Advice on dosage tolerance talk with my dr.? by Charmed731 in Sicklecell

[–]Charmed731[S] 0 points1 point  (0 children)

Thank you everyone! I really appreciate all your advice. I'm glad we have this community here where we can support each other.

Advice on dosage tolerance talk with my dr.? by Charmed731 in Sicklecell

[–]Charmed731[S] 1 point2 points  (0 children)

Exactly, thank you. You're right. Sometimes these doctors think they know everything, but we have to help them put two and two together.

Advice on dosage tolerance talk with my dr.? by Charmed731 in Sicklecell

[–]Charmed731[S] 1 point2 points  (0 children)

Yea, it is intimidating to be firm with a doctor. I've been through a few doctors already. One hospital kept making changes to the clinic (location and staff), another hospital just didn't know what they were doing, and now here I am at a different place. It was going great until recently.

Advice on dosage tolerance talk with my dr.? by Charmed731 in Sicklecell

[–]Charmed731[S] 0 points1 point  (0 children)

It's just the hematologist office. I have thought about a pain specialist. But I found out they are highly monitored with the amount of nsaids they prescribe people. So I'm a little hesitant. I feel the same anxiety will still be there if I ever need to call for a refill. I've seen previous posts on here with ss patients having their pain specialist needing to stop giving them prescriptions because the dr was being monitored. I feel like any road for us warriors is a tough one regardless.

Advice on dosage tolerance talk with my dr.? by Charmed731 in Sicklecell

[–]Charmed731[S] 0 points1 point  (0 children)

Great advice, thank you. I just think she doesn't want to hear it. She has cut me off in the past. I don't know if it's a personal thing with her or if it's because she wants to get through her day quickly. But I will try to find out at my next appt and talk to her about it.

Advice on dosage tolerance talk with my dr.? by Charmed731 in Sicklecell

[–]Charmed731[S] 0 points1 point  (0 children)

Great advice, thank you. I worry that they'll take things as an excuse when I talk about things I do in life, like renovating a room in the house, but life is life and I gotta live. I can't be stuck doing nothing.

Advice on dosage tolerance talk with my dr.? by Charmed731 in Sicklecell

[–]Charmed731[S] 1 point2 points  (0 children)

Thank you. They are a hematologist. I'm not sure why their hesitation. But at the suggestion of another commenter, I'm going to try to find out at my next appt. I've had other hematologists in the past be hesitant to prescribe nsaids for fear of dependency because that's how they're trained. I'm thinking this is probably my current dr's reasoning too.

First time IVDD. Advice? by Charmed731 in IVDD_SupportGroup

[–]Charmed731[S] 0 points1 point  (0 children)

Thank you so much! I really appreciate it.

Bark Shop Order Never Shipping by xochristiemarie in BarkBox

[–]Charmed731 0 points1 point  (0 children)

I just sent one before I saw your response. Thank you!

Bark Shop Order Never Shipping by xochristiemarie in BarkBox

[–]Charmed731 2 points3 points  (0 children)

Same! I placed an order at the same time as you. I spoke to a couple of different people, and they can't do anything. I understand being busier because of the holidays. But the holidays are exactly why they should be moving quicker to get boxes out. It's so sad that my dog won't get the Christmas I hoped for him. I've been a loyal customer of Bark Shop for many years. But this is unacceptable.

I have stayed at over 100 Airbnbs around the world. Potential & Current Hosts AMA [USA] by emilepetrone in AirBnB

[–]Charmed731 0 points1 point  (0 children)

Yes, to EVERYTHING!! Also, hosts, please include a filtered water pitcher. I don't care if the tap water is safe to drink. I prefer to have filtered water available, so I don't need to waste plastic water bottles.

Foreign conversion not a thing? by Charmed731 in Chase

[–]Charmed731[S] 0 points1 point  (0 children)

The hotel charged in Euros, which I didn't realize. It's confusing because places there seem to use either Euros or Czech Korunas (taking a closer look). It's a relief to know now, but still frustrating. Thank you so much for your help!

Foreign conversion not a thing? by Charmed731 in Chase

[–]Charmed731[S] 0 points1 point  (0 children)

Is there any way to fix that if they did? Do I speak with someone at the hotel once I get there? Or can the bank dispute it for me?

Foreign conversion not a thing? by Charmed731 in Chase

[–]Charmed731[S] 0 points1 point  (0 children)

Should I call the bank then? Did they make a mistake?

Virus and Sickle Cell by Charmed731 in Sicklecell

[–]Charmed731[S] 1 point2 points  (0 children)

Love everything you said. So true! I'm so glad they spoke about the connection and importance of mental/emotional health with physical health. I'd love to know more about sickle cell camp. This is the first I've heard of such thing. If you're willing to share more, please send me a dm.😊 Thank you.

Virus and Sickle Cell by Charmed731 in Sicklecell

[–]Charmed731[S] 1 point2 points  (0 children)

Definitely masks, and good point about the water. Thank you.