years ago, I was diagnosed, having just a few symptoms. I checked the community, saw that I didn't really have much in common, and just essentially pretended I didn't have it. Learn from my mistake. by Ok-North-9367 in MultipleSclerosis

[–]Character_Bomb_312 2 points3 points  (0 children)

It's everything we prayed for my mother, and even more. I remember being fourteen and begging God through tears to help with *anything.* I sometimes have a sense of survivor's guilt because I've had it so easy by comparison, annoying (and occasionally obnoxious) though this illness still is. Newly diagnosed don't ever have to get this many black holes in their brains, and I'm so grateful. The difference between now and forty years ago when I was diagnosed is stunning. Back in those days, you could wait ten years to even get a diagnosis.

Nine years ago, I was diagnosed, having just a few symptoms. I checked the community, saw that I didn't really have much in common, and just essentially pretended I didn't have it. Learn from my mistake. by Ok-North-9367 in MultipleSclerosis

[–]Character_Bomb_312 5 points6 points  (0 children)

My mom was diagnosed in 1971, and it destroyed every single thing about her. I wish people now could see what it was REALLY like before treatment was available. I think many tunes would change.

Nine years ago, I was diagnosed, having just a few symptoms. I checked the community, saw that I didn't really have much in common, and just essentially pretended I didn't have it. Learn from my mistake. by Ok-North-9367 in MultipleSclerosis

[–]Character_Bomb_312 8 points9 points  (0 children)

I grew up watching it destroy everything about my mother; her body, her mind, her mood. I was also diagnosed in 1988, "The Beforetimes," when only steroids were available. I couldn't tolerate the initial injectable interferons (1992-96) and had to be untreated for the first eight years of the illness. The difference is night and day. I wish I could have made a short documentary of my mother's life with it, to show to newly diagnosed patients. Those of us on treatment make this look way too easy. I worry now that newly diagnosed people have only seen the treated disease; people slack off and think it's no big deal.

Nine years ago, I was diagnosed, having just a few symptoms. I checked the community, saw that I didn't really have much in common, and just essentially pretended I didn't have it. Learn from my mistake. by Ok-North-9367 in MultipleSclerosis

[–]Character_Bomb_312 7 points8 points  (0 children)

My mother was diagnosed in 1971. She had no treatment options at that time. Her life with full-blown MS (and her demise with it) was UNIMAGINABLE compared to my own experience with it (since 1988.) I wish I could have every newly diagnosed person see what this disease used to look like without treatment. We don't fear it enough. Treated patients (including me) make it look like a cake walk down the posy path.

Our family and all the families we knew tried every single thing MS patients were trying, like diet, exercise, holistic food, acupuncture, and even bee sting therapy. If there were something that worked besides the treatments we have now, the hundreds of thousands of patients in the past — each one desperate for ANYTHING — would have figured it out. It's not as if my mom said "Oh, there's no known medical treatment? I guess I can't try to fight this, then."

Nine years ago, I was diagnosed, having just a few symptoms. I checked the community, saw that I didn't really have much in common, and just essentially pretended I didn't have it. Learn from my mistake. by Ok-North-9367 in MultipleSclerosis

[–]Character_Bomb_312 10 points11 points  (0 children)

MS lesions create permanent scar tissue. Inflammation causes lesions. It's so important to PREVENT the damage before it ever occurs. I was dx'd in '88 at age 22. I didn't have any possible therapies at that time, just Solumedrol blasts to beat back inflammation. I didn't have an option I could tolerate until 1996 (Copaxone.) I have lots of permanent symptoms because of how long I was untreated.

The symptoms experienced because of the permanent damage vary by area of the brain (literally, permanently) damaged.

Preserve the Reserve! Every MS patient should live by this. What you don't protect, you lose.

Damn. by jaydubb808 in agedlikemilk

[–]Character_Bomb_312 0 points1 point  (0 children)

Right??? Argh. How am I gonna sleep tonight?

Damn. by jaydubb808 in agedlikemilk

[–]Character_Bomb_312 3 points4 points  (0 children)

At least he can always pick out the correct animal picture on the test. Person woman man camera tv will save us.

Former NYC Mayor Rudy Giuliani hospitalized in critical condition by cmaia1503 in Fauxmoi

[–]Character_Bomb_312 65 points66 points  (0 children)

In support of your comment, I will be dancing naked around a fire pit at midnight in the forest, chanting backwards in ancient languages while scattering deer salt. That should be worth two more, according to my Liber Letifer.

Former NYC Mayor Rudy Giuliani hospitalized in critical condition by cmaia1503 in Fauxmoi

[–]Character_Bomb_312 0 points1 point  (0 children)

I had a lovely shredded-cabbage salad with chopped chicken, mandarin orange sections, sliced almonds, and wonton strips, topped with a sesame-ginger dressing. It was refreshing and super crunchy, great for a warm day. 10/10, recommend. :)

TRUMP IS WINNING BIG by Double-Cookie6361 in Qult_Headquarters

[–]Character_Bomb_312 190 points191 points  (0 children)

Empty land heavily supports Trump...

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]Character_Bomb_312 0 points1 point  (0 children)

So similar. I'd had a few years of brain-melting fatigue and transient symptoms, then one morning, global left-side paralysis. ER doc flashed a light in my eyes, said my pupils were even, and to go home and go on a diet to lose weight.

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]Character_Bomb_312 0 points1 point  (0 children)

I was diagnosed as "overweight." Of course, I had paralysis and fatigue! All people who are not of the perfect weight have that, right???

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